Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Salicylates And Lectins Too....?


scotty

Recommended Posts

scotty Explorer

i was just wondering what the folks on here who i am more and more coming across that they avoid salicylates and lectins as well as everything else that seems to generally attach itself to problems with gluten. i was just wondering what they are eating then. i have done research and there is almost enough information to rule out everything!!! one website says potatoes are ok another says they are bad and that is not the example i want to use persay but the first one i thought of....just out of curiosity here. i can't find a website yet that has a true diet to follow; can only find the negatives and they are overlapping :blink:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Sorry I didn't answer your questions yet. I got glutened in a restaurant in Mexico last Thursday night, and then in the airport on Sunday, and I am still feeling rather crappy.

The problem with nightshades (which includes potatoes, tomatoes, peppers and eggplant) is, that they are high in both lectins and salicylates, plus they have something else (don't remember what it is called) that makes them a real whammy.

I eat potatoes once in a while, though, maybe once or twice a month, and never a lot. Make sure they are white, peeled potatoes. The peel is always the worst part, because it contains a lot of salicylates.

I eat mostly just meat and fish, some vegetables, peeled pears, the occasional peeled golden delicious apple (the only acceptable kind of apple), salad, about once a week cream of buckwheat for breakfast (I don't handle any starches very well). The only sweetener I use is 100% maple syrup. The only safe fats are cold pressed sunflower oil and lard. Hazelnuts are fairly safe in small quantities, as are sunflower seeds. Bananas are supposed to be safe, but I've had a problem with them for years and can only eat about one a week. The juice of about one lime a day is safe (lemons and oranges have a much higher salicylate content than limes and are not safe).

The only vegetables I can eat any amount of are green/white cabbage, rutabaga, celery and iceberg lettuce (none of which has ever been a favourite food of mine :( ). I eat in limited amounts brussel sprouts, carrots, asparagus, cauliflower, green beans, peas, kohlrabi.

The only safe herbs are parsley and dill in limited amounts. No spices are safe, and neither is table salt. I use only sea salt.

Chamomile tea is the only safe tea. Juices are out, and so is coffee. I only drink water and chamomile tea (with maple syrup).

Here are two links that will help you a great deal, they were my best resources when starting out.

Open Original Shared Link

Open Original Shared Link

If you are serious about trying to eat without salicylates, I advise you to order the C D from the salicylate site, it has been invaluable to me.

scotty Explorer

Ursa,

well bless your heart for answering then.

i can't believe your the only one to answer though. maybe these diets are not as clear cut as they seem. thanks for the websites too--the one i had come across, but one is also new. just curious what everyone is following. looking for the majic mixture. seems like most of the stuff i can't eat anyway are on these lists. i'm going to create my own diet which like everyone else's will be very restricted and will have a list of safe foods (or what works for me); that seems to be the idea. maybe though i can make some $$$$$$$$$$ off it.

thanks again and hope your better,

scotty

Ursa Major Collaborator

Scotty, you're right, you will have to experiment. As Krispin in the Lectin site says, you may be able to eat some lectins after a year off them. You need to test that. I find I can tolerate limited amounts of rice now. But everything else is still no good.

The same goes for the salicylates. You can be sure that Aspirin is a no-no. Oranges are bad, but the occasional Clementine is fine for me now (less salicylate content). Spices are terrible (instant heartburn and headache, and aching the next day), as are most herbs (even though not as bad).

Everybody who is intolerant to salicylates has a different tolerance level, you have to figure out yourself how much you can handle each day. Just make sure you know which foods have the highest levels, and stay away from those all the time.

I always know when I've gone over the line when my skin and muscles are aching badly the next day, and I have to take my codeine pills again for a couple of days to manage (I used to take those 24 hours a day before going off gluten and other lectins and salicylates).

Lizz7711 Apprentice
Scotty, you're right, you will have to experiment. As Krispin in the Lectin site says, you may be able to eat some lectins after a year off them. You need to test that. I find I can tolerate limited amounts of rice now. But everything else is still no good.

The same goes for the salicylates. You can be sure that Aspirin is a no-no. Oranges are bad, but the occasional Clementine is fine for me now (less salicylate content). Spices are terrible (instant heartburn and headache, and aching the next day), as are most herbs (even though not as bad).

