Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Accidently Glutening Myself?


mills3280

Recommended Posts

mills3280 Newbie

I


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Well, a few things I see from your diet description are as follows:

Fries from McDonald's - I've read on this board that they are not gluten-free.

Dairy products - Many who start the gluten-free diet need to avoid dairy, at least until the gut heals. This can take months, but some expect to always be off dairy.

Mixed Nuts - Many on this board have mentioned getting glutened by those.

Also corn, nuts, and nightshades are commonly a problem, especially at first.

I do know Ore-Ida unseasoned frozen fries (like the shoestrings) are gluten-free.

If you have any wooden spoons from before going gluten-free, toss them out. Same goes for cutting boards, non-stick pans, cast iron pans, and toasters/toaster ovens. Basically anything that isn't a smooth surface, like stainless steel, glassware, etc. Things you can easily get squeaky clean.

Oh, and do check your skin/hair are products, dish and laundry soaps, fabric softeners, etc.

I'd also recommend a good methylcobalamin (B12) supplement. The sublingual type is the best, and of course make sure it's gluten-free. Avoid cyanocobalamin, as that one is actually made with cyanide :blink::o

I hope you get it figured out soon!

Welcome to the board!

mills3280 Newbie

Thanks.

I usually try and read the labels on the mixed nuts pretty well.

The dairy thing is interesting. Cause I also have been eating a lot of beans which makes me have gas to say the least. I wonder if that along with the dairy could be making things heal slower in the gut.

Anyone else have any insight into if that could be slowing down the healing process?

Much appreciated.

mills3280 Newbie

P.S. So does that mean I should avoid Lactaid milk along with yogurts/cheeses? Or is Lactaid okay?

Ursa Major Collaborator
P.S. So does that mean I should avoid Lactaid milk along with yogurts/cheeses? Or is Lactaid okay?

In order to be casein free (which is worth a try to see if it helps) you have to eliminate ALL dairy, including lactaid milk and cheeses as well as yogurt.

What I noticed when looking at your menu was, that you are no getting enough fat. In fact, you hardly get any at all!

Our bodies need fat to function. And I mean saturated fat (not hydrogenated fats, though) like fat from meats (lard is one of them as is beef tallow and chicken fat, those are, contrary to popular belief, healthy fats). Another healthy saturated fat is coconut oil. Make sure you get the non-hydrogenated, cold pressed kind if you are going to try it.

You are definitely not getting enough omega 3 fatty acids. Fish oil (cod liver oil if you aren't getting a lot of sun) is the best source.

Every cell in our body needs fat. If you don't get enough fat, your body can't function properly.

Also, unless you are intolerant to them, eggs are very healthy. And again, it is complete nonsense that it is unhealthy to eat more than three eggs a week. You could eat four a day and it wouldn't be too much.

Eggs also are a great source of vitamin B12.

mills3280 Newbie
In order to be casein free (which is worth a try to see if it helps) you have to eliminate ALL dairy, including lactaid milk and cheeses as well as yogurt.

What I noticed when looking at your menu was, that you are no getting enough fat. In fact, you hardly get any at all!

Our bodies need fat to function. And I mean saturated fat (not hydrogenated fats, though) like fat from meats (lard is one of them as is beef tallow and chicken fat, those are, contrary to popular belief, healthy fats). Another healthy saturated fat is coconut oil. Make sure you get the non-hydrogenated, cold pressed kind if you are going to try it.

You are definitely not getting enough omega 3 fatty acids. Fish oil (cod liver oil if you aren't getting a lot of sun) is the best source.

Every cell in our body needs fat. If you don't get enough fat, your body can't function properly.

Also, unless you are intolerant to them, eggs are very healthy. And again, it is complete nonsense that it is unhealthy to eat more than three eggs a week. You could eat four a day and it wouldn't be too much.

Eggs also are a great source of vitamin B12.

Copy that. I have no problem adding eggs to my diet. in fact I'll probably do that for breakfast since i'll be cutting out the yogurt and smoothies.

Are Egg beaters okay or is something bad added to them?

Not a big fish fan. Would fish oil the the vitamin/pill form suffice?

