Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Help Me, Fiance Is Celiac Ad Has Been Taking Beano For Gas Without Knowing It Had Gluten :(

silent gent

Recommended Posts

silent gent Newbie
silent gent
Posted

Thank you for having me here, I feel so distraught, and sad that my fiance is going through all this. She's been feeling so much better, and her Vilii were starting to grow back well by the end of 2007. She always has taken the beano for gas, she never knew it had glutten. :( and has worked so hard to be careful not to injest any gluten and having pains recently, and is now in the hospital because she couldn't even drink her water the other day. The doc said that the beano is the cause of this, and I'm so scared for her that this has damaged her intestines and vilii. I just want her to be okay, I don't want her suffering any more with all shes been through. Is there hope that the damage wasn't too extensive? I love her with all my heart and soul, and I would give my life to save my Baby... God bless everyone, and thank you for helping me. Silent Gent

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


flourgirl Apprentice
flourgirl
Posted

Silent Gent....so sorry to hear about your love. This is why many of us are so careful about EVERYTHING that goes into our mouths, and sometimes we even go into panic mode. Many of us know about how sick a Celiac can be! Rest assured that whatever damage has occured to her digestive system can be reversed. Now you are both well aware of checking everything and being ever so careful. It may take time, but she will be fine. Hang in there. You're in my prayers, and know that we're pulling for you. Glad you came here.....you'll find many answers and commiseration from a great group of people. Good luck!

flourgirl Apprentice
flourgirl
Posted

I wanted to tell you......for me it was a calcuim supplement that was doing me in. I thought I was doing so well avoiding gluten. We stopped dining out because I'd get so panicky about food I didn't prepare myself. I was so sick I wasn't taking any chances. When I couldn't figure out why I was still having so very many sick episodes I started re-checking everything. Who would have thought it was something like that? Obviously I didn't. Please make sure you double check all of your stuff.

silent gent Newbie
silent gent
Posted
  • Author
I wanted to tell you......for me it was a calcuim supplement that was doing me in. I thought I was doing so well avoiding gluten. We stopped dining out because I'd get so panicky about food I didn't prepare myself. I was so sick I wasn't taking any chances. When I couldn't figure out why I was still having so very many sick episodes I started re-checking everything. Who would have thought it was something like that? Obviously I didn't. Please make sure you double check all of your stuff.

Hello Flowergirl, Thank you from the bottom of my heart for your thoughtful reply and for your prayers for my Baby. Thats exactly how my fiance felt, she also was so proud to be off the gluten, and even did a 4 week nutrition program to learn how to eat better which she completed 3 weeks ago almost. She's been recieving electrolytes for two days now, and today the doctors are going to do an upper and lower GI to check her intestine. I'll post here as soon as I find out the results of this, I'm praying with my whole heart that all the vilii were not wiped out. She was feeling so good recently too.

Can I ask you Flowergirl, what happened once you found out that the calcium had the gluten in it? How long were you taking it without knowing, and were you able to recuperate quickly?

silent gent Newbie
silent gent
Posted
  • Author

Flowergirl, I'm going to be SOOO careful with everything that comes into the house. We're just going to start living together in this next week finally, and I'm going to be a second pair of eyes watching EVERY last thing, incrediant, pill to make sure this never happens again. God bless you Flowergirl, may the Lord watch over you always. Silent Gent

ravenwoodglass Mentor
ravenwoodglass
Posted

She should be okay and it is wonderful that she has someone as caring as you to look out for her. You have come to a great place to learn how to make that home gluten free from day one and the many, many things we have to look out for. I hope she is feeling better soon, also even if her villi are totally gone when they do the endo there is every reason to expect her to recover. She will feel miserable for a time but soon she should be home with you and well on her way to moving on. Ask any query you need to and be sure to read as much as you can.

