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Recent Activity
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- trents replied to Healthierbody2026's topic in Related Issues & Disorders15New at gluten sensitivity
@Healthierbody2026, so you say here that you were diagnosed a few years back but in your first post you say you were recently diagnosed. I am totally confused! -
- Dr. Gunn replied to anya22's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5Test interpretations
As has been pointed out previously, it is not unusual to have mixed tTG and EMA results with active celiac disease. While awaiting your biopsy appointment you could request celiac genetic risk testing. If you don't carry the HLA-DQ2 and/or DQ8 genes, your lifetime risk for celiac disease is < 1%. The celiac risk genes are present in close to 100% of celiac... -
- Lotte18 posted a topic in Publications & Publicity0Prospective CRISPR research
Hi all, I'm just wondering if anyone knows whether Theresa Flores of Stanford University has been able to fund her research proposal to use CRISPR technology to directly alter our celiac genetic DNA coding? I know there's been a lot published on using CRISPR to alter wheat so it's "less" aggravating. But no one seems to indicate that wheat would then... -
- knitty kitty replied to Healthierbody2026's topic in Related Issues & Disorders15New at gluten sensitivity
@Healthierbody2026, Welcome to the forum. We would like some clarification as to whether you have been diagnosed with NCGS or Celiac disease. Many people who have gastrointestinal symptoms are diagnosed with IBD or NCGS without proper investigation into Celiac disease. This can delay a correct diagnosis for as long as ten years or longer. During... -
- Aretaeus Cappadocia replied to Healthierbody2026's topic in Related Issues & Disorders15New at gluten sensitivity
A few starter suggestions for gluten-free living: - one of the other responses to you mentioned the Forums. On any page of this website, there is a blue banner near the top of the page with some menu choices. The menu choice "Forums" drops down and gives a selection. One Forum topic is "Gluten-Free Foods, Products, Shopping & Medications", another...
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@Healthierbody2026, so you say here that you were diagnosed a few years back but in your first post you say you were recently diagnosed. I am totally confused! -
As has been pointed out previously, it is not unusual to have mixed tTG and EMA results with active celiac disease. While awaiting your biopsy appointment you could request celiac genetic risk testing. If you don't carry the HLA-DQ2 and/or DQ8 genes, your lifetime risk for celiac disease is < 1%. The celiac risk genes are present in close to 100% of celiac disease cases. If you do carry the genes, biopsy confirmation is essential given your history of symptoms and tTG antibody results.
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Hi all, I'm just wondering if anyone knows whether Theresa Flores of Stanford University has been able to fund her research proposal to use CRISPR technology to directly alter our celiac genetic DNA coding? I know there's been a lot published on using CRISPR to alter wheat so it's "less" aggravating. But no one seems to indicate that wheat would then have to be grown in a vacuum. My understanding is that wheat can self cross pollinate/contaminate if it's grown downwind from other strains of wheat. Go ahead and correct me if I'm wrong. Anyway, what I'd really like to know is, what's up with research to directly alter celiac DNA coding? Is Flores the only person out there proposing this? Has the NIH funded a CRISPR study for us? Many thanks, Charlotte
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By knitty kitty · Posted
@Healthierbody2026, Welcome to the forum. We would like some clarification as to whether you have been diagnosed with NCGS or Celiac disease. Many people who have gastrointestinal symptoms are diagnosed with IBD or NCGS without proper investigation into Celiac disease. This can delay a correct diagnosis for as long as ten years or longer. During that time, health problems related to Celiac disease that occur outside of the gastrointestinal system can show up. One of those health problems is Diabetes. I got misdiagnosed with IBD because there was no such thing as NCGS at that time. I was told I was prediabetic for several years. I became diabetic and had a cascade of health problems for more than ten years after until I was properly diagnosed with Celiac disease. Did you have a DNA test to see if you carry any of the genes necessary to develop Celiac disease? Did you have blood tests for anti-gluten antibodies? Did you have an endoscopy? Did biopsy samples show intestinal damage consistent with Celiac disease? If not... I suggest you have a discussion with your doctor about proper testing for Celiac disease and whether you've had them done. To diagnose NCGS, the doctor has to first rule out Celiac disease. @trents could you link that article on antibody tests for Celiac? Thanks! -
By Aretaeus Cappadocia · Posted
A few starter suggestions for gluten-free living: - one of the other responses to you mentioned the Forums. On any page of this website, there is a blue banner near the top of the page with some menu choices. The menu choice "Forums" drops down and gives a selection. One Forum topic is "Gluten-Free Foods, Products, Shopping & Medications", another is "Gluten-Free Recipes & Cooking Tips". Others relate to Restaurants, Traveling, and so on. Spend some time surfing through them. - Arguably, the single best food in a gluten-free diet is quinoa. Costco sells a house brand that appears to be gluten-free at a pretty good price. Costco can be a source of some other gluten-free foods. Another resource I found after going gluten-free is AzureStandard.com. I buy a lot of gluten-free foods there. I checked just now and it looks like they have some service to parts of Alabama. - Learn to read food labels carefully and learn what to look for. Don't be shy about calling customer service. - If you can, dedicate your home to be gluten-free. Sort the foodstuffs (any thing that could end up in your mouth) you currently own into "safe" and "not safe". Give away the "not safe". Go through your kitchen systematically and clean everything once. It's like moving into a new apartment of questionable cleanliness. Once it's clean, though, you don't have to worry so much about it. - If you live in a "mixed" household (like mine), start calling gluten-containing foods "poop". Keep as much separate as you reasonably can. While we were transitioning to a safer kitchen overall, we would designate one set of dishes to be safe (and the other for poop). Our kitchen is mostly safe now and we don't segregate dishes anymore. However, when the coprophages want to eat some poop they eat it on the porch and rinse their dishes immediately afterwards. - I don't know the gluten limit for NCGS, but for celiac it is quite low: 20 ppm (parts per million) is the official standard, but some people seem to be sensitive even at that level. One, or maybe a few, breadcrumbs are supposedly enough to trigger symptoms. I haven't tried the experiment myself though. - My transition to gluten-free living has had some silver linings. My health is better. But it has also been a period of personal growth as I've taken up cooking in a serious way. I hope this helps to address your question
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