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Rash Is Gone

bratcat

By bratcat
in Dermatitis Herpetiformis

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bratcat Apprentice
bratcat
Posted
:P The rash that I had has gone away.It really healed up.From what happened I am not so sure that celiac is the only cause of HD.I had mine for 8 months before anyone was able to give me anything for it.At the time I got the rash I had just been put on some medication for restless legs,and had also been taking alot of ibuprofen.I quit taking the ibuprofen because of the bruising and bleeding it caused and I cut back on the other med.I have been plagued with this rash for over a year .I am so thankful that it is gone.I am still not totally gluten frree.When you are the only one who has celiac and have to cook for several people it is really hard to be gluten free.That is another reason I believe it was caused by something other than gluten.Anyone have any ideas on this?
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lovegrov Collaborator
lovegrov
Posted

Were you actually diagnosed with DH? If a doctor actually diagnosed you with DH, then you almost without question have it. And if you have DH, then, according to all experts and the NIH, you most definitely have or will have celiac disease. You MUST remain gluten-free.

DH is strange (just like celiac disease). Some people break out like crazy with just small amounts of gluten and others heal up when they just cut back on gluten. Some take months and months to get rid of the DH and others (including me) get rid of it immediately. My father suffered from celiac disease for 20 years (he didn't know about the celiac disease connection); it disappeared for several years; and then it came back. Then he was diagnosed with celiac disease with no symptoms other than the celiac disease.

Nobody wants to have celiac disease, but if you truly have DH, you must, must remain gluten-free. If you don't, you could end up like me. I had DH for more than 20 years and was unaware of the celiac disease connection. The celiac disease finally caught up with me and nearly killed me. 11 days in the hospital, 10 weeks off work, and about a year to really recover.

richard

bratcat Apprentice
bratcat
Posted
  • Author

Yes I was diagnosed by a doctor after many months of testing.I had the rash for 8 months before diagnosis and no one could tell me what it was.I am more convinced that the rash was ibuprofen related because I had to take two doses of it and the rash is trying to come back.Iknow I have to get to where I am totally gluten-free,but it is so hard when no one else in the family has it.and I have to fix their food too.Also where I live people look at you like you have insulted them if you don't eat like everyone else.That or they give you a wide berth when you tell them you have celiac.The first thing I get asked is "is it catching?"I don't go out anymore because to go out to eat I just have to eat salads.That is the only thing I know is safe.

Pegster Apprentice
Pegster
Posted

Anti-inflamatory drugs like Ibuprofen can worsen DH. I finally connected my outbreaks with ALEVE. After taking it for a few days, I always have a flare up, but then it goes away. I am gluten free, and I can almost always trace an outbreak to either a gluten accident or taking an anti-inflamatory.

lovegrov Collaborator
lovegrov
Posted

Iodine can also cause flareups until you've completely healed.

richard

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