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Constipation Help


blondebombshell

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blondebombshell Collaborator

this may be TMI but i need help. doctors seem to know 'nothing' about what is wrong with me.

my whooole life i have had issues with going to the bathroom. i probably go once a week. my diet is relatively clean (veggies, fruits, etc) so i dont know why.

wound up going to the doctor in august and asked why it hurt when i laid on my left hand side. always feel bloated, etc. he told me i was constipated and that i should take laxatives. did some bloodwork and came back that i had a gluten, wheat and egg allergy. i had an endoscopy and it came back negative for celiac.

i have been taking the laxatives now for a few months, while eliminating wheat/gluten at the same time and am feeling much, much better.

any ideas as to what is *really* wrong? i feel like no one knows - no allergists, GI's, no one!! when i do eat something that has gluten in it, i get itchy hives all over my legs.


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celiac-mommy Collaborator

Are you still constipated? If you're feeling better overall but are still finding yourself constipated, it may be the constant use of the laxitives. The longer you use them, your body will build a dependancy and you will have a difficult time going without them or having to increase your dose over time because your body is going to need more and more...

debmidge Rising Star
this may be TMI but i need help. doctors seem to know 'nothing' about what is wrong with me.

my whooole life i have had issues with going to the bathroom. i probably go once a week. my diet is relatively clean (veggies, fruits, etc) so i dont know why.

wound up going to the doctor in august and asked why it hurt when i laid on my left hand side. always feel bloated, etc. he told me i was constipated and that i should take laxatives. did some bloodwork and came back that i had a gluten, wheat and egg allergy. i had an endoscopy and it came back negative for celiac.

i have been taking the laxatives now for a few months, while eliminating wheat/gluten at the same time and am feeling much, much better.

Do you mean laxatives or fiber supplements?

blondebombshell Collaborator

laxatives

flourgirl Apprentice

Hi. If you're getting itchy hives when you ingest gluten, that may be dermatitis herpetiformis, which is a skin manifestation of Celiac. A biopsy near the rash would be able to tell you. You can have Celiac without the intestinal damage. Have you had any blood tests? I would look into this further, and be persistant for answers. As far as constipation...I've had it for years...we always thought it was just a familial trait, as most of my family suffers with it. Turns out for me, at least, it's Celiac. When I finally got sick enough Iwent the other way. Now I can't stop the big D! Good luck in your search for answers.

blondebombshell Collaborator
Hi. If you're getting itchy hives when you ingest gluten, that may be dermatitis herpetiformis, which is a skin manifestation of Celiac. A biopsy near the rash would be able to tell you. You can have Celiac without the intestinal damage. Have you had any blood tests? I would look into this further, and be persistant for answers. As far as constipation...I've had it for years...we always thought it was just a familial trait, as most of my family suffers with it. Turns out for me, at least, it's Celiac. When I finally got sick enough Iwent the other way. Now I can't stop the big D! Good luck in your search for answers.

i feel like these doctors suck! (sorry but they do!)

my GI did an edoscopy which came back negative for celiac. he said my intestines look 'fine' and that it must be something else like an allergy causing hives.

so i went to an allergist - came back i was allergic to melons, apples, egg and thats it! not wheat! that came up in a blood test. (eggs and wheat). i was glutened *i think* by eating a rice krispie treat and a bag of jellly beans and i have hives all over my legs.

rick-spiff Rookie
my whooole life i have had issues with going to the bathroom. i probably go once a week. my diet is relatively clean (veggies, fruits, etc) so i dont know why.

Sounds just like me.

My hormone levels are off, allergy tests haven't come back yet, but what my dr did (she's a naturepath) was put me on magnesium to help me go to the bathroom regularly. I had to take stool softener so I didn't get all crampy at first, but speaking from experience, it's real hard on your body keeping in those toxins for a week. I am doing much better now!


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    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • Scott Adams
      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
    • Greymo
      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
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