Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Grrr

nikky

By nikky
in Doctors

Recommended Posts

nikky Contributor
nikky
Posted

ok thats it ive had enough, ive read to many accounts of shody patient care and a sheer inability to look at the facts. <_<

I was lucky enough to get a good peadi GI. who knows his stuff and didnt just go 'oh we'll monitor you'

But it infuriates me to see that others of you have been less fortunate. i mean how hard can it be to listen to what we have to say. If my doctor can diagnose me with no symptoms except anemia then others should be able to get it right when presented with a patient with all the symptoms.

And then when they do run the bloodtests they run the wrong ones or not enough of them, and according to them being gluten free doesnt effect the results.. i want to know how they managed to qualify without the basic knowladge that removing the cause of the reaction stops the damage. :blink:

grr i could go on all night :angry:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


home-based-mom Contributor
home-based-mom
Posted
ok thats it ive had enough, ive read to many accounts of shody patient care and a sheer inability to look at the facts. <_<

I was lucky enough to get a good peadi GI. who knows his stuff and didnt just go 'oh we'll monitor you'

But it infuriates me to see that others of you have been less fortunate. i mean how hard can it be to listen to what we have to say. If my doctor can diagnose me with no symptoms except anemia then others should be able to get it right when presented with a patient with all the symptoms.

And then when they do run the bloodtests they run the wrong ones or not enough of them, and according to them being gluten free doesnt effect the results.. i want to know how they managed to qualify without the basic knowladge that removing the cause of the reaction stops the damage. :blink:

grr i could go on all night :angry:

I second your rant!

It seems like far too many doctors quit learning when they left med school, are totally burned out, and just want to get through the day by getting the patient out of the office in the allotted 15-20 minute time frame so the day is that much closer to being over.

Are they going into medicine for all the wrong reasons or what? It just seems like patient care and wellness isn't a goal, especially when it involves a bit of detective work.

:(:angry::ph34r:

nikky Contributor
nikky
Posted
  • Author

oh and another thing they seem to think that just because your under 16 they can talk to you like your three (i find GPs are the worst for this) ggrr just because im young doesnt mean im stupid.. or that they can talk to the wall

MELINE Enthusiast
MELINE
Posted
grr i could go on all night :angry:

ok nikky we can grr together all night!!! I am one of the unlucky....Lucky you with a good doc!

itchygirl Newbie
itchygirl
Posted

Adding my "amen".

And after the patient finally manages to get dx'd, after years or decades of agony....dufus doctors, don't just hand them a gluten free diet sheet, kick them out the door and then fail to follow up when the patient continues to suffer long term complications as a result of their delayed diagnosis. Understand that years of celiac disease can take a toll on the human body, and some things (autonomic and peripheral nerve damage, pancreas damage etc. etc) may not reverse and need further treatment.

curlyfries Contributor
curlyfries
Posted

When I started having GI problems, my first instinct was not to go to my doctor. I tried to figure it out on my own. So then at one of my annual check-ups I told him I thought I had a problem w/wheat. He said, "It's probably gluten". He didn't give me any advice. Didn't order any tests. I didn't know enough to think there were any questions to ask. Seemed easy enough to me. This is just another food allergy. All I have to do is look for gluten on the labels :P. When I FINALLY figured it out and had gradually eliminated gluten from my diet, I wasn't :o about to go back for tests. I was not going back on gluten for that. When my DD started to have her own issues she went to him and said her mom thinks she has celiac and she[my DD] wanted to be tested. He got bent out of shape saying her mother can't dx herself and he wouldn't test her unless her mom did first. :o:angry::wacko:

curlyfries Contributor
curlyfries
Posted

Let me clarify something I just said. When the dr said it might be gluten, I started looking for the WORD "gluten" on labels. :lol: I thought that's all I had to do!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,606
    • Most Online (within 30 mins)
      7,748
    TGreen
    Newest Member
    TGreen
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Potential celiac need advice

      By Scott Adams · Posted

      It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first step, and if you have ANY positive results there for celiac disease the next step would be to take biopsies of your villi via an endoscopy given by a gastroenterologist.  More info on the blood tests and the gluten challenge beforehand is below: The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider.  
    • Wheatwacked
      Potential celiac need advice

      By Wheatwacked · Posted

      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Potential celiac need advice

      By trents · Posted

      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      Potential celiac need advice

      By Ben98 · Posted

      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      Unusual bright yellow but odourless discharge

      By Wheatwacked · Posted

      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.