Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Philly Mtg At Abington Hospital


JustCan

Recommended Posts

JustCan Explorer

Anyone have any details on the meeting this month at Abington Hospital? I ran into the president of the support group at Bunn's in Southampton (they had a gluten-free tasting event last week) but I didn't catch the date or time. Also, is there a fee to join the group or can anyone attend the meetings? I did come across the website for this support group but it's seemed outdated and didn't provide much info. Thanks!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylarker Newbie

I'm in Philly, too, new to this, and I'm curious to know about a support group, too.

Thanks.

Judyin Philly Enthusiast

I'm interested too

I'll see what i can find out

they only meet a couple times a year but usually had alot of venders there...........if it's like the old meetings

judy

ok just found this on google. Since March 21 is a Friday i assume this is correct.

Mar. 21 - Abington, PA - 7:00 to 9:00 pm

Celiac Disease: Symptoms, Nutritional Deficiencies and How to Achieve Wellness on a Gluten-Free Diet

Greater Philadelphia Celiac Support Group

Abington Hospital

1200 Old York Road

Abington, PA

Open Original Shared Link

No entry fee.

Contact: Karen Dalrymple, 215-757-1233

----------my question..........do you have to be a member with paid dues to attend. Anyone know?

ok just sent a email to the contact on the web site

will post if i get a reply

judy

Judyin Philly Enthusiast

your right the old forum isn't updated

got this note back from a member so i'll post what i learned.

____________________________

Hi Judy

You need to contact Karen Dalrymple, Co President, 215-757-1233. At the present she does not have email.

Doors open at 5:45PM to enable you to see vendors and speak with other members. Meeting starts at 7:30PM. Karen can give you the details on membership.

I am no longer able to be active in the support group. My dear wife, who was President for 23 years went home to be with her Lord four years ago.

There is an old web site which should be taken down so I suspect you may have found that.

Best Ed

JustCan Explorer

Thanks Judy! I called Karen Dalrymple but her answering machine says to call someone named Donna. Tried that but she wasn't available. Then I called Abington Hospital's education center that lists the support group on their website but they didn't know anything either - told me to call Karen which I already did. So, I may just go over to Abington Hospital on the 21st and see if I can find it (I'm only about 5 minutes from the hospital anyway).

Judyin Philly Enthusiast

That's strange that Abblington didn't have a record of it.

Please post if you go.

From others, i've heard it's a really good event.

lots of free food.

good luck

judy

  • 2 weeks later...
JustCan Explorer

Finally found the info about the Philly Support Group meeting tonight:

Category Support Group

Topic Celiac Sprue (Gluten Intolerance) Support Group

Facility Abington Memorial Hospital

Location Lenfest Pavilion, Frobese Conference Center: Frobese Auditorium, rooms P & G and rooms 1 & 2

Start Date 03/21/2008

End Date 03/21/2008

Start Time No Start Time

End Time No End Time

Description This self-help group is for individuals who cannot digest the gluten of some grain foods. Information, a newsletter and support in following a gluten-free diet are available.

This group will meet at 5:45 p.m.

Fee Comment Free

Contact Information Donna Sawka, (215) 943-2028


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JustCan Explorer

Just wanted to post that I went to this support group meeting tonight. I had to pay $25 to join the group but it was well worth it. They had several food vendors there so we could try all their different items - lots of yummy cakes, breads, etc. There was also a really interesting author who did a presentation about celiac disease and vitamin deficiencies. The next meeting is the third Friday in October.

Judyin Philly Enthusiast
Just wanted to post that I went to this support group meeting tonight. I had to pay $25 to join the group but it was well worth it. They had several food vendors there so we could try all their different items - lots of yummy cakes, breads, etc. There was also a really interesting author who did a presentation about celiac disease and vitamin deficiencies. The next meeting is the third Friday in October.

Thanks so much for this email

I'm so glad you had a good time and benefited from attending.

Do you remember who the author was or a few of his bits of info?

About how many were there.

Thanks again.

Judy

JustCan Explorer

Hi Judy...here's the info on the author...

Cleo Libonati, RN, BSN, co-founder of Glutenfreeworks.com, and author of

Judyin Philly Enthusiast

thanks so much for the info

do you think you'll go to the Oct meeting?

Judy

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Lotte18 commented on Scott Adams's article in Diagnosis, Testing & Treatment
      9

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

    2. - knitty kitty replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

    3. - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

    4. - McKinleyWY posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

    5. - trents replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,241
    • Most Online (within 30 mins)
      7,748

    Lectinfreetxn
    Newest Member
    Lectinfreetxn
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.