Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What About Millet?


u396

Recommended Posts

u396 Newbie

My husband is a celiac newly diagnosed by endoscopy etc. We are in FL for 3 months and can't seem to find any bread products that don't contain millet. We've been to 2 health food stores and they say these are okay. In MA I was able to get french rolls, bread, doughnuts etc. made from rice flour. With those products he has been symptom free. What about mail order ofr bread.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MySuicidalTurtle Enthusiast

About Millet. . .as far as I know it's "see how you do with it." Some people don't react well to it and others are fine with eating it. I personally don't eat it.

A great company to mail-order from is Kinnikinnick. They have the best tasting products. I used to mail-order their products until a local store here startd carrying them. If you like them try and get your stores to order them.

Open Original Shared Link

They are Canadian but ship to the states (I am in Georgia). There are 3 Celiacs in my family and we all reccomend their products. I eat the english muffins everyday.

lovegrov Collaborator

Millet itself is OK but stay far away from Deland millet bread (which I think is made and sold in Florida). It's been tested more than once and has had tons of wheat.

richard

hopeful Newbie

I ask myself the same question at every meal, "what about _____?" I don't eat millet because it's not allowed in the specific carbohydrate diet I follow. This diet is more restrictive than gluten-free. The reason it's more restrictive is because wheat gluten may not be the sole root cause of celiac disease. The sinister thing about celiac disease is that the foods which are the underlying culprits may not generate any symptoms for a long time. ie., you can be symptom-free for a long while, but your diet is creating inbalances of bacteria, toxins, etc. that lead to allergic reactions with other foods. For instance, I ate lots of wheat bread for years and had no problems with it. But all the while, I was becoming progressively more allergic to more and more kinds of other foods. When I went on the SCD, many of these allergies disappeared. For instance, after several weeks, I was able to eat lean, high quality steak. Before going on the SCD, one bite and I'd be agonizing in the bathroom within minutes. Amazing! And by the way, everybody's allergies are different. The question is, what foods are causing the allergies? Again, you can be tolerant of something that makes you allergic to something else. That's what's so sinister about celiac disease.

The specific carbohydrate diet is well-balanced and healthy. So why not do it instead of just gluten-free? It seems to me that you're more likely to improve with the SCD, although it's harder to follow. For more information, read "Breaking the Vicious Cyle: Intestinal Health Through Diet" by Elaine Gottschall. In it, she has a section called "The Celiac Story" where she chronicals the gluten-free diet. Essentially, she argues that the gluten-free diet is the typical doctor's hammer, for which everything looks like a nail. Relapses are "all-too-common," she says.

I'd love to eat millet. But because it's not allowed in the SCD, I believe, in the long run, it would push me further down instead of building me up. The reason it's not allowed is very logical. Not enough space to explain here. Read the book.

IrishGirl71 Rookie

I've been eating the millet bread made by "Food For Life" and so far so good.

I had tried some of their rice flour breads, but I found they didn't toast well, and the millet really does (for me).

Good luck!

DrLeonard Newbie

Hi

None of the store-sold bread in Florida is gluten-free---in fact, the Whole Foods where I shop now has a huge sign saying this about millet bread sold in Florida. There might be small bakeries around that make gluten-free bread but in four years, I've not found anything.

I'm one of those celiac's who can't eat millet; three tries, three trips to the ER. My physician says that I just happen to be allergic to it. My advice is that if you're going to try it, start very very small. It takes about six hours before eating millet until I get sick and then I'm violently ill (to the point of hallucinating) for a day or more. So small doses might be the way to go.

tarnalberry Community Regular

Millet itself is gluten-free, but there are a NUMBER of breads made with millet (many which say wheat free) which are not GLUTEN free. Be careful reading the labels.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Maggie1956 Rookie
I've been eating the millet bread made by "Food For Life" and so far so good.

I had tried some of their rice flour breads, but I found they didn't toast well, and the millet really does (for me).

Good luck!

:D I saw a Food For Life store here in Queensland, Australia last week as we were driving by, after buying groceries (always the way isn't it?)

I'm so excited to find a good gluten-free store that may be ok for us lot...celiacs. ;)

I'll have to go and have a look in there next time. It's not always easy to find a large variety gluten-free foods here.

Thanks for the tip.

jboom Newbie

I tried the gluten free millet bread. Thought I found the new answer to sandwitches. The first time I ate it no problems, the second time I tried it I got violently ill (within and hour). It affected me differently than gluten though. It caused me to vomit violently, something I haven't done in years.

Tabitha Newbie
A great company to mail-order from is Kinnikinnick. They have the best tasting products. I used to mail-order their products until a local store here startd carrying them.

I'd love to try them. What is the store?

Thanks!

Racheleona Apprentice

I work at a health food store, and I read the ingredients on the food for life millet bread, and it has Rye flour as one of the ingredients...

terri Contributor

I've had millet in it's natural form, not in bread. I made stuffed peppers with it and tonight used it in place of barley when I made split pea soup. I've never tried the bread, but the millet itself used as I have used it, is great and my ultra sensitive self has had nothing but a quiet tummy. :D

mela14 Enthusiast

I haven't had millet in a while and don't remember if I was ok with it or not. So many things were going on at the same time. I was also using quinoa but remember that something started to make me sick so I stopped both. a few months I started using quinoa again but started to feel sick afterwards so that's I took that off the list.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,667
    • Most Online (within 30 mins)
      7,748

    bailey1023
    Newest Member
    bailey1023
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
    • Xravith
      Thank you for the advice. I’ve actually never checked for nutritional deficiencies, but for as long as I can remember, I’ve always taken vitamin and mineral supplements — otherwise my symptoms get worse. This week I stopped eating gluten to confirm whether my symptoms are really caused by it. Starting next week, I’ll reintroduce gluten — it’s sad to go back to how I was before — but at least I’ll be able to take the necessary tests properly. I think the diagnostic process will be long, but at least I’m happy that I finally decided to address this doubt I’ve had for years.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.