Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Boston/london

aileendq

Recommended Posts

aileendq Newbie
aileendq
Posted

Hi all,

I'm new here. I live just shy of Boston, MA, (Brookline) and I was wondering if there are any Celiac groups close to home. Also- is there a comprehensive list anywhere with retailers that carry gluten-free food/beverages?

On a side note, I am contemplating a trip to the UK (London) in September. Can anyone suggest travel tips for a Celiac and/or placed to dine in London that are Celiac-friendly?

Thank you in advance!

PS: Oops- I just realized these boards already exist. My bad! I'll look there.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Harri Real Newbie
Harri Real
Posted
Hi all,

I'm new here. I live just shy of Boston, MA, (Brookline) and I was wondering if there are any Celiac groups close to home. Also- is there a comprehensive list anywhere with retailers that carry gluten-free food/beverages?

On a side note, I am contemplating a trip to the UK (London) in September. Can anyone suggest travel tips for a Celiac and/or placed to dine in London that are Celiac-friendly?

Thank you in advance!

PS: Oops- I just realized these boards already exist. My bad! I'll look there.

I'm from the UK, so for London,

Personally, I've never been to resturant that wont cater for me... Maybe in "posh" resturants they may not alter their dishes for freaks like us. But honestly, never had a problem anywhere.

Supermarkets, the 2 biggest are Sainsburys and Tesco, they both have really good Coeliac/Free from ranges, so no problem for things like bread and biscuits... everything.

Have a search around on the internet. You will find Gluten free hotels in london aswell.

Make some sandwiches before the flight aswell. Just incase those Gluten free "aerospace" meals aren't quite as tasty as you thought they might be!

  • 1 month later...
efriedm2 Apprentice
efriedm2
Posted

Hi Aileen,

Definitely go to London! I'm just back in the US after living in London for a year. gluten-free life is just easier in the UK, and there are lots of Celiac-friendly options in London...

Harri's right, the big supermarket's all have gluten-free sections, and I was a fan of Waitrose, which has a handful of locations around the city. Check out the Orgran brand at Waitrose (it's Australian and I haven't been able to find it in the US so far). Also, Mark's and Spencer Simply Foods (all over town) is great for lunch - all the food is their own brand and they label allergens very thoroughly. You can pick up fresh fruit and a salad for lunch. I think there are 2 or 3 that are gluten-free, but I stuck to the Tomato and Avocado.

As far as restaurants...

Greens & Beans Cafe, Drummond Street (2 min walk from Euston Station) has gluten-free menu items like pasta/pizza. I ate there regularly, they are very understanding, and I never had a problem. They also have take-away food, but are only open until about 5

Food For Thought, Neal Street (I believe) in Covent Garden - a take-away lunch kind of place. They're very vegan/allergy oriented and always have gluten-free options

Rasa, Charlotte Street (north of Oxford Street in Fitzrovia) - Indian food; I never got to eat here, but always meant to, since I've read that they are aware of Celiac and able to deal with it

Yo Sushi chain, tons of locations - my favorite place! Their website has a full allergen listing; many dishes contain gluten, but there are also lots of gluten-free options - I always got Edamame, Cucumber Maki and Smoked Salmon and Chive Maki.

The River Cafe - a London classic, Italian. They marked up my menu to show me what I could/could not eat. But the cooking is so simple and seasonal that most dishes didn't need modification. It's very expensive though, so a good idea might be just going for dessert - they usually have a gluten-free sorbet.

There are many others, as London's got so much to offer. And hit the pub, cider is gluten-free...

Hi all,

I'm new here. I live just shy of Boston, MA, (Brookline) and I was wondering if there are any Celiac groups close to home. Also- is there a comprehensive list anywhere with retailers that carry gluten-free food/beverages?

On a side note, I am contemplating a trip to the UK (London) in September. Can anyone suggest travel tips for a Celiac and/or placed to dine in London that are Celiac-friendly?

Thank you in advance!

PS: Oops- I just realized these boards already exist. My bad! I'll look there.

munkee41182 Explorer
munkee41182
Posted

I live in Lowell, work in Waltham. A friend of mine told me about HealthVilli meetings at Mass Bay College Open Original Shared Link

I haven't had a chance to check them out but she enjoys going to them.

  • 2 months later...
Michelle B Newbie
Michelle B
Posted

I know two gluten-free resturants in London -

The Mermaid, in Leicester Square, does Fish and Chips in gluten-free batter - and it's lovely.

In the O2 Dome, in Greenwich, there's a sausage cafe, that actually does two different kinds of gluten-free sausage - and also does dairy free mash

Any Wetherspoons (usually got moon in the title - there's a Moon Under Water in Leicester Square) marks what on their menu is gluten-free.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Rejoicephd
      - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

      Wow what a helpful article!! I am just seeing this now but I hosted a small group of family for Thanksgiving at my house this year and I did some of these things- got a butterball gluten-free turkey, got gluten-free stuffing, had a few gluten-free sides, and a gluten-free nothing-Bundt-cake. I had other non gluten-free things there too for others, and I also...
    2. Scott Adams
      0

      Rainforest Cafe Fined After Child's Severe Allergic Reaction: What It Means for Gluten-Free Safety

    3. marion wheaton
      - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    4. trents
      - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a...
    5. BlessedinBoston
      - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,416
    • Most Online (within 30 mins)
      7,748
    Heather8280
    Newest Member
    Heather8280
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.