Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weird Symptom Questions


WhimsiKay

Recommended Posts

WhimsiKay Apprentice

Hi, everyone! So, I had a major gluten episode last night that has carried over to tonight. I've been really careful of late, so it was a total surprise -- and so bad, too!

We had gluten-free pancakes for dinner, and bacon. Within ten minutes of eating my first bit of bacon, I got hit by symptoms. Within the hour, it was full-blown. I checked the package of bacon again, and it doesn't say anything about gluten or wheat. It does says "smoke", though, and I'm wondering, could it be the bacon? Are nitrates bad, for that matter?

That said, I did have a plate of fries for lunch at a restaurant, and while I've had success there before, I also don't know if something I ate hours before would cause symptoms at night? Of course, my symptoms have always been worse at night, which has always been really weird for me. I'd have bread or whatnot for lunch, be fine, then around 6pm, start feeling it. Is that normal?

And if that's the case, could I have gotten THAT sick from cross-contamination hours before?

As if that wasn't enough, I did realize that the pan I cooked the pancakes in was one I never used for anything more solid than eggs, but the pan I cooked the bacon in was one I'd used for years to cook all sorts of gluteny things. Could I have fallen victim to gluten stuck in the non-stick pan?

In the meantime, over the past couple of days, I've been feeling extremely dehydrated. (Sorry for the detail here...) My urine is a kind of dark, rich yellow, which I've always associated with needing more liquids, but I've been drinking a lot, so I'm not sure what's going on! For example, I had a full, very large bottle of water today plus my green tea, and I still feel like my saliva is all thick and my mouth is dry, and I feel like I need more. This concerns me. Is this feeling a symptom of gluten-issues? Or is this what normal people have to deal with and I'm just getting used to the real-world of being able to absorb stuff better, and so need more? ^^;

Any thoughts you have would be great, and thanks a lot in advance. I tell you what, now that I know what it's like to live without intestinal cramps and pain, I sure get wimpy when I'm hit by it again. <_<


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



babysteps Contributor

ah, could even be what my hs history teacher called "multiple causation"

bacon - I am okay with "smoke", but "smoke flavor" or "natural flavors" (basically flavor is a codeword for highly processed, which may include wheat products as agents but not ingredients, don't you love how the labeling laws work) can affect me (once had a reaction to unsalted butter, then checked the ingredients - yup, "natural flavors")

fries - unless you double checked about that batch, it's possible that they could have used fryer for something with gluten before your fries this time around. trust but verify ;)

pan - others have reported definite issues. I didn't replace my nonstick pans, but I do put them through the dishwasher, and haven't noticed an issue for me

while initially my reactions were immediate (while at a restaurant, or within 20 minutes of eating), now they can take up to a day and a half to occur, and some posters cite a 2-3 day lag

hope you feel better soon!

Lisa16 Collaborator

Bacon makes my ears turn red and itch-- in my case, I think it is the nitrates. I have noticed this only recently-- since going gluten-free. Most processed lunch meat seems to do this to me.

However, I had a bad hotel breakfast experience that is a similar story. I consumeed three things and got incredibly sick (it was a 12 episode within 1 hour kind sick and the effects lasted 5-6 days. I got DH blisters too.) I had a plate of fresh fruit. I had a side order of bacon (and the waitress looked at the ingredients-- no wheat listed. It was a hormel product.) And I had a glass of cranberry juice from the fountain.

I thought it was the cranberry juice. I was sure it was the cranberry juice. Maybe it was the bacon. Maybe it was cc, but it was so severe that I am sure I actually ate some more major gluten.

Hang in there! I no longer eat breakfast in hotels.

Lisa

fedora Enthusiast

hi,

About your urine, if it does not go back to normal, you may want to get your blood sugars checked. That was my friend's first signs of diabetes. He got really thirsty, was drinking tons of water, but his urine was still very yellow and thick. He went to the dr. and found out he was diabetic.

Not to scare you. I think we ( including me) have a tendency to blame everything on gluten. I hope things get better for you. Take care,

aikiducky Apprentice

For me, increased thirst is a glutening symptom, and it goes away a few days later again. I just obey it and drink more after a glutening.

A reaction can come six hours after eating the glutened food, so it's quite possible that it was the fries. The time depends on how quick your immune system is to react I think, since the gluten reaction is actually a reaction of your immune system. With time and experience with the diet you start to learn what your individual time frame is.

Though it might be safer to retire the pan that you used to cook gluteny things in before, unless it's a stainless steel one and you can really scrub it clean.

If it was me I'd give the bacon the benefit of a doubt and try it again in a couple months time or so.

Pauliina

WhimsiKay Apprentice

Hey, thanks everyone! Good to know!

I'll keep an eye on all such symptoms and call it good. I did check with the place I ate and their fries fryer is completely separate from the fryer they use for the breaded products, but that said, I guess it's true you can't be sure about CC.

I did have more fries today (before I checked these replies, heh), so we'll see how I feel tonight. If bad, I know that all I had was a burger with no bun and fries, and lots of water and green tea!

