Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Test Questions


MJE

Recommended Posts

MJE Newbie

First, thanks for taking the time to look at my question and provide an answer.

I have symptoms of malabsorption -- low RBC, WBC, hematocrit, hemoglobin, magnesium, ALT, AST, creatinine, B12, vitamin D, etc. Iron is OK. I've got a whole host of physical symptoms too. I was recently diagnosed with Hashimoto's, but I don't need meds for that yet.

My doctor tested me for celiac disease. My TTG was 1 (under 19 normal), my IGA was 7 (under 19 normal), my IGG was 0, and my total IGA was 195 (normal 71-374).

OK -- maybe it's not gluten sensitivity. But does the presence of ANY anti-gliadin IGA and ANY TTG mean something is going on? Or do most people naturally have some of this floating around in their blood? It would seem logical to think antibodies are there only if there's a problem, even subclinical, but this may be faulty reasoning.

Also, I've had a rash on my hand that seemingly is better now that I'm off wheat. IF (and it's a big IF) the rash is DH, do the antibody tests present differently?

With one lapse, I've been off gluten for three weeks. I'm not as bloated or "backed up". When I ate the sandwich and had the beer (yes, I chose it to see if I had a reaction), I was very uncomfortable the next day. More gas and discomfort, and it completely stopped my system for 36 hours. It's a very unorthodox test, but it could have some meaning.

Thanks again for your time.

Melissa


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



horsesjapan Apprentice

I keep reading that the blood tests are not totally reliable. You could order the genetics test from enterolab which would tell if you have the genes for celiac or gluten intolerance. If those are negative, then I'm not sure what to say, except that maybe there are more genes involved than they currently are aware of, or it's not a celiac/gluten intolerance issue. Bottom line though, if you feel better off gluten then by all means stay off gluten!

Nancy

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - julie falco replied to elisejunker44's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Schar's products contain wheat!

    2. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Second chance

    3. - Scott Adams replied to Florence Lillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Gluten-Mimicking Proteins that can affect some Celiac individuals.

    4. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Second chance

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,604
    • Most Online (within 30 mins)
      7,748

    JV2026
    Newest Member
    JV2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • julie falco
      thank you that is good to know that it is safe for celiac people
    • Jmartes71
      Current careteam is still up in the air about my celiac thanks to me googling "celiac specialist" what popped  up was once known as a good name hospital back in the days. I went in for answers for my declining health, it was the autoimmune part that did me in, being a former bus driver.I read that in my medical records so easily downplayed, i refused the gluten challenge! Why the hell would I eat Gluten when im Celiac coming to them for answers when my body is falling apart? Glutenfree since 1994. They did unnecessary colonoscopy KNOWING im glutenfree. A celiac specialist would know that would be pointless to do if not eating gluten and it was done!Im so angery with that hospital for not explaining celiac disease and withholding information, Downplaying my ailments , mental distress,  causing more health issues, ect. All this could have been avoided If medical records were sent, when asked, explained and done properly. Im so angery.I do have the celiac dietitian on here in June and linked her up to my current health care yesterday, fingers crossed hopefully with that, the understanding of celiac is explained it's not just a food allergy will be understood. 
    • Scott Adams
    • Scott Adams
      Thank you for sharing your experience, Florence. It’s important to clarify, though, that proteins like zein in corn, panicin in millet, and kafirin in sorghum are not considered gluten and have not been shown to trigger the same autoimmune intestinal damage seen in celiac disease. Some people with celiac disease do report symptoms with certain gluten-free grains, oats, or other foods, but that reflects individual intolerance or sensitivity—not a proven “gluten-mimic” effect that damages the small intestine. Certified gluten-free oats are considered safe for most people with celiac disease, though a small subset may react to avenin. If specific foods consistently cause symptoms for you, it makes sense to avoid them personally, but it’s helpful for readers to know that these foods are still medically classified as gluten-free and generally safe for the broader celiac community.
    • Scott Adams
      It’s true that awareness of celiac disease can vary among physicians, particularly outside of gastroenterology, and many patients end up educating their own providers. Reaching out to someone you trusted for 25 years makes sense if you felt heard and supported. That said, celiac disease management often benefits from a team approach, including a knowledgeable primary care provider and, when needed, a gastroenterologist or dietitian familiar with gluten-related disorders. Advocating for yourself is not unreasonable—it’s part of managing a chronic condition. If your current provider relationship isn’t working, it’s appropriate to seek care where you feel respected and properly supported.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.