Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tooth Decay And Very Noticeable Hair Loss


radgirl

Recommended Posts

Panopticism Rookie

Your best bet is just to not use anything unless you're 100% certain it's gluten free. For the hair, check your ingredients, MAKE SURE THERE IS NO WHEAT IN YOUR SHAMPOO/CONDITIONER. The shampoo and conditioners I was using listed Hydrolyzed wheat protein. I stopped using them, and my hair is soft again, but unfortunately other people who use the same shower as I do refuse to change to something else, and as a result, I get itchy feet every time I shower. It's pretty strange.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



itchygirl Newbie
Not to contradict, however for me just using baking soda to brush with works great. Plus it helps keep down the residual candida.

Yolo if you're not into flouride, the Caphosol I mentioned has no floride, only calcium and phosphate. Makes me feel like a mad chemist mixing it up B)

Caphosol is a preparation comprising two separately packaged aqueous solutions, a phosphate solution (Caphosol A) and a calcium solution (Caphosol B) which, when both ampule solutions are combined in equal volumes, form a solution supersaturated with respect to both calcium and phosphate ions.
radgirl Enthusiast
Your best bet is just to not use anything unless you're 100% certain it's gluten free. For the hair, check your ingredients, MAKE SURE THERE IS NO WHEAT IN YOUR SHAMPOO/CONDITIONER. The shampoo and conditioners I was using listed Hydrolyzed wheat protein. I stopped using them, and my hair is soft again, but unfortunately other people who use the same shower as I do refuse to change to something else, and as a result, I get itchy feet every time I shower. It's pretty strange.

Oh yes, my hair products are gluten free. I have been using Dove and my styling aids are gluten free as well. A couple of weeks ago, I ended up using a hair color with wheat germ oil in it. I about flipped because the color was already in my hair and it was too late. So, to avoid minimal ingestion, I had my mom wash my hair well, in the sink and then I showered. I think I was ok. I'm really bothered though by the amount of contradicting information. One person says this, someone says something else. one company says yes, another says no. I'm fed up with it. This is my life we are talking about - our lives. I need to be as safe as possible. I know that there is no way to be 100% completely safe, but for the love of Pete, if you know there is a possibility or a trace, something, anything, tell me so I can make the right decision.

Panopticism Rookie

I make my own food and hygiene products from natural ingredients. I trust myself! :lol: Been given the same bull**** from all the companies I've called. Customer service hotlines are useless. It's true that you have to be careful, with all the recent studies on Celiac disease and how it may lead to REALLY scary stuff if left untreated. People think I'm just being overcautious sometimes and refuse to accept the fact that it's not at all like lactose intolerance.

radgirl Enthusiast
I make my own food and hygiene products from natural ingredients. I trust myself! :lol: Been given the same bull**** from all the companies I've called. Customer service hotlines are useless. It's true that you have to be careful, with all the recent studies on Celiac disease and how it may lead to REALLY scary stuff if left untreated. People think I'm just being overcautious sometimes and refuse to accept the fact that it's not at all like lactose intolerance.

I'll take lactose intolerance over this crap any day of the week! I'm with you! For the most part, I do trust the companies when I call. But when I get contradicting information, my trust goes out the window. I know that no production line can ever be 100% tracked (unless it's a dedicated facility or line), but give me a break. You should know your QA and have a standards and procedures in line that should make this pretty darn safe. Don't give me this crap of, "oh well, we don't put any gluten in there, but we also don't know where the materials come from to make our product". Since celiac disease/GI and the like on are the rise, companies better start upping the standards to make things safe and start complying with what the customers needs. Or else we will go elsewhere to find what we need. And don't say it will cost more, because it won't. Ok, rant/vent = over.

MELINE Enthusiast

does anyone know about kerastage products?? (it is a trademark for shampoos...It's french I don't know if you are using it...)

radgirl Enthusiast
does anyone know about kerastage products?? (it is a trademark for shampoos...It's french I don't know if you are using it...)

I believe that product is produced by L'Oreal or Revlon. I don't know anything about it. Have you tried calling the manufacturer?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MELINE Enthusiast
I believe that product is produced by L'Oreal or Revlon. I don't know anything about it. Have you tried calling the manufacturer?

I've never called any manufacturer before and ask him if there is gluten in his product...I guess I'll have to do that....I'm always afraid they are going to laugh at me..silly me...I'll get over it and have that question. Thank you!

