Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Not Feelin Well


gretchen

Recommended Posts

gretchen Rookie

Hi, I am new to this forum. My husband was diagnosed with Celiac Disease a few months ago. After we consulted with a nutritionist and learned about the gluten free diet he was doing well. His symptoms disapated and he began gaining weight back. Recently he has began showing symptoms again (the last couple of weeks). He neglected to tell me about these symptoms until they got so bad he started vommiting. He has definately been contamitated with a gluten product. I am not sure what. I only cook gluten free foods, however he often eats out for his lunches instead of bringing something from home. I have read that one should take Psyllium once they realize they have eaten a gluten food. I am seeking any suggestions to ease the symptoms. Of course, he has since taken extra care to not eating anything he is unsure of and that no cross contamination occurs. I wonder how long symptoms should last? I also am wondering if perhaps he is still eating something containing gluten that we have not figured out. We are still learning a lot and I am hoping by finding this forum we will learn from others who are faced with the same chalenges. Thanks in advance for any advice you can share with us.

Gretchen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cruelshoes Enthusiast

Where is he eating out and what is he ordering? If it were me, that would be the first thing I would stop doing. Even under the best of circumstances, eating out is a minefield.

Have you introduced anything new - food or non-food? Think about vitamins and suplements, hand lotion, shampoo, etc.

Are you still cooking with gluten in the house? If so, he could be getting cros contamination. He should have his own toaster, cutting board, collander, etc. Are you baking with wheat flour? That stuff gets into the air and in to everything.

I hope you get to the bottom of things.

fedora Enthusiast

Ditto what Cruel shoes said.

No old cast irons, non stick pans, wood spoons, cutting boards, plastic. These should all be new( reasoned my cast iron though). Eating out is dangerous. I would encourage him to take his lunch. Some of my gluten free friends react to all vinegar, even apple cider. Not me though.

Has he introduced a new food or one he only ate rarely before. I started eating almonds a couple of weeks ago. I started getting sick and being in pain. I stopped eating them and am doing better. I thought it was them because it what the only thing different in my diet.

Also check personal care products, your lipstick and products, stamps and envelope glue have gluten in them.

gretchen Rookie

Thanks for the response. I too hope we can get to the bottom of things. I have encouraged him not to eat out at all. I hope the symptoms subside soon.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Kayla S's topic in Dermatitis Herpetiformis
      3

      Need advice for some relief!

    2. - trents replied to MoniqueCham's topic in Related Issues & Disorders
      1

      Celiac Disease, Lymphocytic colitis and Bowel rupture

    3. - Peggy M replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      30

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - MoniqueCham posted a topic in Related Issues & Disorders
      1

      Celiac Disease, Lymphocytic colitis and Bowel rupture

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,523
    • Most Online (within 30 mins)
      7,748

    CWiz76
    Newest Member
    CWiz76
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Ive been dealing with skin issues and been told it was staph because I was employed as a bus driver during that horrid time that im still actively healing from currently years later. Biopsies they don't want to say its inconclusive they say.Their creams don't work.I do notice Yarrow Pom from Doterra works but of course thats expensive.Prayers
    • trents
      Welcome to the celiac.com community @MoniqueCham! Celiac disease damages the villous lining of the small bowel but, as far as I know, doesn't affect the underlying smooth muscle tissue of the bowel.
    • Peggy M
      I am monitored for this value of Vit D.  I kept going down so the Vit D had to be increased.
    • MoniqueCham
      I was diagnosed with celiac disease 40 years ago and lymphocytic colitis 20 years ago along with refractory celiac disease affecting mid jejunum to mid ileum (diagnosed using a capsule endoscopy). My antibodies to tissue transglutaminase were normal on a strict gluten free diet. Both the lymphocytic colitis and the refractory celiac disease responded well to entocort. I have a number of autoimmune conditions including systemic granuloma annulaire (a skin condition) which was treated with methotrexate. I was on a low dose of methotrexate (15 mg once a week with folic acid every day when not taking methotrexate). In 5 months my sigmoid colon ruptured. Pathology reports show that I had significant necrosis of my sigmoid bowel due to no known cause and a large hole in the bowel. My surgeons felt that the methotrexate may have caused the damage and rupture to my bowel (1 in a million chance). My question is has anyone experienced similar issues with methotrexate given that the integrity of our intestines may be compromised in celiac disease?
    • Jmartes71
      Hello, I'm I crazy, nieve, or atomistic? I reached out to my former pcp of 25 years on the medical app today.Reading on the National Library of Medicine 75.6  physicians don't know celiac disease.To be fair he is primary and with the lack of knowledge, I did reach out because he was my Dr for 25 years.I do prefer his app than the one I currently have that was ignite of the disability celiac circus name chaser thanks to the one that  I currently have Since May 31, 2025 to present.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.