Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Had A Scope And Biopsies Yesterday

jeannine

Recommended Posts

jeannine Apprentice
jeannine
Posted

I went in yesterday and had a liver biopsy, upper scope and a doudenal biopsy. I never saw the doc after since a emergency came in and he was called in. The nurse showed me (and gave me my own set) of pictures of the scope. She told me that my fundus was covered in polyps and doc removed 10. I asked about diet and told her I was no longer eating gluten starting immediately. She said there was no mention of "seeing" celiacs so I should wait until I see the doc again- I'm calling for my followup appt today.

First, anyone else with stomach polyps? Does that have anything to do with celiacs? I've been taking prevacid, and now nexium, for about 2 years, but now don't think I have GERD, but celiacs.

Second, does the doc normally just "see" damaged villi? I thought that is why they did a biopsy...

Anyway, no more gluten for me- the only parts I don't have the rash are my feet, hands and face.

Thanks!

Jeannine

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cruelshoes Enthusiast
cruelshoes
Posted
First, anyone else with stomach polyps? Does that have anything to do with celiacs? I've been taking prevacid, and now nexium, for about 2 years, but now don't think I have GERD, but celiacs.

Second, does the doc normally just "see" damaged villi? I thought that is why they did a biopsy...

In addition to severely damaged villi, my son was found to have 5 large polyps in his stomach. The GI said that it was probably due to the constant irritation from the gluten. She did not remove any of them, but did take a biopsy of one. It was benign, and she said the polyps would most likely go away on a gluten-free diet.

Villi damage can sometimes be seen with the naked eye, but it is more when the damage gets to the severe end of the spectrum. The reason they do a biopsy is to take small samples of the tissue to be looked at under a microscope. The pathologist looks at the samples and grades them on what is called a Open Original Shared Link. The doctor will generally not make a diagnosis on their visual observations, but will wait for the pathology report.

Hope this helps. Glad you came through your biopsy OK, and I hope you get some answers soon.

jeannine Apprentice
jeannine
Posted
  • Author

Well, my follow up isn't until May 1- so much for the 2 weeks.

Cruelshoes- that is interesting about the polyps. I learn something new every day!

Thanks!

Jeannine

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,200
    • Most Online (within 30 mins)
      7,748
    TGE
    Newest Member
    TGE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By Scott Adams · Posted

      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.