Cheers,everyone!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,699
    • Most Online (within 30 mins)
      7,748

    RelievedP
    Newest Member
    RelievedP
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wends
      Hopefully the biopsy gives a conclusive and correct diagnosis for your daughter. Im in the UK and have been in the situation a few years ago of trying to rule celiac in or out after inconclusive results. Many symptoms pointing to it including the classic symptoms and weight loss and folate and iron deficiency. You have to play a waiting game. I also had the label of IBS and likely food allergy. Genetic test showed low risk for celiac but not no risk. It sounds like the Gastroenterologist is on it and hopefully will diagnose what it is correctly. Food hypersensitivity (allergy) can also cause similar symptoms and inflammation as well as mimicking IBS. Milk / dairy and wheat (cereal grains) being the biggest culprits. The “oesophagitis” and “gastritis” you mentioned can be caused by another gastrointestinal disorder called “eosinophilic gastrointestinal disorders”. These are named depending on which part of the gastrointestinal tract is affected. For example eosinophilic oesophagitis, eosinophilic gastritis, eosinophilic gastroenteritis, and more rare eosinophilic colitis. They are antigen (allergen) driven. When the blood test measuring anti-ttg antibodies is positive in absence of a positive ema test - which is more specific to celiac, this can also suggest food hypersensitivity (allergy). Usually delayed type allergy similar to celiac but not autoimmune if that makes sense. In this case the ttg antibodies are transient. Which happens. I’ve first hand experience. For info, evidence of villous atrophy too can be caused by food hypersensitivity. Not just by celiac disease. In Egid disorders the six food elimination diet, under a dietitian and gastroenterologist care, is the dietary protocol to figure out the culprit or culprits. Sometimes only two food elimination diet is used at first. The number one culprit is milk protein / dairy. Followed by wheat, eggs, soy, fish and seafood, and nuts. Most are only reactive to one food group or two. Most are only reactive to milk. Hope this is a helpful reply.
    • Bennyboy1998
    • Wends
      Wow, the system is crazy isn’t it? Maybe switch Doctors if you can. It’s surprising from what you’ve written it seems obvious it’s celiac disease. The “potential” diagnosis means celiac is developing and it basically just hasn’t done enough gut damage to be captured on the biopsy yet, and meet that “criteria” to satisfy the current system! Given the overwhelming evidence already - family history, positive ttg and ema. And your own experience and intuition which counts far more. And the labs being reproduced after gluten elimination and reintroduction- elimination and reintroduction diet is the gold standard too. Shame on the Doc and the system. What was the Marsh score? I’m guessing not 0 if it’s potential celiac. Meaning the autoimmune process has been triggered and started. Your daughter is obviously very healthy and her immune system is putting up a good fight. It can take years for the gut damage to build to a point where there’s overt symptoms and then a conclusive diagnosis, hence why many celiacs receive diagnosis later in life. You can prevent it. See the positive and the gift in that. Hopefully the gluten challenge confirms it, but if it doesn’t maybe get a second opinion?
    • cristiana
      @Gigi2025  Thank you for your interesting post.  Some of what you say chimes with something my gastroenterologist tells me - that he has clients who travel to France and find the same as you  - they will eat normal wheat baguette there without issue, for example.  His theory was he thought it might be to do with the locally sourced wheat being different to our own in the UK? But I have to say my own experience has been quite different. I have been to France twice since my diagnosis, and have been quite ill due to what was then (pre-2019)  poor labelling and cross-contamination issues.  My TTG test following my last visit was elevated - 'proof of the pudding', as we say in the UK!  It was not just a case of eating something like, say, shellfish, that disagreed with me - gluten was clearly an issue. I've also been to Italy to visit family a couple of times since my diagnosis.  I did not want to take any chances so kept to my gluten free diet, but whilst there what I did notice is that coeliacs are very well catered for in Italy, and many brands with the same ingredients in the UK are clearly marked on the front of their packaging that they are 'senza glutine'.  In the UK, you would have to find that information in the small print - or it puts people off buying it, so I am told!  So it seems to me the Italians are very coeliac aware - in fact, all children are, I believe, screened for coeliac disease at the age of 6.  That must mean, I guess, that many Italian coeliacs are actively avoiding gluten because, presumably, if they don't, they will fall ill?        
    • deanna1ynne
      Thank you both very much. I’m pretty familiar with the various tests, and my older two girls with official dxs have even participated in research on other tests as well. I just felt overwhelmed and shocked that these recent results (which I found pretty dang conclusive after having scott clean labs just six months ago) would still be considered inconclusive. Doc said we could biopsy in another six weeks because my daughter was actually way more upset than I anticipated about the idea of eating it for years before doing another biopsy. It doesn’t hurt her, but she’s afraid of how it may be hurting her in ways she can’t feel. She’s currently eating mini wheats for breakfast, a sandwich with lunch, and a side of pasta along with every dinner, so I’m hoping we’re meeting that 10g benchmark mentioned in that second article!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.