Grrr

[nikky]

ok thats it ive had enough, ive read to many accounts of shody patient care and a sheer inability to look at the facts.

I was lucky enough to get a good peadi GI. who knows his stuff and didnt just go 'oh we'll monitor you'

But it infuriates me to see that others of you have been less fortunate. i mean how hard can it be to listen to what we have to say. If my doctor can diagnose me with no symptoms except anemia then others should be able to get it right when presented with a patient with all the symptoms.

And then when they do run the bloodtests they run the wrong ones or not enough of them, and according to them being gluten free doesnt effect the results.. i want to know how they managed to qualify without the basic knowladge that removing the cause of the reaction stops the damage.

grr i could go on all night

[home-based-mom]

ok thats it ive had enough, ive read to many accounts of shody patient care and a sheer inability to look at the facts.

I was lucky enough to get a good peadi GI. who knows his stuff and didnt just go 'oh we'll monitor you'

But it infuriates me to see that others of you have been less fortunate. i mean how hard can it be to listen to what we have to say. If my doctor can diagnose me with no symptoms except anemia then others should be able to get it right when presented with a patient with all the symptoms.

And then when they do run the bloodtests they run the wrong ones or not enough of them, and according to them being gluten free doesnt effect the results.. i want to know how they managed to qualify without the basic knowladge that removing the cause of the reaction stops the damage.

grr i could go on all night

I second your rant!

It seems like far too many doctors quit learning when they left med school, are totally burned out, and just want to get through the day by getting the patient out of the office in the allotted 15-20 minute time frame so the day is that much closer to being over.

Are they going into medicine for all the wrong reasons or what? It just seems like patient care and wellness isn't a goal, especially when it involves a bit of detective work.

[nikky]

oh and another thing they seem to think that just because your under 16 they can talk to you like your three (i find GPs are the worst for this) ggrr just because im young doesnt mean im stupid.. or that they can talk to the wall

[MELINE]

grr i could go on all night

ok nikky we can grr together all night!!! I am one of the unlucky....Lucky you with a good doc!

[itchygirl]

Adding my "amen".

And after the patient finally manages to get dx'd, after years or decades of agony....dufus doctors, don't just hand them a gluten free diet sheet, kick them out the door and then fail to follow up when the patient continues to suffer long term complications as a result of their delayed diagnosis. Understand that years of celiac disease can take a toll on the human body, and some things (autonomic and peripheral nerve damage, pancreas damage etc. etc) may not reverse and need further treatment.

[curlyfries]

When I started having GI problems, my first instinct was not to go to my doctor. I tried to figure it out on my own. So then at one of my annual check-ups I told him I thought I had a problem w/wheat. He said, "It's probably gluten". He didn't give me any advice. Didn't order any tests. I didn't know enough to think there were any questions to ask. Seemed easy enough to me. This is just another food allergy. All I have to do is look for gluten on the labels . When I FINALLY figured it out and had gradually eliminated gluten from my diet, I wasn't about to go back for tests. I was not going back on gluten for that. When my DD started to have her own issues she went to him and said her mom thinks she has celiac and she[my DD] wanted to be tested. He got bent out of shape saying her mother can't dx herself and he wouldn't test her unless her mom did first.

[curlyfries]

Let me clarify something I just said. When the dr said it might be gluten, I started looking for the WORD "gluten" on labels. I thought that's all I had to do!