Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ibs - Or Are Doctors Missing Other Problems?


cmbajb

Recommended Posts

cmbajb Rookie

i'm wondering if anyone else has a gut (haha) feeling that doctors often diagnose someone with IBS in order to take the easy way out. in other words, rather than really working with the patient to see what is really wrong (i.e. celiac, food allergies, etc.), they use IBS as a catchall diagnosis. i was diagnosed with IBS many many years ago, and now gluten-free and working on food allergy diagnoses, my IBS symptoms are gone.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lizard00 Enthusiast

I definitely agree with you. I think that something has to initially cause the irritation, and like you said, most don't want to have to figure it out. Just throw pills at you and send you on your way. My GI told me that I probably messed up my intestines doing the Atkins diet and prescribed me a pill that eased cramping, but constipated you, and then prescribed me a laxative. Seems as though if I took one, I had to take the other. So, I took neither and continued with my gluten-free diet and the problem was solved. WOW! His reasoning was that I had a touch of IBS. Couldn't be Celiac... you have to have the genes for that.

BTW... I haven't had a genetic test.

Nancym Enthusiast

Yeah, I think you'll find most of us are skeptics of the IBS label. Dr. Lewey does a lot of work on IBS patients and finds they're usually reacting to foods. His web site is at Open Original Shared Link

mushroom Proficient
Yeah, I think you'll find most of us are skeptics of the IBS label. Dr. Lewey does a lot of work on IBS patients and finds they're usually reacting to foods. His web site is at Open Original Shared Link

Not only are most of us skeptics, most of us have worn the label at some point in our sagas. You will probably find that most of us have also been diagnosed with fibromyalgia. Check for me on both. I did initially believe in fibromyalgia at one point (not any more) but never IBS. It is a very lazy diagnosis. It's almost as bad as saying, "You have a rash." Duh! :rolleyes:

nutralady2001 Newbie

Absolutely!! A diagnosis of "IBS" kept me sick for 47 years (yes you read right) until last September when I had to have an endoscopy/colonoscopy after a bowel screening showed blood in both upper and lower GI tracts ........

In all those years I was NEVER offered any testing of any kind just told I had "IBS", problems from the age of 12, "eczema" at age 16 which I am sure was dermatitis herpetiformis now I know more and have seen photos of DH

I doubt a condition even exists actually it's the doctor's lazy way out

Glutina Rookie

Hi!

Yup---IBS was thrown my way on a few occasions, and those were the doctors who barely asked any questions (and I now know not the right ones) and gave me anti-spasmatic drugs. Oh gee, thanks. No looking into the causes, or th link between my rash flare-ups, horrrrible stomach/abdominal pains that would make me feel like I was dying, washroom episodes...you know how the story goes. Thank goodness I was finally referred to a GI specialist when I was in the ER in december. The specialist took the time to really look at my symptoms and told me about celiac disease and gluten/wheat issues. I have been gluten free ever since with a HUGE improvement in my symptoms and overall quality of life. I know that IBS does really exist for some people, but it should be the LAST diagnosis a doc makes, in my opinion. They need to really rule out other possible conditions first.

We can send people to the moon, but we can't properly diagnose people with gluten issues...yeesh!

:)

Glutina

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748

    bigwave
    Newest Member
    bigwave
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.