Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help! New Celiac Still Having Reactions


JDMurray

Recommended Posts

JDMurray Newbie

Help!

I was recently diagnosed with celiac disease and am now on a 100% gluten-free diet. I


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
Help!

I was recently diagnosed with celiac disease and am now on a 100% gluten-free diet. I

Takala Enthusiast

Do you know if you are lactose (milk sugars, found in fresh unaged milk products) intolerant, dairy intolerant, or casein (milk protein) intolerant ?

Since you were recently diagnosed, you may go thru a phase where you find you cannot digest dairy products, as you heal up internally, this ability may come back to where you find you can once again eat some dairy, some lactose free dairy like aged cheese or certain gluten-free yogurts. Or you might be sensitive to all cow dairy products.

Check the butter for "natural flavorings." I only used cultured organic butter. I still tend to use olive oil as much as possible instead of butter.

The second most likely culprit from the list is the roasted sunflower seeds. I don't know what they really do at these roasting facilities, but it seems like they run the sunflower seed roasting oil thru a vat of wheat crumbles before using it, because I have always reacted to roasted sunflower seeds, much to my disgust. I also know to avoid things like roasted peanuts in sunflower oil. I thought I had a peanut problem for years, tried eating naked raw peanuts and no reaction, got a little braver and just recently in the past month ate thru 2 jars of expensive peanut butter made of nothing but peanuts, marked Gluten Free right on the label with no problem.

For the vinegars, in the beginning, if you suspect them, try using plain real 100% apple cider vinegar, not flavored vinegars.

Also, you want to replace some of your kitchen wares like wooden or plastic (ick ! ick ! ) cutting boards, wooden spoons, colanders, toasters (put the nasty store bought rice bread in the old toaster, WHOOPS guess what you just did ), put the cutting knives in the old wooden holder, etc, and you run the risk of cross contamination.

Also watch what sort of hand lotions you OR another family member could be using before they touch your food.

If you have pets, always wash your hands after touching their stuff, unless you have them on gluten free foods, too.

Keep in mind that not every gasto illness is going to be a glutening, as there have been incidents of lettuce and other vegetables being contaminated with bacteria.

I hope you figure it out.

kenlove Rising Star

Hi

I would question the beef stock.

---from their web site---

Kitchen Basics Beef Flavor Stock is slow cooked from or with:

Beef bones

Carrots, onion, leek, tomato and garlic

Natural flavor

JDMurray Newbie

Thanks everyone for the great information and suggestions! I greatly appreciate your time and expertise. Thank you!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      30

      My journey is it gluten or fiber?

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,819
    • Most Online (within 30 mins)
      7,748

    Charlette Jillie-Martinez
    Newest Member
    Charlette Jillie-Martinez
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.