Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question To Those Who Lost/gained After Gluten-free...


Kilika

Recommended Posts

Kilika Newbie

Hello! :)

Believe it or not I have never blogged before, so not only am I newly gluten intolerant, I am also behind in the times. haha. :) I've been reading some of your posts and they have been super helpful and i thank you sooo much. *squishy hugs to you all!* Alas, I have been gaining weight like crazy, like 50 pounds in 4 months! :( NOT fun! Also got pain bloating, you all know the drill. When i went gluten free for 4 days I lost 2 of the 10 inches i'd gained in my waist. But, I was wondering, it sounds like people either lose OR gain on a gluten-free diet...for the people who gained weight *prior* to being gluten-free, did you lose the weight once cutting the gluten??

I'd really appreciate any input, thanks so much.

Christina


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kilika Newbie

hello again,

I have noticed a few people checking out my post, but no responses. I would really appreciate any responses, i'm feeling pretty hopeless at the moment :(

sparkles Contributor

I lost about 30# very quickly (3 months) after going gluten-free but then started regaining weight as soon as I started adding more processed gluten-free foods to my diet. Those foods were breads, desserts, snacks. When I first went gluten-free, I gave up everything except hamburger, potato, and lettuce. Needless to say, my diet was really limited. The processed foods, like all processed foods, are really high in calories and fat. I was overweight to begin with and will probably always be overweight. The thought of giving everything up again is really hard. I stay gluten-free but cannot and I guess will not give up the gluten-free substitutions that I like....

little d Enthusiast

Hi Christina

I did lose weight 2 years ago when I first started the diet 14lbs and my starting weight was 160lbs. After all the testing came back negative I started to eat regular food again and gained all 13lbs plus more. I am off and on again with my diet, the more I eat gluten foods I gain weight feel crappy and the more I eat gluten free foods I loose weight and I feel great. I am down to 147lbs. I eat the same way regardless what I am eating. I work 3 nights a week and I will eat before I leave at 5pm and eat again at 12 or 1am I may have a little snack of sunflower seeds and pickles or maybe some fruit at work on top of my meal from home. Then I won't eat again until I wake up at 2pm drink my coffee and eat dinner at 5pm. And when I am off I eat breakfest I don't snack during the day skip lunch and eat dinner around 5 or 6pm. So I really don't eat that much so when I eat gluten foods my body does not like that plus I want to eat more. Gluten free foods fill my up and I stay satisfied between meals. I started with the processed gluten free foods, the breads, pastas, cookies, and suchMy husband could not understand my hunger before I discovered gluten free, We would go to a restruant for lunch or dinner on the weekends and I would eat a big filling meal with pasta and stuff like that and an hour later I was starving again. I am only 4' 11" I was starting to look as round as I was tall. I am learning what I can eat that works for me, what works for me may not work for someone else. I don't watch my calorie intake but I am aware of my calories that I intake. I do watch the carbs that I take in but I don't know how to count my carbs.

Don't be hopeless with your diet it is just a matter of finding what works for you.

donna

Kilika Newbie

thank you both soo much for your replies. it's very encouraging. ya, i understand the appetite thing, you just dont get full while eating gluten!!! good to hear that resolves when going gluten-free. once again, thanks so much. and if anyone else has anything to share i'd love to hear it. tis very helpful and uplifting. i also appreciate the tips on what to eat. :)

