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Blood Tests


chasing4

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chasing4 Rookie

A little over 3 weeks ago, our doctor diagnosed dd as gluten sensitive because her blood test showed an elevation with inflammation, but her biopsy was negative. So she technically hasn't been diagnosed as celiac.

I want to feed everyone in my family the same foods, because I don't want to make different things. But, I'm worried that if I do, and any of the kids do have the same problem, how will we catch it? DD's twin sister is actually under the 3% percentile in weight, so I'm already suspecting something with her. The other 2 aren't really showing any signs.

Should I have my other kids get the celiac panel to find out if there is anything there before everyone goes gluten-free? Their ages will be almost 6, almost 4 and 2.


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Hi, I have twins too, they are a 7 year old boy and girl. They both have symptoms,though different from each other.

The medical recommendation is you do get them all the blood test. It may come back negative, but they could still be gluten sensitive too. sometimes people with no symptoms have positive blood tests. The main thing is even if at home they are all on the same diet, the ones who don't know for sure will probably eat gluten away from home.

My daughter's blood work was negative, but she is cranky, moody, depressed, has delayed growth, and mouth sores. Plus I am gluten intolerant. I ordered her the enterolab stool test. We are waiting on it.

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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