Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Was In The Er Yet Again This Morning...

Guest spruette

By Guest spruette
in Post Diagnosis, Recovery & Treatment of Celiac Disease

Recommended Posts

Guest spruette
Guest spruette
Posted

This time, the diagnosis was allergies as to why my throat keeps closing up. I have been on steriodal inhalers, nasal sprays, allergy meds, just about everything under the sun. Today I come home with somg Guaifenex. :huh: Yes, I have a lot of build up on my throat but should that cause the actual throat muscles to close up? They didn't run one x-ray and didn't run one blood test. We were in there for approx. 20 minutes. There is a strike going on next door, wondering if that has anything to do with it.

Oh my goodness gracious though, can I brag about how much better my stomach has been doing already? :) I haven't even been gluten free for a week yet, and I am so impressed with my stomach. It isn't gurgling as my hubby and I call it, and the nausia is nearly non-existant. I didn't even take compazine last night, and I have taken that for 9 years not missing one single day. At least I know there is ONE good doctor out there!! Thank you Dr. Fern!! I'm so grateful for that at least today.

How is everyone doing? I am praying for all of you! :) Take care!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


plantime Contributor
plantime
Posted

Your throat closing up sounds like an asthmatic allergic reaction. My throat does the same thing if I get into or eat something I'm allergic to. Very scary! Doc gave me albuterol inhalers to use when that happens. The inhalers work very well for me!

Guest spruette
Guest spruette
Posted

Hi!

Thank you for your reply. You know what? I am on Albuterol. It doesn't seem to help this. It's so weird. But part of that may be the mail-order pharmacy we have to use. A lot of their meds have not worked, so it's possible that the ones I have been using are bad.

I was hoping this was something to do with Celiac. But I am not sure. Doesn't seem to be many others having this problem. It's the scariest feeling though. Honestly. I am taking a decongestant and hope that helps but that makes me feel nausious, so who knows?

Thanks so much for replying. :) (I like your qoute, by the way.) :)

tarnalberry Community Regular
tarnalberry
Posted

albuterol won't help for an anaphylactic allergy - which can cause your throat to close. (it'll help with an asthmatic reaction, that can be similar, but different.) do go see an allergist - if you have an anaphylactic allergy, you need to carry an epi-pen around with you.

  • 3 weeks later...
mscriber Newbie
mscriber
Posted

I had that happen once and took Benadryl. can you take that? It worked for me, but was very scary while it was going on, but my Dr. was mad and said I should have been in the ER because my throat was so closed up. :o Oops!

aaascr Apprentice
aaascr
Posted

Take your decongestant with some food - otherwise you will definitely feel sick.

I had a fill-in allergy doctor prescribe an inhaler for me since my old prescription had expired.

And guess what? that inhaler (emergency) sucks. I would hate to think what would happen if I had a "closing your lungs down" attack (like when I ingest soy). Fortunately, I have an appointment in a few days and I am going to insist on

using one of the inhalers that actually works for me. Not all inhalers work the

same on everyone - yes, carrying an epi-pen is great idea!

tarnalberry Community Regular
tarnalberry
Posted

inhalers definitely work differently in different people - and if you've got asthma, while some docs will put you on long acting inhalers (like advair), you really have to carry a fast acting one too (like albuterol). ironically, the propellant used in MDI (metered dose inhalers) can be a _trigger_ to some people's asthma (some people like me!), and some doctors have a hard time believing it. DPI (dry powder inhalers) can be used instead (I use maxair... still makes me shakey, though). (And to make it yet worse, the generics and brand names DO affect people differently....)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Carriefaith Enthusiast
Carriefaith
Posted

I find that the doctors in the ER are too busy and they just seem to want to get you out of there as fast as they can. They just want to give you a prescription and send you on your merry way. They don't seem to have the time to do a few simple tests to rule something out.

As an example, I went into the ER about 5/6 years ago with a horrible back injury that I got at work. I was in a wheelchair... I couldn't walk beacause I was in immense pain. When they were looking at my back they said something like, it could be nerve damage or a broken/busted back disk. They NEVER took an X-ray, which makes no sense what-so-ever (I mean broken disk vs. nerve damage? Pretty big difference!).

Anyway, they just gave me a prescription for tylenol 3 and said, take one tylenol 3 and 3 advil at a time for pain! NICE...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. YoshiLuckyJackpotWinner888
      - YoshiLuckyJackpotWinner888 replied to YoshiLuckyJackpotWinner888's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Water filters are a potential problem for Celiac Disease

      What non organic or nonorganic molecules from a plastic bottle of water can trigger a reaction that I have only experienced during an auto immune experience? There really should not be any organic molecules in such a bottle. I seen a thread where it was mentioned that his refrigerator water filter tested positive for gluten when he had it checked. If...
    2. Scott Adams
      - Scott Adams replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Reverse Osmosis (RO) Water

      It’s understandable to want to be cautious, especially after experiencing symptoms. However, there is currently no scientific evidence that reverse osmosis or standard activated carbon water filters expose people to gluten in amounts that would trigger celiac disease. Gluten is a protein, and if any starch-based binder were used in filter manufacturing, ...
    3. Scott Adams
      - Scott Adams replied to JoJo0611's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Yeast extract

