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Blood Vs Stool Antibody Test?


hill5384

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hill5384 Newbie

I am new to the boards. I had my gallbladder removed about 7 weeks ago and since then have developed a lot of GI problems plus hives, tingling tongue and figertips. I also have Hashimotos Thyroiditis which is an autoimmune disease. I read that this makes me more predisposed for celiac. I have never had problems with wheat products in the past but maybe the surgery or a virus triggered it.

My doctor is testing me for gluten intolerance. It was a comprehensive gluten antibody blood test which was sent out for diagnosis. They told me it would take 12 days to get returned. Does this sound right?? Also, I have been told by a friend that the blood test is not as accurate as the stool antibody test done by Entero Labs (I think that is the name). Is anyone familiar with this and if my test come back negative...should I order a stool test as well just to be sure? Any help would be greatly appreciated.


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Lisa Mentor

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This article should be of interest to you.

Your friend is correct, blood testing is not always accurate. It can rule Celiac in, but it cannot rule it out. If yours comes back positive, it means that you do have Celiac. If it is negative, you may have Celiac or you may not.

Many people here have used Enterolabs and have been pleased with their results. They do not claim to diagnose Celiac, but rather they can test for sensitivities. I have not used them; and therefore, I do not recommend them.

I would suggest, if you have not done so, have a full metabolic blood panel done to check for any vitamins or mineral deficiencies.

gfpaperdoll Rookie

I have used enterolab.com & highly recommend them - especially if you get a negative blood test.

A lot of us do not have a positive blood test.

Although some people on this forum do not like Enterolab because he "is not published" in fact, some medical doctors do use Dr Fine's lab. Some doctors that are just trying to help their patients and are not hung up on ego trips. If you read the book "good calories bad calories" by Gary Taubes you will see a clear picture of how doctors and scientist are totally ignored when they publish a paper that the AMA or FDA do not approve, so it is a little more complicated than just publishing a paper - it is all a political mess controlled by big money - mostly from the drug companies and the insurance industry - and the huge grants from our government - the tax dollars that we pay... some diseases just cannot be cured because the drug companies & foundations would lose too much money...

fedora Enthusiast

I know it is hard to be patient. Hopefully your blood tests will help you. I also recommend the metabolic blood work if you haven't had it, just to rule out anything else. And check for vitamin mineral deficiencies.

I used enterolab, never had the bloodwork since I was already gluten free. I found it very helpful. I would have stayed gluten free without the stool test, but it has made it easier to not eat gluten at all. I was afraid I would have doubts without some evidence. I was right. I had doubts last week while thinking about pizza. So I made a gluten free pizza for breakfast, and one for lunch.

My daughters one celiac blood test( the PA did not request the whole panel. ugh. even after I asked her too) came back negative. I am now awaiting the enterolab results on her. She needs lab proof to stick with the diet. I understand.

If you don't need lab proof, then you could just go gluten free AFTER you get all your celiac bloodwork and the endoscope(if you get one) done. You can go gluten free and still do the enterolab stool test though. good luck

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      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
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