silent gent Newbie
silent gent
Posted
  • Author

This has brought alot of peace to my mind Ravenwoodglass. I am praying constantly for her, and trying to educate myself for her and for us to be the best fiance, best friend and one day husband I can be to her. I'm going to be very active with asking questions and reading and participating on this forum. I thank God I found the glutenfreeforum and for the gracious help I have been recieving here from such a wonderful group of people here. I have so much hope now, even if the villi are all gone. Our home will never have glutten in it ever again, and I'll be looking over every last ingredient in everything to keep my BabyDoll safe.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


flourgirl Apprentice
flourgirl
Posted

Mornin' Silent Gent. I was diagnosed last Nov., have been going up and down, up and down with healing and getting better, but in the long run gaining much ground. I switched my supplements just a few weeks ago, and find I'm finally starting to have greater energy than I have in a very long time. For some people, the feeling better starts fairly quickly. For some it takes months. It depends largely on how much damage was done, your age, how strictly you adhere to the diet, if you develop other food intolerances. Please have patience, both of you, and diligence. For me, I have finally reached a point where everything I eat doesn't make me ill. What a relief! I know that the rest of the healing will follow soon.

Read, read, read, ask questions, keep trying. You will make mistakes....we all have. The best news is that in time, gluten free living becomes habit, your lovey will feel terrific and you'll have a great life together. Keep us posted

MDRB Explorer
MDRB
Posted

Oh dear, I know how she feels, I am so so careful about my diet and I still managed to get 'glutened' a couple of days ago.

How long it will take for her to heal depends on how much damage was done and what her immunity is like.

I notice that you mentioned in one of your replies that you will me moving in together soon.

You will need to be really careful about sharing cooking surfaces, toasters, etc.

Some others on this forum have a really hard time getting support at home, it sounds like she has someone who is willing to support her which is a really important for recovery.

Good luck, I hope she feels better soon.

  • 3 weeks later...
LuvMoosic4life Collaborator
LuvMoosic4life
Posted

I was taking beano for a while, it seemed to work at first, but after a few times it made my gas problem worse and made me naucious...

Redsd Newbie
Redsd
Posted
I was taking beano for a while, it seemed to work at first, but after a few times it made my gas problem worse and made me naucious...

What ingredient(s) in Beano has gluten? I read the label on my bottle, and I wouldn't think it does.

glutenfreeontario Newbie
glutenfreeontario
Posted

According to Beano's website, there is no gluten in the product.

It says:

Does Beano
glowfox Newbie
glowfox
Posted

I'm sorry that she is ill, and hope soon that she is full well. I can definately understand how things can sneak up on you. I was getting gluten in my body by my shampoo! So make sure your fiancee checks that as well. You would be surprised where you would find gluten. It just takes time to figure out. I am still learning after 8 years. Good luck!

- Glow

PS. It is great to hear that you are being so supportive of her on this. :)

  • 1 month later...
Leslie C. Newbie
Leslie C.
Posted

I keep hearing about Celiacs needing to use a separate toaster from the rest of the family. If you use a toaster OVEN, and make sure that the rack is clean, isn't that sufficient?

Leslie C. Newbie
Leslie C.
Posted
I keep hearing about Celiacs needing to use a separate toaster from the rest of the family. If you use a toaster OVEN, and make sure that the rack is clean, isn't that sufficient?
JNBunnie1 Community Regular
JNBunnie1
Posted
I keep hearing about Celiacs needing to use a separate toaster from the rest of the family. If you use a toaster OVEN, and make sure that the rack is clean, isn't that sufficient?

Oh, that would work, it's just really hard to keep track of. It's so easy to forget to clean the rack every time you use it. You could also put foil down and toast your gluten-free stuff on it.

Crystalkd Contributor
Crystalkd
Posted

That's iffy I think because of the crumbs on the bottom. My sister lives with me but the thought of having gluten in my house TERRIFIED me so I asked her to be gluten-free in the house. She has done GREAT with it and I'm thankful. It's things like the toaster oven and such that scared me. Anytime it's around I start to get sick. If I have to go down the flour ailse for some reason I hold my breath and pray.

I guess it all depends on how you feel but if you have sysmtoms you can't explain I would bet that's where they're coming from.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,675
    • Most Online (within 30 mins)
      7,748
    Kimmber
    Newest Member
    Kimmber
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Medication

      By Scott Adams · Posted

      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.