Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When Will I Feel Better?

mammajamma

Recommended Posts

mammajamma Rookie
mammajamma
Posted

I was just wondering what everyone else's experiences were like... I got the official diagnosis on Thursday and started the gluten-free diet immediately. As of Saturday I already felt some minor chnages for the better (was it all in my head????). Saturday night, all of a sudden, my belly started hurting again. I ate very little today (Sunday) but as soon as I ate some dinner it started hurting again...

when will I start to feel better? Is this typical, or am I doing something wrong? I thought I was being very careful...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


flourgirl Apprentice
flourgirl
Posted

Hi. Some people feel better immediately. Some take months. I think most of us go up and down like a yoyo, especially at first as we learn about the foods, weed out other intolerances, and as our bodies adjust. We need time to heal, time for the body's systems to detox, and to level out with healthier living. You'll probably make mistakes with the diet as you learn about what is safe, what is not, what you can't digest because you're still inflamed. Intolerances other than gluten may be temporary or permanent.

I've been gluten free for 6 months now and am finally starting to feel halfway decent. I was very ill and had a lot of damage, was very impatient for improvement. It's so nice to know that I'm healing and continuing to feel better. On the way I've had depression (both physical and emotional causes), panic over food and eating, lots of doubt.

I hope that you can heal quickly and relatively easily. I think that the best thing you can do for yourself is to read, read, read, ask questions, keep a food diary if you're having digestive difficulties. If your doctor is not up on Celiac disease...then take some info with you on your visits (I do) about testing, about related issues, about anything that is causing you concern. This forum has been a Godsend to me, I hope you make good use of it also. There is a wealth of info here, and many people who have been where you are and are willing to help.

laurelfla Enthusiast
laurelfla
Posted

Flourgirl gave you lots of excellent advice! I would just add to stay away from milk for a little while (some people have trouble handling it when they are healing) as well as things like broccoli that can give you gas... I continued to feel like I looked pregnant after I started the diet and I had to weed out things like broccoli, beans, etc. until my system was doing better. Hang in there! There are much better times ahead of you and we're all here for support!

kenlove Rising Star
kenlove
Posted

It just takes time, not only for the healing process but to get used to the cross contamination issues that can cause the pain and discomfort. Other threads on the forum go into how some of us have had to replace all the kitchen utensils, some pots and pans as well as other items. Even tiny amounts can cause us problems if ingested by accident. If others in your house are eating gluten containing foods than chances are your getting infected by them.

Good luck

Ken

I was just wondering what everyone else's experiences were like... I got the official diagnosis on Thursday and started the gluten-free diet immediately. As of Saturday I already felt some minor chnages for the better (was it all in my head????). Saturday night, all of a sudden, my belly started hurting again. I ate very little today (Sunday) but as soon as I ate some dinner it started hurting again...

when will I start to feel better? Is this typical, or am I doing something wrong? I thought I was being very careful...

mammajamma Rookie
mammajamma
Posted
  • Author

Thanks for the responses everyone, I'm already so thankful for this forum. I had some yogurt for breakfast and was soon doubled over with nausea... however, lunch went down fine, very little dairy... so maybe I will have to watch that for a while. It just stinks that I have to eliminate a safe and comfortable food already... but I will adjust...

kenlove Rising Star
kenlove
Posted

When I first got sick I would throw up every morning. Was pretty sure it wasnt morning sickness considering I'm male.

Doc told me to have a slice of bread to calm my insides. Took them 6 months to figure it all out.

Yeah we do have to eliminate a lot of comfort foods but there are so many new things to try. I never would have had these alternative pastas,flours and grains if I didnt get celiac. It's rather fun to experiment with them.

So you can have fun while you adjust!

good luck

ken

Thanks for the responses everyone, I'm already so thankful for this forum. I had some yogurt for breakfast and was soon doubled over with nausea... however, lunch went down fine, very little dairy... so maybe I will have to watch that for a while. It just stinks that I have to eliminate a safe and comfortable food already... but I will adjust...
ThatlldoGyp Rookie
ThatlldoGyp
Posted
I was just wondering what everyone else's experiences were like... I got the official diagnosis on Thursday and started the gluten-free diet immediately. As of Saturday I already felt some minor chnages for the better (was it all in my head????). Saturday night, all of a sudden, my belly started hurting again. I ate very little today (Sunday) but as soon as I ate some dinner it started hurting again...

when will I start to feel better? Is this typical, or am I doing something wrong? I thought I was being very careful...

Hi, it can take months to feel better sometimes. You may have had an accidental cross contam and ingested gluten. I found that after I went gluten-free, my reaction to gluten was way worse than when I was eating it regularly!

I would really suggest that you drop milk products except yogurt if you generally tolerate it, go on a low fat diet, try to eat mostly cooked veggies, avoid onions and other gassy foods for now. Clean every section of your kitchen, get your own set of gluten free cutting boards, cooking utensils,etc. Toss out or mark any foods that may have been used with gluten products and get your own stuff that is not to be used by anyone eating gluten (think butter, peanut butter, jelly, etc.) Check your handlotion and lipstick, (if you are christian)do NOT eat any communion wafers unless they are gluten-free. (I'm forbidden by my religion to eat gluten products now. Like mostly local foods,kosher,organic,and vegetarian was not enough of a challenge, oy!) Check everything that goes into your mouth, twice. Think whole foods and high quality. Good luck and I hope I helped. Happy Healing!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
    5. trents
      - trents replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.