Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tooth Decay And Very Noticeable Hair Loss


radgirl

Recommended Posts

Panopticism Rookie

Your best bet is just to not use anything unless you're 100% certain it's gluten free. For the hair, check your ingredients, MAKE SURE THERE IS NO WHEAT IN YOUR SHAMPOO/CONDITIONER. The shampoo and conditioners I was using listed Hydrolyzed wheat protein. I stopped using them, and my hair is soft again, but unfortunately other people who use the same shower as I do refuse to change to something else, and as a result, I get itchy feet every time I shower. It's pretty strange.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



itchygirl Newbie
Not to contradict, however for me just using baking soda to brush with works great. Plus it helps keep down the residual candida.

Yolo if you're not into flouride, the Caphosol I mentioned has no floride, only calcium and phosphate. Makes me feel like a mad chemist mixing it up B)

Caphosol is a preparation comprising two separately packaged aqueous solutions, a phosphate solution (Caphosol A) and a calcium solution (Caphosol B) which, when both ampule solutions are combined in equal volumes, form a solution supersaturated with respect to both calcium and phosphate ions.
radgirl Enthusiast
Your best bet is just to not use anything unless you're 100% certain it's gluten free. For the hair, check your ingredients, MAKE SURE THERE IS NO WHEAT IN YOUR SHAMPOO/CONDITIONER. The shampoo and conditioners I was using listed Hydrolyzed wheat protein. I stopped using them, and my hair is soft again, but unfortunately other people who use the same shower as I do refuse to change to something else, and as a result, I get itchy feet every time I shower. It's pretty strange.

Oh yes, my hair products are gluten free. I have been using Dove and my styling aids are gluten free as well. A couple of weeks ago, I ended up using a hair color with wheat germ oil in it. I about flipped because the color was already in my hair and it was too late. So, to avoid minimal ingestion, I had my mom wash my hair well, in the sink and then I showered. I think I was ok. I'm really bothered though by the amount of contradicting information. One person says this, someone says something else. one company says yes, another says no. I'm fed up with it. This is my life we are talking about - our lives. I need to be as safe as possible. I know that there is no way to be 100% completely safe, but for the love of Pete, if you know there is a possibility or a trace, something, anything, tell me so I can make the right decision.

Panopticism Rookie

I make my own food and hygiene products from natural ingredients. I trust myself! :lol: Been given the same bull**** from all the companies I've called. Customer service hotlines are useless. It's true that you have to be careful, with all the recent studies on Celiac disease and how it may lead to REALLY scary stuff if left untreated. People think I'm just being overcautious sometimes and refuse to accept the fact that it's not at all like lactose intolerance.

radgirl Enthusiast
I make my own food and hygiene products from natural ingredients. I trust myself! :lol: Been given the same bull**** from all the companies I've called. Customer service hotlines are useless. It's true that you have to be careful, with all the recent studies on Celiac disease and how it may lead to REALLY scary stuff if left untreated. People think I'm just being overcautious sometimes and refuse to accept the fact that it's not at all like lactose intolerance.

I'll take lactose intolerance over this crap any day of the week! I'm with you! For the most part, I do trust the companies when I call. But when I get contradicting information, my trust goes out the window. I know that no production line can ever be 100% tracked (unless it's a dedicated facility or line), but give me a break. You should know your QA and have a standards and procedures in line that should make this pretty darn safe. Don't give me this crap of, "oh well, we don't put any gluten in there, but we also don't know where the materials come from to make our product". Since celiac disease/GI and the like on are the rise, companies better start upping the standards to make things safe and start complying with what the customers needs. Or else we will go elsewhere to find what we need. And don't say it will cost more, because it won't. Ok, rant/vent = over.

MELINE Enthusiast

does anyone know about kerastage products?? (it is a trademark for shampoos...It's french I don't know if you are using it...)

radgirl Enthusiast
does anyone know about kerastage products?? (it is a trademark for shampoos...It's french I don't know if you are using it...)

I believe that product is produced by L'Oreal or Revlon. I don't know anything about it. Have you tried calling the manufacturer?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MELINE Enthusiast
I believe that product is produced by L'Oreal or Revlon. I don't know anything about it. Have you tried calling the manufacturer?

I've never called any manufacturer before and ask him if there is gluten in his product...I guess I'll have to do that....I'm always afraid they are going to laugh at me..silly me...I'll get over it and have that question. Thank you!