Everybody who is intolerant to salicylates has a different tolerance level, you have to figure out yourself how much you can handle each day. Just make sure you know which foods have the highest levels, and stay away from those all the time.

I always know when I've gone over the line when my skin and muscles are aching badly the next day, and I have to take my codeine pills again for a couple of days to manage (I used to take those 24 hours a day before going off gluten and other lectins and salicylates).

Do some people react only to some salicylates and not others? I noticed that after making this delicious soup made with just chicken broth, leeks, carrots, chinese cabbage, and lentils, with CURRY powder, that I had a headache and tight stomach for two days. I'm thinking it's either the lentils or the curry since the curry powder is high salicylate. I also seem to react to red grapes with irritability. But no problem with apples or some other foods listed as having salicylates. From some research I did, it doesn't seem like the listing of salicylate content of foods is very reliable/accurate--they don't really know for sure the content levels, and the few studies i've found contradict each other on many items.

Liz

Ursa Major Collaborator
Do some people react only to some salicylates and not others? I noticed that after making this delicious soup made with just chicken broth, leeks, carrots, chinese cabbage, and lentils, with CURRY powder, that I had a headache and tight stomach for two days. I'm thinking it's either the lentils or the curry since the curry powder is high salicylate. I also seem to react to red grapes with irritability. But no problem with apples or some other foods listed as having salicylates. From some research I did, it doesn't seem like the listing of salicylate content of foods is very reliable/accurate--they don't really know for sure the content levels, and the few studies i've found contradict each other on many items.

Liz

I imagine it would be the curry powder. Lentils are fine on a salicylate light diet. Everybody who has a salicylate intolerance has a different threshold on how much they can tolerate.

Red grapes are a definite no-no. The other ingredients of your soup are okay, unless you eat a lot of it.

Where a food is grown influences the levels, too. That is why they can't really give you accurate readings. Organic vegetables have a salicylate content that is about 60 times as high as non-organic vegetables. Which is good news for most people (salicylates are anti-oxidants), but not for people like me.

In the end, you need to know which foods are high in salicylates, which ones have negligible amounts, and which have fairly low to moderate amounts. Always avoid the high ones, eat lots of the very low ones, and eat moderate amounts (once in a while) of the ones in between. And if you feel bad, you know you have overdone it, or can't tolerate a food at all.

There really is a lot of trial and error and takes time to figure out. I've been working on it for two years now, and pretty much know what I can eat, and what amount would be too much.

Lizz7711 Apprentice

Ok, thanks for the advice! I'll have to test the curry powder...I'm not entirely sure I have a salicylate issue so I guess I really need to do some controlled experimentation. That's crazy about organic vegetables, makes sense though...so do you buy non-organic because of that? Or just cut the outside skins? Is there any hope of reversal of salicylate sensitivity?

Liz

I imagine it would be the curry powder. Lentils are fine on a salicylate light diet. Everybody who has a salicylate intolerance has a different threshold on how much they can tolerate.

Red grapes are a definite no-no. The other ingredients of your soup are okay, unless you eat a lot of it.

Where a food is grown influences the levels, too. That is why they can't really give you accurate readings. Organic vegetables have a salicylate content that is about 60 times as high as non-organic vegetables. Which is good news for most people (salicylates are anti-oxidants), but not for people like me.

In the end, you need to know which foods are high in salicylates, which ones have negligible amounts, and which have fairly low to moderate amounts. Always avoid the high ones, eat lots of the very low ones, and eat moderate amounts (once in a while) of the ones in between. And if you feel bad, you know you have overdone it, or can't tolerate a food at all.

There really is a lot of trial and error and takes time to figure out. I've been working on it for two years now, and pretty much know what I can eat, and what amount would be too much.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

I was tested to have very low aldosterone levels (a hormone made by the adrenal glands) a year ago (the 'normal' range is supposedly 60 to 780, and mine was 73). I have been on Fludrocortisone since last July, when a doctor in Germany agreed that not only was a level of 73 not normal, but dangerously low (my blood pressure had gone down to 85 over 55 by then as a result). The optimal range is around 500 to 600. But my doctor here in Canada declared 73 'perfectly normal, nothing needs to be done'.

