Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What On Earth...

Lux

By Lux
in Coping with Celiac Disease

Recommended Posts

Lux Explorer
Lux
Posted

OK, so here's the thing: I have been gluten, dairy, soy and wheat free since Feb this year, and my symptoms have been improving remarkably. I was diagnosed, only a week ago, with IBS (as well as celiac disease). Just over the last week, I have started to develop this strange new symptom (which I have experienced only one other time on my life for an ongoing basis of a couple of weeks), which is just this constant experience of air trapped in my oesophegus - and the associated need to burp.

What do you suppose could be the cause of this? I am immigrating to the UK in just over a week, and have moved into my mother's house until my date of departure. The problem seems to have begun since I moved in with my Ma. Is this a sign of being glutened? Can I possibly attribute it to stress, or to the IBS? And is there anything I can do to treat this? It's nowhere near as awful as my previous symptoms were, but it just causes so much discomfort and I''m aware of this weird sensation all the time...

Any help would be wonderful!

Thanks!!!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted

Maybe it's acid reflux. Sometimes that presents as an esophageal spasm. Try taking an antacid to see if that makes it go away.

Ursa Major Collaborator
Ursa Major
Posted

It could well be caused by cc (and being glutened CAN cause reflux, which this could be).

You could also be intolerant to other foods, like nightshade vegetables.

But since you have had this problem only since you moved in with your mother, my guess is that you are being glutened in your mother's house.

And by the way, IBS is bunch of symptoms, not a disease in itself. Something is causing your bowel to be irritated, and it is likely another intolerance that you haven't figured out yet.

curlyfries Contributor
curlyfries
Posted

I had acid reflux before going gluten free and then it went away, once on the diet. But recently it came back. One of my symptoms with reflux is that my throat will gurgle. Sort of like a burp, but burps come from much further down. This starts from the upper part of my throat. I eliminated sugar and it is getting better. (I have already eliminated dairy) So I agree with jestgar and ursa major.

Lisa

okgrace Apprentice
okgrace
Posted

Last spring I was working at this awful school and I was so so stressed out. It felt like something was stuck in my throat for a couple of days and then my friend gave me prilosec or one of those and it went away. :) Never to return. Sound's like GERD to me.

kayavara Rookie
kayavara
Posted

I was just about to post a question regarding burping.I have been burping alot for the last 5 months...without really knowing why.I will burp all day long.I feel like there is always some air that I could burp at all times.I don't get the acid backup or reflux with the burping...just the air.I am following the diet to the letter with only fresh fruits veg. etc.to confirm celiac disease or wheat intolorance in August when I am to be retested.Still confused on that issued as both scope and blood tests were negative.Doc still thinks Celiac as of now.

Kay

Ursa Major Collaborator
Ursa Major
Posted
I was just about to post a question regarding burping.I have been burping alot for the last 5 months...without really knowing why.I will burp all day long.I feel like there is always some air that I could burp at all times.I don't get the acid backup or reflux with the burping...just the air.I am following the diet to the letter with only fresh fruits veg. etc.to confirm celiac disease or wheat intolorance in August when I am to be retested.Still confused on that issued as both scope and blood tests were negative.Doc still thinks Celiac as of now.

Kay

Have you eliminated dairy and soy? Those could be causing the acid reflux and burping.

Retesting you in August after being gluten-free will only result in more negative test results. It seems that your doctor is clueless about celiac disease.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lux Explorer
Lux
Posted
  • Author

Thankyou so much all for your replies!

I certainly considered GERD, but don't have any of the other symptoms (heartburn, chest pains, etc) which point to it...it's just the fact that it has been going on for over a week now that I find it so strange. I will certainly try some antacids, though, and see if that works! (are they gluten free??)

curlyfries Contributor
curlyfries
Posted

Before I took out sugar I stopped eating the tangerines I was having every day. I think that was a big contributor. I would get a burning in my stomach and chest and I had a sore throat ( and that lump-in-the-throat feeling). I try to stay away from Prilosec now because I was on it for such a long time. And I have been able to control it with my diet.

Lisa

kayavara Rookie
kayavara
Posted
Have you eliminated dairy and soy? Those could be causing the acid reflux and burping.

Retesting you in August after being gluten-free will only result in more negative test results. It seems that your doctor is clueless about celiac disease.

I haven't eliminated dairy and soy...but I should consider that as well.I suppose I put it wrong about being retested to confirm celiac disease in August.The doc says improvement with the diet will be his confirmation and of course if your gluten/wheat free...your tests should come back negative.I hope he's truly not clueless....I think I am at this point,though.I have had such highs and lows the past few days.I think I'm on to something at times and other times I stay confused.

Kay

JNBunnie1 Community Regular
JNBunnie1
Posted
I haven't eliminated dairy and soy...but I should consider that as well.I suppose I put it wrong about being retested to confirm celiac disease in August.The doc says improvement with the diet will be his confirmation and of course if your gluten/wheat free...your tests should come back negative.I hope he's truly not clueless....I think I am at this point,though.I have had such highs and lows the past few days.I think I'm on to something at times and other times I stay confused.

Kay

Your doctor is right, if you show improvement, that's pretty good confirmation. Otherwise, you've gotten some really good advice already!

Ursa Major Collaborator
Ursa Major
Posted

Okay, I take that back. Too many doctors haven't got a clue what they are doing, and I assumed he was going to test you for celiac disease again, and then tell you that you don't have it if everything is negative.

Yellow Rose Explorer
Yellow Rose
Posted

When I first started elminating gluten from my life after a couple of months I was getting a little quesy, some stomach pains, and then I would start burping. It was driving me nuts. I found that I was actually hungry and would go eat a little bit of something and the burping and nausa would go away. I started eating smaller amounts of food more often like 1/2 an apple, or a hand full of nuts or raisins every couple of hours and it all went away. You are probably healing up and your body is realizing it can now get nutrients out of the food and wants more fuel. Give it a try.

Yellow Rose

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,606
    • Most Online (within 30 mins)
      7,748
    TGreen
    Newest Member
    TGreen
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Potential celiac need advice

      By Scott Adams · Posted

      It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first step, and if you have ANY positive results there for celiac disease the next step would be to take biopsies of your villi via an endoscopy given by a gastroenterologist.  More info on the blood tests and the gluten challenge beforehand is below: The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider.  
    • Wheatwacked
      Potential celiac need advice

      By Wheatwacked · Posted

      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Potential celiac need advice

      By trents · Posted

      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      Potential celiac need advice

      By Ben98 · Posted

      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      Unusual bright yellow but odourless discharge

      By Wheatwacked · Posted

      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.