Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pain On My Heels And Tickling On My Toes


MELINE

Recommended Posts

MELINE Enthusiast

Hello

Yesterday I glutened my self without noticing (peanuts flour-coated ....I could never imagine that such a thing exists) This morning I woke up extremely tired, with headacke and I could not walk cause I have an extremely severe pain on both my heels and my toes have a strange feeling like someone is tickling me.

so is the pain on my heels and the tickling on my toes a symptom? I never experienced that before....

:huh:

Meline


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

It sounds like you are experiencing neurological symptoms from being glutened. I certainly get problems like that from gluten!

MELINE Enthusiast
It sounds like you are experiencing neurological symptoms from being glutened. I certainly get problems like that from gluten!

:( I don't like it at all....

RiceGuy Collaborator

I've read the same can happen from nerve damage, but either way I'd recommend methylcobalamin (B12). Magnesium also helped me tremendously with muscle and nerve pain. That and avoiding all nightshades, as they have a muscle toxin.

This is not to say it wasn't from gluten alone, but I suppose implementing other measures might help increase tolerance/reduce effects.

Kaycee Collaborator

I was reading last night a site that Dr Rodney Ford from New Zealand has set up and I came across this.

It is pretty interesting to say the least.

And yes when I get glutened I feel so heavy and yuck the next day. It is an effort to even get to the loo first thing in the morning. And I get aches and pains all over.

You can find his site at Open Original Shared Link

Below is part of what he has writen.

"Although Coeliac Disease is usually viewed as a gastroenterological condition, I challenge this notion.

The usual definition of Coeliac Disease is: a gastrointestinal disease where there is damage to the small intestinal muscosa (skin) from the toxic effects of gluten from the diet. It is associated with a positive tTG antibody test and villous atrophy on upper small bowel biopsy. It is reversible on a gluten-free diet. It occurs in genetically susceptible people (re the HLA typing).

However, it is my opinion that gluten-sensitivity (the Gluten Syndrome) should be viewed in a much wider context. The evidence is that celiac disease is primary a neurological disorder (see my book: “Full of It!”). "

MELINE Enthusiast

I am a little bit scared right now, and it is too late to call my doctor (it is 23:30 o' clock here). When you say neurological problems it sounds like something serious. Should I call my doctor tomorrow?

MELINE Enthusiast
That and avoiding all nightshades, as they have a muscle toxin.

can you please explain for me the meaning of the word nightshades? I can't find with google translator. :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator
I am a little bit scared right now, and it is too late to call my doctor (it is 23:30 o' clock here). When you say neurological problems it sounds like something serious. Should I call my doctor tomorrow?

That is apparently the opinion of the doctor Kaycee quoted. Either way, the same rules apply:avoid gluten, get your nutrients, etc. When I hear the word "neurological" it makes me think of doctors who like to prescribe drugs for everything. It is those who seem to want to ignore diet completely.

Personally I wouldn't worry, as you not only know what caused it, but what to do about it.

MELINE Enthusiast
That is apparently the opinion of the doctor Kaycee quoted. Either way, the same rules apply:avoid gluten, get your nutrients, etc. When I hear the word "neurological" it makes me think of doctors who like to prescribe drugs for everything. It is those who seem to want to ignore diet completely.

Personally I wouldn't worry, as you not only know what caused it, but what to do about it.

ok...I just got so scared..I started having pictures of me having trouble to walk because of permanent problems...I know I am over-reacting....I guess I just want to hear that it is reversable.I'll call my doctor any way tomorrow and I am never in my life going to have an accident again (or at least I am going to try it very very very hard). My feet really hurt a lot right now.

thank you for your reply

jerseyangel Proficient

It sounds like peripherial neuropathy--quite common for those with undiagnosed or newly diagnosed Celiac.

I had this for about a year leading up until I was diagnosed. I had the tingling in my feet and also in my face and hands. I had the occasional stabbing sensation in my feet, too. Sometimes the tingling came along with some numbness.

It took a while after going gluten-free for all of this to go away. Probably 6 months or so for me. I still sometimes still get the facial tingling and numbness when tired or glutened.