Low Aldosterone will (amongst many other symptoms) cause allergies and intolerances. I've found that even though I still have to be careful, that my tolerance level for salicylates isn't as low as it was (I still won't normally eat foods high in salicylates, though).

Yes, I avoid organic vegetables and fruit, even though I would normally prefer them. <_<

Lizz7711 Apprentice
I was tested to have very low aldosterone levels (a hormone made by the adrenal glands) a year ago (the 'normal' range is supposedly 60 to 780, and mine was 73). I have been on Fludrocortisone since last July, when a doctor in Germany agreed that not only was a level of 73 not normal, but dangerously low (my blood pressure had gone down to 85 over 55 by then as a result). The optimal range is around 500 to 600. But my doctor here in Canada declared 73 'perfectly normal, nothing needs to be done'.

Low Aldosterone will (amongst many other symptoms) cause allergies and intolerances. I've found that even though I still have to be careful, that my tolerance level for salicylates isn't as low as it was (I still won't normally eat foods high in salicylates, though).

Yes, I avoid organic vegetables and fruit, even though I would normally prefer them. <_<

That's interesting. I have low adrenal function as well as hypothyroid. Haven't tested aldosterone. Could it be though that the food sensitivities are what causes the hormone/adrenal problems? That's my guess due to the stress the foods are putting on those systems.

LIz

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - RMJ replied to cristiana's topic in Related Issues & Disorders
      2

      Low iron/high normal haemoglobin

    2. - Aretaeus Cappadocia replied to cristiana's topic in Related Issues & Disorders
      2

      Low iron/high normal haemoglobin

    3. - cristiana posted a topic in Related Issues & Disorders
      2

      Low iron/high normal haemoglobin

    4. - Scott Adams replied to JForman's topic in Coping with Celiac Disease
      11

      7yo struggling!

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,170
    • Most Online (within 30 mins)
      10,442

    yvonne jacobs
    Newest Member
    yvonne jacobs
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • RMJ
      Yes it matters.  Hemoglobin isn’t the only molecule in your body that needs iron.  Here are several articles on non-anemic iron deficiency: Non-anaemic iron deficiency https://www.thebloodproject.com/non-anemic-iron-deficiency-naid/ Can you be iron deficient without anemia
    • Aretaeus Cappadocia
      Not sure what you mean by "poor iron levels" if 30 is normal (upper end of normal range) and you are 29. (at least, that's how I read your post. Seems to me that your iron (ferritin) is normal, whereas before it was too high (40). At any rate, your post made me curious, so I copy pasted "Does it actually matters if my iron levels are poor, if my hemoglobin is normal" into the google search bar. According to Dr google, it does matter and they had a lot to say about it.
    • cristiana
      Hello All I think I started a thread on this subject some time ago, but now can't find it.  Or possibly it was someone else's thread that I hijacked - and that's why I can't find it! Anyway, I have a rather complicated issue with iron and I'm wondering what to do about it.  Or even if it matters. Pre-menopause, when I was first diagnosed with coeliac,  my ferritin levels were dreadful and I had to supplement.  It soon became apparent that I had to stop, as once my iron anemia cleared up, my hemoglobin levels reached high normal, verging on a condition known as polycythemia.   High normal in my lab is 15.5 for women, and my level has hovered between 15 and 15.5 The highest my ferritin levels have ever been is 40 (30 being normal) since I started my gluten-free journey - I reached that level about three years ago., about a year post menopause.  18 months later my ferritin had gone down to 29, which I think I can explain because I've been avoiding red meat.  This was a conscious decision as I have  discovered that I can keep my hemoglobin levels at safe levels so long as I don't consume too much iron.  My gastroenterologist also told me not to supplement it.     I have recently had a colonoscopy and have done a FIT test to detect bleeding, both came back normal.  So I feel that the reduced iron consumption is probably the reason for this new deficiency.  But I have two questions: A. Does it actually matters if my iron levels are poor, if my hemoglobin is normal?  (I do feel a bit tired, but surely if my hemoglobin levels are normal I shouldn't?) B. Would my last TTG blood result of 10 (cut off point for normal levels at my lab)  be affecting my absorption of iron? Thanks! Cristinaa  
    • Scott Adams
      This would definitely be an interesting study. We did an article on this a while back:  
    • Scott Adams
×
×
  • Create New...