superbeansprout Rookie

Hi! Let's see, I gained steadily over the past 5.5 years, went from 118 lbs to 142lbs. Even after trying to go to the gym, I couldn't lose weight. I'm also diabetic, and am actually quite petite, only 5'1". once I learned of the gluten allergy, I dropped almost 10 pounds within a month or two. I've remained around 132 since then. I think part of it for me in the beginning was that I didn't eat anything that I didn't recognize as being gluten free. I wouldn't eat lunch meat (now I only eat pre-packaged certified gluten free foods). but way back then, I would eat plain rice, and plain chicken, plain potatoes, dry salad. I live with my parents right now, and my mom would try to be really helpful, but it's difficult to do so when they just don't really quite understand the extent to what things can affect you. I never thought about the wooden spoon and cast iron pans. Since my mother still makes most meals, as I am out very late at theater rehearsals, I wonder if that's why sometimes I don't feel 100%. how do I encourage her to understand the extent of the things that could hurt me? we have flexible cutting boards, but they sit on top of our wooden cutting boards that pull out from the counter top. She just thinks I'm nagging and being picky instead of her trying to understand it all. I know it's hard to change your ways, but how does anyone who lives with gluten-eaters get by and not be hated?!?!

I got off topic, sorry! don't give up, but maybe try to stick to the basics for a while before trying to expand your diet into things that may or may not affect your gluten intolerance. essentially, eating less bread will help you lose weight, but if you immediately replace it with gluten free breads, you're actually technically eating more carbohydrates, because there is less fiber in rice (almost none!) where as in other grains, you have fiber that doesn't count towards the total carbs.

superbeansprout Rookie

Ok I totally misrepresented myself in that last post...so sorry...I don't solely eat only pre-packaged gluten free food. that's silly. but if something like lunch meat...I only eat the pre-packaged certified gluten free kind. I make a lot of stuff from scratch. I make a great mac and cheese that I found in bon appetit magazine, but I just altered it to be gluten free...using gluten free pasta, and gluten free breadcrumbs. Everything else was fine. cheddar, gruyere, brie, milk (though a lot of people do have a problem with dairy, as do I, but I still just take lactaid and i"m fine) thyme, nutmeg. it's a very tasty dish. :) Not, however, if you want to LOSE weight. ha!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kilika Newbie

thanks again. ya, i got what chya meant with the packaged stuff, makes sense. i think that would be really hard to have your mom not understand what's going on. my mom is the opposite: finding me gluten-free bakeries, looking up info online, helping me check ingredients, it makes a world of difference, so im really sorry to hear about your case. *hugs* perhaps if you look up some info from a credible source about contamination and show her, she might understand better. i know the GIG (gluten intolerance group) has a lot of info and some of it talks about how if a bakery bakes with wheat flour it can settle on and contaminate the gluten free products, irritating the eater. it also talks about how even toasters can be a source of contamination and cause symptoms in those with gluten intolerance, which is similar to the whole utensils and cutting board issue.

so overall im hearing if i dont eat the gluten-free breads and stuff im more likely to lose weight. my problem was that before i discovered that i was gluten intolerant, i was gaining lot's and i went on weight watchers and upped my exercise and continued to gain weight!! so i was hoping that if i cut the gluten, but maintain the diet and exercise my body would do what it's supposed to when on weight watchers: lose weight! i have lost like 10 pounds after about a week gluten-free, not to mention 8 inches off my waist! so it's looking good so far. not to mention, i feel so much more comfortable. im willing to go swimming without the fear of people asking me when the baby's due! haha. and thanks to people's input, i am feeling hopeful for the long road to come. :)

christina

greendog Apprentice

I got up to about 165 lbs before I found out about the gluten thing, but a lot of my problem was that I was too tired to exercise. After I got off gluten I started exercising again and like any diet I watch what I eat . My weight stays around 152 lbs. I try to do the treadmill and weights 3 times a week, and make a point of parking at distances where I have to walk a little. Some days I will cook up nothing but Thai Kitchen noodles for lunch, and that is it. It is a lot about lifestyle. I used to work out in a gym with a lot of amateur body builders and the interesting thing is we could live on their diet. Tuna and lettuce or lettuce and tuna. If they didn't have the money they ate mackerel instead of tuna. :P

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

    3. - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    4. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    5. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,470
    • Most Online (within 30 mins)
      7,748

    Elkay008
    Newest Member
    Elkay008
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.