Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten And Caesin Intolerant


Robink

Recommended Posts

Robink Newbie

Hello, I went to Dr. Stephanie Cave (alternative med) in Baton Rouge, Louisiana about 2 yrs ago. My results showed that I am intolerant to gluten and caesin. Life was pretty hectic and I did nothing about my new findings. I would love to learn how to get on this diet. I know it sounds like gloom and doom, but, honestly, if this lifts the anxiety/depression/adhd at all, I am game. Scared to get my hopes up and miserable at the same time. I'm choosing to try. Anyone? Ty, Robin


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Robink Newbie

More info:

I have, but, not all of the time, IBS and Acid Reflux. I've tried every med for anxiety and depression, each makes me feel worse or does nothing at all. I just feel jittery and uneasy, never quite satisified, moody, I get irritated easily. After being diagnosed wrongly for a few years, my sister was finally correctly diagnosed with Crohns. I want to feel better so badly. Anyone here from Louisiana? Any feedback would make me feel better. I'll at least know someone has heard me, ty, Robin

kayavara Rookie

Hey! I'm from Louisiana...Walker to be exact...not but about 10 minutes from Baton Rouge.I had my test done at Ochsner in Baton Rouge.I was dx last week with Celiac.I'm giving this diet my best shot. I have been feeling so bad for months now.I spent an arm and a leg on Medical costs and I lost so much time with family and friends lately....because I felt bad all the time.If this helps...it will be worth it...hard ...but worth it!Hope you feel better soon.

Kay

Redsd Newbie
More info:

I have, but, not all of the time, IBS and Acid Reflux. I've tried every med for anxiety and depression, each makes me feel worse or does nothing at all. I just feel jittery and uneasy, never quite satisified, moody, I get irritated easily. After being diagnosed wrongly for a few years, my sister was finally correctly diagnosed with Crohns. I want to feel better so badly. Anyone here from Louisiana? Any feedback would make me feel better. I'll at least know someone has heard me, ty, Robin

My way of getting a handle on my diet is to stick to chicken/turkey, beef, vegetables including potatoes, nuts, eggs, goat cheese and little else. It's a bit like Atkins but including potatoes, and without the heavy fats/dairy. Or like South Beach without the dairy. I'd suggest you read both those diet books for ideas. Generally I have eggs for breakfast, chicken or beef and side dishes for lunch and dinner. Snacks are a banana, nuts, maybe a Larabar.

My doctors suggest I avoid any grains at all, including rices and pseudograins, soy, sugars, dairy, pork... So I eat very few things - but it's still a guessing game at times. Today I tried a goat milk yogurt, and I think the sugars got me. I'm blown up like a balloon. However, I rarely ever get the IBS cramps and nastiness I had before I went gluten free.

I was on antidepressants for awhile, but I don't think they helped. I went off cold turkey, which was a BIG mistake, messed up my brain chemistry and I was wonked out for a couple months.

hth somehow? Lori

dbmamaz Explorer

I had been dx'd as allergic to dairy and wheat from a diet test as an infant, but only off them for a few months. I went gluten and casien free in November, and i've been amazed at the difference. Within a week, 90% of my intestinal symptoms were gone. About 6 weeks in to it, I realized i hadnt taken exedrin in a month, and it used to be 3-4 times each week. My depression and anxiety started to ease about 2 months in to the diet.

So expect great things . . but be patient. There are worse things . . . i'm now on a diet so restrictive I can only eat 25 foods . . so you surely can do this! You can even find vegan chocolate if you look hard!

Good luck

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,782
    • Most Online (within 30 mins)
      7,748

    BH1951
    Newest Member
    BH1951
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • nanny marley
      Hi I've been told I need a MRI on my bowels , I was booked for a colonoscopy, but because of my sever back issues and trapped nerve it can't be done , the nurse told me I will have to have a manitol drink a hour before the scan , I'm just a bit worried has I have issues with sweeteners like even a little,  I get a weird throat and ears and I've read it is a similar substance , not sure if anyone has had one of these scans or could give me some advise on the drink prep thanks in advance 😄
    • Colleen H
      Ok thank you.  Me either 
    • Colleen H
      Hi all ! Can a celiac attack be so intense that it causes your entire body to work in reverse? Meaning really bad pain,  neuropathy and muscle,  jaw pain,  the stomach issues , Horrible anxiety and confusion??  I had a Tums and you would think I ate poison. My jaw and stomach did not like it . Not the norm for me. Things that are simple are just out of control. Anyone ever have this happen??  I'm trying to figure out what I ate or did to bring on a celiac like attack. I had an idea before but yesterday I didn't have any gluten unless it was in a medication ?! Any positive suggestions ??  Thank you 
    • Scott Adams
      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • trents
      Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.