YoloGx Rookie
Yolo if you're not into flouride, the Caphosol I mentioned has no floride, only calcium and phosphate. Makes me feel like a mad chemist mixing it up B)

If there is some problem using baking soda please let me know. I am not aware of any problem. No chemicals, just easy...And my teeth are great. Especially since as I say I do take various mineral supplements I listed previously -- plus fibronylitic agents which reduce scarring and inflammation and help me metabolize those above minerals I am taking. Marshmallow root taken internally helps soothe and heal the intestines too--and thus mineral absorption is better and down wind the teeth and gums.

  • 3 weeks later...
Kristin81 Newbie

Does anyone know if there is a direct correlation between hair products that contain gluten and hair loss? I've been on a gluten free diet for a month, but just learned that my Aveda conditioner has gluten in it. Of course I stopped using it immediately, but I was under the impression that celiac has to do with ingested gluten. Forgive me if this is a naive observation, I'm pretty new at this. But if anyone has any info on gluten hair products causing hair loss, I'd be very interested.

radgirl Enthusiast
Does anyone know if there is a direct correlation between hair products that contain gluten and hair loss? I've been on a gluten free diet for a month, but just learned that my Aveda conditioner has gluten in it. Of course I stopped using it immediately, but I was under the impression that celiac has to do with ingested gluten. Forgive me if this is a naive observation, I'm pretty new at this. But if anyone has any info on gluten hair products causing hair loss, I'd be very interested.

Kristin, this is a great question and by no means naive. I've wondered the same thing. Hopefully someone can shed more light on this issue.

ravenwoodglass Mentor
Does anyone know if there is a direct correlation between hair products that contain gluten and hair loss? I've been on a gluten free diet for a month, but just learned that my Aveda conditioner has gluten in it. Of course I stopped using it immediately, but I was under the impression that celiac has to do with ingested gluten. Forgive me if this is a naive observation, I'm pretty new at this. But if anyone has any info on gluten hair products causing hair loss, I'd be very interested.

Yes there is. Gluten is absorbed through mucous membranes, including those in the nose and mouth. Even a tiny amount that accidentally gets into your system will keep the autoimmune process going. For those of us who lose hair it is often this autoimmune process that is more at fault for the loss than poor nutritional uptake but both can be a factor.

Kristin81 Newbie
Yes there is. Gluten is absorbed through mucous membranes, including those in the nose and mouth. Even a tiny amount that accidentally gets into your system will keep the autoimmune process going. For those of us who lose hair it is often this autoimmune process that is more at fault for the loss than poor nutritional uptake but both can be a factor.

Raven - Thanks for the reply :) This gives me more hope that my hair will stop falling out and actually begin to re-grow soon!

jasmari Newbie

Hi there.

I started having hair loss problems last summer and it's been falling out steadily since then. My only saving grace is that I see new hair coming in but it's still getting so thin. I too had hair in the tub, on the pillow, etc. I saw a determatologist who ran all kinds of tests. All we could pin point was the low iron. Even the celiac bloodwork came back normal. However, I recently had a biopsy and that showed positive for celiac (I guess this happens). In any case, I'm confident that the celiac is at the root (no pun intended) of the problem. From what I've read on this subject, once the body starts responding to the gluten free diet, this usually takes care of the hair loss problem.

I know how you feel. It's a huge emotional issue especially for women and I"m so tired of people telling me to stop worrying. Hang in there!

Rita

jasmari Newbie

Hi there.

I started having hair loss problems last summer and it's been falling out steadily since then. My only saving grace is that I see new hair coming in but it's still getting so thin. I too had hair in the tub, on the pillow, etc. I saw a determatologist who ran all kinds of tests. All we could pin point was the low iron. Even the celiac bloodwork came back normal. However, I recently had a biopsy and that showed positive for celiac (I guess this happens). In any case, I'm confident that the celiac is at the root (no pun intended) of the problem. From what I've read on this subject, once the body starts responding to the gluten free diet, this usually takes care of the hair loss problem.

I know how you feel. It's a huge emotional issue especially for women and I"m so tired of people telling me to stop worrying. Hang in there!

Rita

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

    3. - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    4. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    5. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,471
    • Most Online (within 30 mins)
      7,748

    Lynda Gibbons
    Newest Member
    Lynda Gibbons
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.