Cherry Tart Apprentice

Hello! I just wanted to add that you really want to watch the instant/powdered mashed potato ingredients too. Manufacturers often add wheat to make the mash smooth and thick. Just a thought ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator
Copy that. I have no problem adding eggs to my diet. in fact I'll probably do that for breakfast since i'll be cutting out the yogurt and smoothies.

Are Egg beaters okay or is something bad added to them?

Not a big fish fan. Would fish oil the the vitamin/pill form suffice?

If you just use normal eggs you KNOW that they are okay! I wouldn't trust egg beaters.

The Carlson's cod liver oil doesn't taste fishy and is the best there is. If you take the pills, you would have to take a lot to get enough. You would only need to take one tablespoonful once a day. Get the lemon flavoured one, truly, it is fine. I have tried other cod liver oils and they were so gross that I couldn't handle taking them more than a few days. But I've been taking the Carlson's oil for over two years now, and I am still taking it.

mills3280 Newbie

Well I'll give the eggs and fish oil a chance.

any thoughts on the beans and mexican food? I dont make it spicy or anything like that, but it still does cause gas, if the gut is still recovering should I ease of that stuff or is it fine?

Ursa Major Collaborator
Well I'll give the eggs and fish oil a chance.

any thoughts on the beans and mexican food? I dont make it spicy or anything like that, but it still does cause gas, if the gut is still recovering should I ease of that stuff or is it fine?

Some people just do terrible with beans. I have never been able to eat them without getting terribly bloated and gassy (much more so than most people).

If you find that something is bothering you, it would be wise to not have it for a while before trying to reintroduce it.

  • 2 weeks later...
mills3280 Newbie

So I've cut out the dairy and have been eating turkey bacon w/ eggs in the morning instead of my smoothie. I couldnt find the fish oil recommended so i've been taking the pills for now.

I feel like ive had a bit more energy and the few aches and shooting pains i was having seem to be gone.

i'll keep updating.

babysteps Contributor
Well I'll give the eggs and fish oil a chance.

any thoughts on the beans and mexican food? I dont make it spicy or anything like that, but it still does cause gas, if the gut is still recovering should I ease of that stuff or is it fine?

I love eggs.

I don't eat that many beans (more a rice person myself), but have read on these forums some find beans easier when they are soaked for at least 24hrs. If using canned, drain & rinse them well. apparently many beans have a coating that can be hard (for some at least) to digest, the soaking and rinsing helps deal with that before it hits your gut. Worth a try!

you may want to go easy on spices until your system really stabilizes. You could try a 3-day holiday from spicy food, then see how your body reacts when you re-introduce it. Some folks find herbs (oregano, basil, anything that was a leaf, not a seed or bark) easier to tolerate but still plenty tasty.

good luck, hope you feel better & better!

loraleena Contributor

Please make sure your turkey bacon is gluten free

  • 5 weeks later...
AshleyRay Newbie

This is my first time on the forum. I was diagnosed with severe celiac a year ago. My docs claimed that I had the worst mal-absorption they had ever seen. It took 12 years for my diagnosis - many doctors, procedures, diagnosis', etc. I finally sought a more "natural" practitioner who caught it.

So... my take. I have not willingly touched gluten since the diagnosis. We do not have gluten in the house and I avoid place with airborne (yes, airborne can get me). Early into the diagnosis I was sick for days with even cross contamination. Along with the gluten problem I have an allergy to casein. Casein is a common "side allergy" to the celiac disease. I have stayed off of casein for a hear as well. In the beginning I was eating rice (plain) and a steamed vegetable. I was miserable and it took almost ten months before I saw an improvement. You have to be strict! You have to find all underlying problems secondary to the celiac. I still can not eat things with "a lot of flavor." The stomach takes a long time to heal and acts like an open wound with other irritants. Keep a diary of all that you eat and the way you feel after meals. Cut your diet down and introduce new (common allergens) foods. Give it time and DO NOT cheat. I have been cross-contaminated several times and suffered for weeks. Also... check your shampoo! I realized (months into the diet) that my favorite shampoo had wheat protein. It has helped the hair loss but not cured the problem.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,026
    • Most Online (within 30 mins)
      7,748

    Amari Love
    Newest Member
    Amari Love
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.