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Was In The Er Yet Again This Morning...

Guest spruette

By Guest spruette
in Post Diagnosis, Recovery & Treatment of Celiac Disease

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Guest spruette
Guest spruette
Posted

This time, the diagnosis was allergies as to why my throat keeps closing up. I have been on steriodal inhalers, nasal sprays, allergy meds, just about everything under the sun. Today I come home with somg Guaifenex. :huh: Yes, I have a lot of build up on my throat but should that cause the actual throat muscles to close up? They didn't run one x-ray and didn't run one blood test. We were in there for approx. 20 minutes. There is a strike going on next door, wondering if that has anything to do with it.

Oh my goodness gracious though, can I brag about how much better my stomach has been doing already? :) I haven't even been gluten free for a week yet, and I am so impressed with my stomach. It isn't gurgling as my hubby and I call it, and the nausia is nearly non-existant. I didn't even take compazine last night, and I have taken that for 9 years not missing one single day. At least I know there is ONE good doctor out there!! Thank you Dr. Fern!! I'm so grateful for that at least today.

How is everyone doing? I am praying for all of you! :) Take care!

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plantime Contributor
plantime
Posted

Your throat closing up sounds like an asthmatic allergic reaction. My throat does the same thing if I get into or eat something I'm allergic to. Very scary! Doc gave me albuterol inhalers to use when that happens. The inhalers work very well for me!

Guest spruette
Guest spruette
Posted

Hi!

Thank you for your reply. You know what? I am on Albuterol. It doesn't seem to help this. It's so weird. But part of that may be the mail-order pharmacy we have to use. A lot of their meds have not worked, so it's possible that the ones I have been using are bad.

I was hoping this was something to do with Celiac. But I am not sure. Doesn't seem to be many others having this problem. It's the scariest feeling though. Honestly. I am taking a decongestant and hope that helps but that makes me feel nausious, so who knows?

Thanks so much for replying. :) (I like your qoute, by the way.) :)

tarnalberry Community Regular
tarnalberry
Posted

albuterol won't help for an anaphylactic allergy - which can cause your throat to close. (it'll help with an asthmatic reaction, that can be similar, but different.) do go see an allergist - if you have an anaphylactic allergy, you need to carry an epi-pen around with you.

  • 3 weeks later...
mscriber Newbie
mscriber
Posted

I had that happen once and took Benadryl. can you take that? It worked for me, but was very scary while it was going on, but my Dr. was mad and said I should have been in the ER because my throat was so closed up. :o Oops!

aaascr Apprentice
aaascr
Posted

Take your decongestant with some food - otherwise you will definitely feel sick.

I had a fill-in allergy doctor prescribe an inhaler for me since my old prescription had expired.

And guess what? that inhaler (emergency) sucks. I would hate to think what would happen if I had a "closing your lungs down" attack (like when I ingest soy). Fortunately, I have an appointment in a few days and I am going to insist on

using one of the inhalers that actually works for me. Not all inhalers work the

same on everyone - yes, carrying an epi-pen is great idea!

tarnalberry Community Regular
tarnalberry
Posted

inhalers definitely work differently in different people - and if you've got asthma, while some docs will put you on long acting inhalers (like advair), you really have to carry a fast acting one too (like albuterol). ironically, the propellant used in MDI (metered dose inhalers) can be a _trigger_ to some people's asthma (some people like me!), and some doctors have a hard time believing it. DPI (dry powder inhalers) can be used instead (I use maxair... still makes me shakey, though). (And to make it yet worse, the generics and brand names DO affect people differently....)

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Carriefaith Enthusiast
Carriefaith
Posted

I find that the doctors in the ER are too busy and they just seem to want to get you out of there as fast as they can. They just want to give you a prescription and send you on your merry way. They don't seem to have the time to do a few simple tests to rule something out.

As an example, I went into the ER about 5/6 years ago with a horrible back injury that I got at work. I was in a wheelchair... I couldn't walk beacause I was in immense pain. When they were looking at my back they said something like, it could be nerve damage or a broken/busted back disk. They NEVER took an X-ray, which makes no sense what-so-ever (I mean broken disk vs. nerve damage? Pretty big difference!).

Anyway, they just gave me a prescription for tylenol 3 and said, take one tylenol 3 and 3 advil at a time for pain! NICE...

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
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    • knitty kitty
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      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

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      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

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      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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