Don't be too concerned about it right now--concentrate on being gluten-free and it should gradually begin to go away.

MELINE Enthusiast
It sounds like peripherial neuropathy--quite common for those with undiagnosed or newly diagnosed Celiac.

I had this for about a year leading up until I was diagnosed. I had the tingling in my feet and also in my face and hands. I had the occasional stabbing sensation in my feet, too. Sometimes the tingling came along with some numbness.

It took a while after going gluten-free for all of this to go away. Probably 6 months or so for me. I still sometimes still get the facial tingling and numbness when tired or glutened.

Don't be too concerned about it right now--concentrate on being gluten-free and it should gradually begin to go away.

ok....thank you very much..the description you make sounds very much like my symptoms...thanks again fo the help

Kaycee Collaborator

Meline, I'm sorry if I scared you. That wasn't my intention. I'd come across this article and it got me thinking. Hope you are feeling better soon.

Cathy

MELINE Enthusiast
Meline, I'm sorry if I scared you. That wasn't my intention. I'd come across this article and it got me thinking. Hope you are feeling better soon.

Cathy

no no no no!!!! don't you worry at all!!! on the contrary! you were very helpful here! I wasn't scared because of you! not at all! really! It's just that I am alone in my house, it is late at night here and the tingling really starts feeling like paralysing my toes....that is why I started having these fears....I would be scared no matter what your reply was! I didn't need your help to get scared!!!!!!!!!!!It seems like I can do it my self!!! hahahahahahaha! LOL!!!!!!

:D:D:D:D:D:D

CCM Rookie

Hey there Meline, I get the tingling and numbness in hands, feet and sometimes face as well. The face is rare, the feet are getting better since going gluten free at the beginning of the year. The hands are another story because I have nerve damage from carpal tunnel syndrome.

You asked about nightshades earlier, this refers to edible plants (there are other non-edible ones) in the nightshade family: potatoes, tomatoes, eggplant and peppers. I recall you have a great number of food sensitivities and I realize that it can be hard to avoid these foods in Greece. I know it is hard to avoid them here in the US! I have been experimenting and think that I might be able to handle fresh tomato slices, but concentrated in a sauce causes reactions in me. I still hope it goes away it is harder than avoiding gluten! Hopefully, you will find out it is not the cause of your tingling toes.;

It is a natural toxin in the nightshade family that causes the neurological reaction. You might search online for a well known nightshade plant: atropine belladonna.

nora-n Rookie

There are even forums about the neurological symptoms from gluten.

Open Original Shared Link

nora

MELINE Enthusiast
Hey there Meline, I get the tingling and numbness in hands, feet and sometimes face as well. The face is rare, the feet are getting better since going gluten free at the beginning of the year. The hands are another story because I have nerve damage from carpal tunnel syndrome.

You asked about nightshades earlier, this refers to edible plants (there are other non-edible ones) in the nightshade family: potatoes, tomatoes, eggplant and peppers. I recall you have a great number of food sensitivities and I realize that it can be hard to avoid these foods in Greece. I know it is hard to avoid them here in the US! I have been experimenting and think that I might be able to handle fresh tomato slices, but concentrated in a sauce causes reactions in me. I still hope it goes away it is harder than avoiding gluten! Hopefully, you will find out it is not the cause of your tingling toes.;

It is a natural toxin in the nightshade family that causes the neurological reaction. You might search online for a well known nightshade plant: atropine belladonna.

there is nothing left to eat!!!!!!!!!!!!!!!!!!!!!!!!!!!! LOL!!!!!! well thank you for the info, it is the first time I've ever heard about that thing with nightshades, and then I did a little research on the net and guess you have a point.....I'll try to exclude or eliminate them. But that thing you said about concentrated tomato is so right. Me too I have a little issue with that and I just could not imagine why.

thank you for your help and the translation!!

meline

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    2. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    3. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,860
    • Most Online (within 30 mins)
      7,748

    MEK5
    Newest Member
    MEK5
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.