Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Not Feelin Well


gretchen

Recommended Posts

gretchen Rookie

Hi, I am new to this forum. My husband was diagnosed with Celiac Disease a few months ago. After we consulted with a nutritionist and learned about the gluten free diet he was doing well. His symptoms disapated and he began gaining weight back. Recently he has began showing symptoms again (the last couple of weeks). He neglected to tell me about these symptoms until they got so bad he started vommiting. He has definately been contamitated with a gluten product. I am not sure what. I only cook gluten free foods, however he often eats out for his lunches instead of bringing something from home. I have read that one should take Psyllium once they realize they have eaten a gluten food. I am seeking any suggestions to ease the symptoms. Of course, he has since taken extra care to not eating anything he is unsure of and that no cross contamination occurs. I wonder how long symptoms should last? I also am wondering if perhaps he is still eating something containing gluten that we have not figured out. We are still learning a lot and I am hoping by finding this forum we will learn from others who are faced with the same chalenges. Thanks in advance for any advice you can share with us.

Gretchen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cruelshoes Enthusiast

Where is he eating out and what is he ordering? If it were me, that would be the first thing I would stop doing. Even under the best of circumstances, eating out is a minefield.

Have you introduced anything new - food or non-food? Think about vitamins and suplements, hand lotion, shampoo, etc.

Are you still cooking with gluten in the house? If so, he could be getting cros contamination. He should have his own toaster, cutting board, collander, etc. Are you baking with wheat flour? That stuff gets into the air and in to everything.

I hope you get to the bottom of things.

fedora Enthusiast

Ditto what Cruel shoes said.

No old cast irons, non stick pans, wood spoons, cutting boards, plastic. These should all be new( reasoned my cast iron though). Eating out is dangerous. I would encourage him to take his lunch. Some of my gluten free friends react to all vinegar, even apple cider. Not me though.

Has he introduced a new food or one he only ate rarely before. I started eating almonds a couple of weeks ago. I started getting sick and being in pain. I stopped eating them and am doing better. I thought it was them because it what the only thing different in my diet.

Also check personal care products, your lipstick and products, stamps and envelope glue have gluten in them.

gretchen Rookie

Thanks for the response. I too hope we can get to the bottom of things. I have encouraged him not to eat out at all. I hope the symptoms subside soon.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      ttg iga high (646 mg/dl) other results are normal

    2. - kpf replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      ttg iga high (646 mg/dl) other results are normal

    3. - xxnonamexx replied to xxnonamexx's topic in Related Issues & Disorders
      5

      Self Diagnosed avoiding gluten 7 months later (Not tested due to eating gluten to test) update and question on soy

    4. - trents replied to xxnonamexx's topic in Related Issues & Disorders
      5

      Self Diagnosed avoiding gluten 7 months later (Not tested due to eating gluten to test) update and question on soy

    5. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      ttg iga high (646 mg/dl) other results are normal


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,330
    • Most Online (within 30 mins)
      7,748

    Strider55
    Newest Member
    Strider55
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      What are your symptoms? What has brought you to the point where you sought celiac disease testing?
    • kpf
      Thanks so much. This is what I thought but really wanted a second opinion. I appreciate this. 
    • xxnonamexx
      I have heard about numerous food sensitivity tests blood and the prick and how nothing is very reliable I think trial and error probably best bet.
    • trents
      As ShariW explained, soy itself doesn't contain gluten but most soy sauces sold in stores and used in restaurants contain wheat as an ingredient so they are not gluten free. As I understand it, there are two traditional ways of making soy sauce. One way contains wheat and one doesn't. The most popular one found out there in the wild does contain wheat, however. Kikkoman offers a line of gluten-free soy sauce and Teriyaki products that are often sold by grocery store chains like Safeway. There are food allergy/food sensitivity tests available and your physician can order them or give you a referral. They fall into two categories, the skin prick kind and the blood test kind. One you might look into is called the ALCAT test which might be the most helpful for foods. However, the reliability of these things is questionable. The results can be helpful as a place to start but the results often don't match up with real life experience. There are reasons for this and you might do well to research food sensitivity testing reliability on the Internet. 
    • trents
      The IGA TTG (aka, TTG-IGA) is the centerpiece of celiac disease blood antibody testing. A high value in this test indicates probable celiac disease, though there are other reasons (some other diseases, some medications and in some cases, even some non-gluten foods) that can cause it to be elevated. And it is not unusual at all for other celiac antibody tests to be normal when the TTG-IGA is high. Normally, when the TTG-IGA is elevated, the physician will order an upper GI with biopsy of the small bowel lining to check for the damage characteristic of celiac disease. The biopsy is then sent out for microscopic analysis. This is to confirm the results of the blood testing and is considered the gold standard diagnostic test. You should not begin a gluten free diet until the endoscopy/biopsy is complete. This is very important because otherwise the results will be invalidated.  This article on celiac disease blood antibody tests might be helpful to you while you are waiting for feedback from the physician:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.