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How Likely Is It That I Have Celiac's? (new To This)

S-J-L

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S-J-L Apprentice
S-J-L
Posted

Hi everyone,

Ive had all sorts of health problems for years, the main ones being fatigued and exhausted, losing weight, and constipation!

I was finally refered to a specialist who tested me for celiacs.

All i know/all ive been told is that my blood results are:

t-Transglutaminase: 164 (thats high i think?)

anti-endomysial antibodies: positive

I don't know much about it.

I recently had a gastroscopy with biopsies but im waiting on the results.

Any clarification would be great.

Thanks

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tom Contributor
tom
Posted

Hi S_J_L,

I don't know much about the tests for Celiac either.

You'll get plenty of responses in the morning, I suspect. (I saw your other thread too)

Many forum members are in time zones where it's pretty late.

Have you started eating gluten-free to see how you feel w/out gluten?

The response to diet is ALSO a test.

S-J-L Apprentice
S-J-L
Posted
  • Author

Yea im in New Zealand lol.

I havn't gone gluten free yet cos im a student and i want to definently know before i need to change my whole lifestyle. I know gluten free food is quite expensive.

I should have my results within the next week i guess.

If i do have celiac disease, im going to find it hard to not eat out when i go into town etc.

I get worried because i eat really well but im 5'8 and only 103pounds.

aikiducky Apprentice
aikiducky
Posted

If both your ttg and ema were positive, I think your chance of a positive biopsy is very very high. You might want to start researching the diet, which brands to buy, try some gluten free cookies, eat all your favorite gluten foods for the last time. This board is a good place to start, and the parent site, celiac.com. Welcome aboard! :)

Pauliina

MDRB Explorer
MDRB
Posted

Hi,

It sounds likely that you have celiac disease, even if the biopsy is negative I would still try the gluten free diet for a while to see how you feel, as the biopsy is not always accurate (lots and lots of intestine and only a few samples taken).

Anyway, I'm in Australia and I think that we might get a lot of the same products as in New Zealand, so if you have any questions about brands etc, just PM me, also you should check out the international section on this forum as there are quite a few Aussies and New Zealanders out there :)

pinkscooby6 Rookie
pinkscooby6
Posted
Hi everyone,

Ive had all sorts of health problems for years, the main ones being fatigued and exhausted, losing weight, and constipation!

I was finally refered to a specialist who tested me for celiacs.

All i know/all ive been told is that my blood results are:

t-Transglutaminase: 164 (thats high i think?)

anti-endomysial antibodies: positive

I don't know much about it.

I recently had a gastroscopy with biopsies but im waiting on the results.

Any clarification would be great.

Thanks

The way my doctor put it to me, was if your TTG level is above 20 it's abnormally high, above 30 you probably have Celiac. Mine was at 300, and yours is pretty high as well. So there is a really good chance that you do have Celiac.

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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
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      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
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      Small Bowel Resection 12 inches

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      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
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      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
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