YoloGx Rookie
Yolo if you're not into flouride, the Caphosol I mentioned has no floride, only calcium and phosphate. Makes me feel like a mad chemist mixing it up B)

If there is some problem using baking soda please let me know. I am not aware of any problem. No chemicals, just easy...And my teeth are great. Especially since as I say I do take various mineral supplements I listed previously -- plus fibronylitic agents which reduce scarring and inflammation and help me metabolize those above minerals I am taking. Marshmallow root taken internally helps soothe and heal the intestines too--and thus mineral absorption is better and down wind the teeth and gums.

  • 3 weeks later...
Kristin81 Newbie

Does anyone know if there is a direct correlation between hair products that contain gluten and hair loss? I've been on a gluten free diet for a month, but just learned that my Aveda conditioner has gluten in it. Of course I stopped using it immediately, but I was under the impression that celiac has to do with ingested gluten. Forgive me if this is a naive observation, I'm pretty new at this. But if anyone has any info on gluten hair products causing hair loss, I'd be very interested.

radgirl Enthusiast
Does anyone know if there is a direct correlation between hair products that contain gluten and hair loss? I've been on a gluten free diet for a month, but just learned that my Aveda conditioner has gluten in it. Of course I stopped using it immediately, but I was under the impression that celiac has to do with ingested gluten. Forgive me if this is a naive observation, I'm pretty new at this. But if anyone has any info on gluten hair products causing hair loss, I'd be very interested.

Kristin, this is a great question and by no means naive. I've wondered the same thing. Hopefully someone can shed more light on this issue.

ravenwoodglass Mentor
Does anyone know if there is a direct correlation between hair products that contain gluten and hair loss? I've been on a gluten free diet for a month, but just learned that my Aveda conditioner has gluten in it. Of course I stopped using it immediately, but I was under the impression that celiac has to do with ingested gluten. Forgive me if this is a naive observation, I'm pretty new at this. But if anyone has any info on gluten hair products causing hair loss, I'd be very interested.

Yes there is. Gluten is absorbed through mucous membranes, including those in the nose and mouth. Even a tiny amount that accidentally gets into your system will keep the autoimmune process going. For those of us who lose hair it is often this autoimmune process that is more at fault for the loss than poor nutritional uptake but both can be a factor.

Kristin81 Newbie
Yes there is. Gluten is absorbed through mucous membranes, including those in the nose and mouth. Even a tiny amount that accidentally gets into your system will keep the autoimmune process going. For those of us who lose hair it is often this autoimmune process that is more at fault for the loss than poor nutritional uptake but both can be a factor.

Raven - Thanks for the reply :) This gives me more hope that my hair will stop falling out and actually begin to re-grow soon!

jasmari Newbie

Hi there.

I started having hair loss problems last summer and it's been falling out steadily since then. My only saving grace is that I see new hair coming in but it's still getting so thin. I too had hair in the tub, on the pillow, etc. I saw a determatologist who ran all kinds of tests. All we could pin point was the low iron. Even the celiac bloodwork came back normal. However, I recently had a biopsy and that showed positive for celiac (I guess this happens). In any case, I'm confident that the celiac is at the root (no pun intended) of the problem. From what I've read on this subject, once the body starts responding to the gluten free diet, this usually takes care of the hair loss problem.

I know how you feel. It's a huge emotional issue especially for women and I"m so tired of people telling me to stop worrying. Hang in there!

Rita

jasmari Newbie

Hi there.

I started having hair loss problems last summer and it's been falling out steadily since then. My only saving grace is that I see new hair coming in but it's still getting so thin. I too had hair in the tub, on the pillow, etc. I saw a determatologist who ran all kinds of tests. All we could pin point was the low iron. Even the celiac bloodwork came back normal. However, I recently had a biopsy and that showed positive for celiac (I guess this happens). In any case, I'm confident that the celiac is at the root (no pun intended) of the problem. From what I've read on this subject, once the body starts responding to the gluten free diet, this usually takes care of the hair loss problem.

I know how you feel. It's a huge emotional issue especially for women and I"m so tired of people telling me to stop worrying. Hang in there!

Rita

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,684
    • Most Online (within 30 mins)
      7,748

    Betty Siebert
    Newest Member
    Betty Siebert
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.