      It’s understandable to look for bigger explanations when you’re dealing with complex symptoms, but the current scientific consensus does not support the idea that celiac disease evolved as a defense against Candida. Celiac disease is a well-characterized autoimmune condition triggered specifically by gluten in genetically susceptible individuals (HLA-DQ2...
    4. Scott Adams
      - Scott Adams replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      14

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      It sounds like you’ve put a lot of effort into tracking patterns, and that kind of awareness can be helpful. With celiac disease specifically, though, the only confirmed immune trigger is gluten. Reactions to dairy are common after diagnosis because intestinal damage can temporarily reduce lactase, leading to lactose intolerance — but that’s different from ...
    5. Scott Adams
      - Scott Adams replied to YoshiLuckyJackpotWinner888's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Water filters are a potential problem for Celiac Disease

      I completely understand wanting to track down every possible source of exposure after a celiac diagnosis, especially when symptoms are distinct and repeatable. That said, there’s currently no credible evidence that bottled water — including filtered water products like Gatorade water — contains gluten from filter materials. Activated carbon filters are t...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,571
    • Most Online (within 30 mins)
      7,748
    Chanty
    Newest Member
    Chanty
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • YoshiLuckyJackpotWinner888
      Water filters are a potential problem for Celiac Disease

      By YoshiLuckyJackpotWinner888 · Posted

      What non organic or nonorganic molecules from a plastic bottle of water can trigger a reaction that I have only experienced during an auto immune experience? There really should not be any organic molecules in  such a bottle. I seen a thread where it was mentioned that his refrigerator water filter tested positive for gluten when he had it checked. If I went to physician to get checked for other possible triggers from a water bottle, I don’t think that will go anywhere. Again, distilled water containers cause no reactions. I’m not an industry expert, but something is there.  I don’t think that this is a case of microplastics causing this. Too bad we can’t call upon some third party investigation.  
    • Scott Adams
      Reverse Osmosis (RO) Water

      By Scott Adams · Posted

      It’s understandable to want to be cautious, especially after experiencing symptoms. However, there is currently no scientific evidence that reverse osmosis or standard activated carbon water filters expose people to gluten in amounts that would trigger celiac disease. Gluten is a protein, and if any starch-based binder were used in filter manufacturing, it would not pass through RO membranes or remain in finished bottled water at clinically meaningful levels. Plain water — filtered, RO, or bottled — does not contain gluten unless it is intentionally added (which would require labeling). Steam-distilled water is certainly safe, but it is not considered medically necessary for people with celiac disease. If reactions are occurring, it may be helpful to explore other potential explanations with a healthcare provider rather than assuming filter-related gluten exposure.
    • Scott Adams
      Yeast extract

      By Scott Adams · Posted

      It’s understandable to look for bigger explanations when you’re dealing with complex symptoms, but the current scientific consensus does not support the idea that celiac disease evolved as a defense against Candida. Celiac disease is a well-characterized autoimmune condition triggered specifically by gluten in genetically susceptible individuals (HLA-DQ2 or HLA-DQ8). While some laboratory studies have shown that certain Candida proteins (like Hwp1) share limited sequence similarities with gluten or tissue transglutaminase (tTG), that does not mean Candida causes celiac disease or commonly produces false-positive tTG tests in clinical practice. Anti-tTG IgA remains a highly specific and validated marker for celiac when used appropriately (especially alongside total IgA testing and, when indicated, biopsy). IgG antibodies to Saccharomyces cerevisiae (ASCA) are more commonly associated with Crohn’s disease and are not considered diagnostic for celiac. There is ongoing research into microbiome interactions and immune cross-reactivity, but at this time there is no evidence that yeast exposure from foods triggers celiac autoimmunity in people without gluten exposure. If symptoms persist despite a strict gluten-free diet, it’s best to work with a gastroenterologist to rule out other conditions such as IBD, SIBO, non-celiac food intolerances, or refractory celiac disease rather than assuming a fungal-driven mechanism.
    • Scott Adams
      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      By Scott Adams · Posted

      It sounds like you’ve put a lot of effort into tracking patterns, and that kind of awareness can be helpful. With celiac disease specifically, though, the only confirmed immune trigger is gluten. Reactions to dairy are common after diagnosis because intestinal damage can temporarily reduce lactase, leading to lactose intolerance — but that’s different from casein sensitivity. IgG food panels, including yeast, are generally considered markers of exposure rather than proof of clinical intolerance. Aged cheeses like Irish cheddar are typically gluten-free, though they do contain casein and natural cultures. If symptoms are strong and repeatable, it may be worth working with a gastroenterologist or allergist to sort out true allergies, intolerances, or other GI conditions rather than assuming multiple cross-reactive immune triggers.
    • Scott Adams
      Water filters are a potential problem for Celiac Disease

      By Scott Adams · Posted

      I completely understand wanting to track down every possible source of exposure after a celiac diagnosis, especially when symptoms are distinct and repeatable. That said, there’s currently no credible evidence that bottled water — including filtered water products like Gatorade water — contains gluten from filter materials. Activated carbon filters are typically bound with food-grade binders, and if any starch were used in manufacturing, it would not remain in the finished water at measurable or biologically active levels. Plain water itself does not contain protein, and gluten is a protein. Major beverage companies also have strict allergen control programs, and gluten would need to be declared if intentionally added. If symptoms are occurring consistently after certain products, it may be worth discussing with a physician to explore other potential triggers, but at this time distilled water is not considered medically necessary for people with celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.