Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten And Caesin Intolerant


Robink

Recommended Posts

Robink Newbie

Hello, I went to Dr. Stephanie Cave (alternative med) in Baton Rouge, Louisiana about 2 yrs ago. My results showed that I am intolerant to gluten and caesin. Life was pretty hectic and I did nothing about my new findings. I would love to learn how to get on this diet. I know it sounds like gloom and doom, but, honestly, if this lifts the anxiety/depression/adhd at all, I am game. Scared to get my hopes up and miserable at the same time. I'm choosing to try. Anyone? Ty, Robin


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Robink Newbie

More info:

I have, but, not all of the time, IBS and Acid Reflux. I've tried every med for anxiety and depression, each makes me feel worse or does nothing at all. I just feel jittery and uneasy, never quite satisified, moody, I get irritated easily. After being diagnosed wrongly for a few years, my sister was finally correctly diagnosed with Crohns. I want to feel better so badly. Anyone here from Louisiana? Any feedback would make me feel better. I'll at least know someone has heard me, ty, Robin

kayavara Rookie

Hey! I'm from Louisiana...Walker to be exact...not but about 10 minutes from Baton Rouge.I had my test done at Ochsner in Baton Rouge.I was dx last week with Celiac.I'm giving this diet my best shot. I have been feeling so bad for months now.I spent an arm and a leg on Medical costs and I lost so much time with family and friends lately....because I felt bad all the time.If this helps...it will be worth it...hard ...but worth it!Hope you feel better soon.

Kay

Redsd Newbie
More info:

I have, but, not all of the time, IBS and Acid Reflux. I've tried every med for anxiety and depression, each makes me feel worse or does nothing at all. I just feel jittery and uneasy, never quite satisified, moody, I get irritated easily. After being diagnosed wrongly for a few years, my sister was finally correctly diagnosed with Crohns. I want to feel better so badly. Anyone here from Louisiana? Any feedback would make me feel better. I'll at least know someone has heard me, ty, Robin

My way of getting a handle on my diet is to stick to chicken/turkey, beef, vegetables including potatoes, nuts, eggs, goat cheese and little else. It's a bit like Atkins but including potatoes, and without the heavy fats/dairy. Or like South Beach without the dairy. I'd suggest you read both those diet books for ideas. Generally I have eggs for breakfast, chicken or beef and side dishes for lunch and dinner. Snacks are a banana, nuts, maybe a Larabar.

My doctors suggest I avoid any grains at all, including rices and pseudograins, soy, sugars, dairy, pork... So I eat very few things - but it's still a guessing game at times. Today I tried a goat milk yogurt, and I think the sugars got me. I'm blown up like a balloon. However, I rarely ever get the IBS cramps and nastiness I had before I went gluten free.

I was on antidepressants for awhile, but I don't think they helped. I went off cold turkey, which was a BIG mistake, messed up my brain chemistry and I was wonked out for a couple months.

hth somehow? Lori

dbmamaz Explorer

I had been dx'd as allergic to dairy and wheat from a diet test as an infant, but only off them for a few months. I went gluten and casien free in November, and i've been amazed at the difference. Within a week, 90% of my intestinal symptoms were gone. About 6 weeks in to it, I realized i hadnt taken exedrin in a month, and it used to be 3-4 times each week. My depression and anxiety started to ease about 2 months in to the diet.

So expect great things . . but be patient. There are worse things . . . i'm now on a diet so restrictive I can only eat 25 foods . . so you surely can do this! You can even find vegan chocolate if you look hard!

Good luck

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Jmartes71's topic in Coping with Celiac Disease
      14

      Related issues

    2. - sc'Que? commented on Celiac.com Sponsor: Review's article in Product Reviews
      2

      Bold Taste, No Alcohol & Crafted to Remove Gluten: Daura Non-Alc Beer Takes Alcohol-Free Beer to the Next Level

    3. - Theresa2407 replied to Aya77's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Books about celiac

    4. - Known1 replied to Aya77's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Books about celiac

    5. - knitty kitty replied to Colleen H's topic in Coping with Celiac Disease
      3

      Barilla gluten free pasta

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,473
    • Most Online (within 30 mins)
      7,748

    Eddie Graham
    Newest Member
    Eddie Graham
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      Did they ever tell you specifically which vitamins would interfere with which tests? Fermented pickles source of thiamine  and other B-vitamins, The fermentation process with lactic acid bacteria increases the nutrient value.   Colonies of beneficial bacteria can help crowd out the the bad SIBO. Have you had the rash biopsied for Dermatitus Herpetiformus?  Atopic Dermatitis and dermatitis herpetiformis share symtoms and atopic dermatitis patients have higher risk of dermatitis herpetiformis.  dermatitis herpetiformis is a symptom of Celiac diagnosis. When I had the carotid artery stent, the hospital put down "wheat allergy" for the food service.  I guess allergy puts the fear of god in them more than the misunderstood Celiac Disease.  Whatever keeps me alive in this world.   
    • Theresa2407
      You are correct.  Same place.  I have used their site for so long and have it bookmarked.  Still living in past.  Our support group was affiliated with them.
    • Known1
      Hmm, I think you mean the Gluten Intolerance Group®?  Their website is not gig.net.  Maybe it was at one point?  I am new to all of this, but did find their website here:  https://gluten.org/ Kind Regards, Known1
    • knitty kitty
      @Scott Adams, You're right about corn and wheat not sharing similarities in the 33-mer peptide segment of gluten.  Corn has a completely different peptide that causes an autoimmune reaction because it attaches to HLA-DQ8.  Casein in dairy shares with wheat similarities in the33-mer peptide chain. Sorry about the oversimplification.  Maize Prolamins Could Induce a Gluten-Like Cellular Immune Response in Some Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC3820067/
    • Scott Adams
      I just want to mention that corn and wheat do both contain storage proteins (corn has zein, wheat has gliadin and other gluten proteins), and there are some small similarities in certain amino acid sequences. However, those similarities are not considered medically equivalent, and corn proteins do not trigger the autoimmune response of celiac disease in the vast majority of people with celiac. Celiac disease specifically involves an immune reaction to gluten peptides found in wheat, barley, and rye. Corn is classified as gluten-free because its proteins do not activate that same immune pathway in most individuals. Although corn intolerance is very real, the explanation about the proteins being the same is oversimplified to the point where it's not accurate.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.