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May Have Celiac

melharris

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melharris Newbie
melharris
Posted

Hello - my name is Missy. I am totally new to this forum, and new to celiac. For the past week, I've been doing nothing but reading about this condition, hoping that it's not me, but realizing that it very well could be. Like most of you, I suspect, I have had many a test, including sigmoidoscopy, colonoscopy, and barium enema. They showed nothing, yet I have daily but not constant lower abdomen pain on both sides, and also gurgly stomach after eating. I also get bouts of weakness which I have earlier attributed to intake of artificial sweetners. Lactose intolerance has also made its way into my life in the past 2 or 3 years when I had no problem before that. I think I should try the gluten free diet, however, I am scared to death of it. I love to eat, and love to eat out. I plan on speaking with my gastroenterologist about the diet, but can anyone give me some ideas of what to order when eating out?? Is there anything to eat at an Applebee's or McDonalds, Arby's, etc? It is so overwhelming, I don't know where to start. I appreciate any advice you can give. Thanks for listening.

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lizard00 Enthusiast
lizard00
Posted

Welcome to the forum!!

I love to eat too!!! And believe it or not, eliminating gluten has really opened up the foods that I eat. Which has really only made me even more of a foodie. I ate healthy before, but going gluten-free has really helped me to experiment with foods I may not have before, and my diet is much more diverse and healthy than before.

Honestly, there are only a few, and I mean few, places that I eat. Mcdo's has a gluten free list on their website, but at any restaurant, ESPECIALLY fast food, the risk of contamination is high. There are two places as of right now, that don't make me sick. Chipotle and Mimi's Cafe. There are a few big chains that have gluten-free menus, too. (outback, bonesfish, carrabas.... those are the ones that come to mind, but there are others)

My suggestion would be to decide how long is long enough to do the elimination before you try it again. I would suggest at least a month to 6 weeks, but that all depends on you. Then plan your first week, because that is the hardest. For me, after the week was over, things were much easier. I had gotten over the "OMG, what am I going to do without bread, or couscous?" and realized it wasn't nearly as bad as I initially thought. And I felt better too, which was a huge incentive to keep going.

Hope that helps a little!!! Stick around, someone else with chime in with other ideas. And if you have any other questions, I would be hard pressed to find better information elsewhere!!

PeggyV Apprentice
PeggyV
Posted

I dont eat much fast food, but Wendys has food that is supposed to be gluten free. My favorite is Pei Wei or PF Changs. They both have a glutten free menu and I have had good luck. At least in Texas, I find that I have good luck with most Mexican food resturants. I generally stick to the beef, because I read somewhere that some chicken can have glutten added to it. You can always to salads with Oil & viniger. I love vegtables so that is my lunch alot.

purple Community Regular
purple
Posted
I dont eat much fast food, but Wendys has food that is supposed to be gluten free. My favorite is Pei Wei or PF Changs. They both have a glutten free menu and I have had good luck. At least in Texas, I find that I have good luck with most Mexican food resturants. I generally stick to the beef, because I read somewhere that some chicken can have glutten added to it. You can always to salads with Oil & viniger. I love vegtables so that is my lunch alot.
lizard00 Enthusiast
lizard00
Posted
I dont eat much fast food, but Wendys has food that is supposed to be gluten free. My favorite is Pei Wei or PF Changs. They both have a glutten free menu and I have had good luck. At least in Texas, I find that I have good luck with most Mexican food resturants. I generally stick to the beef, because I read somewhere that some chicken can have glutten added to it. You can always to salads with Oil & viniger. I love vegtables so that is my lunch alot.

Thanks for the reminder of Pf Changs/Pei Wei. I don't eat there much, but Pei Wei hasn't bothered me either. They have those YUMMY lettuce wraps.

purple Community Regular
purple
Posted

Hi, I am new at this computer/forum/celiac/gluten stuff, so sorry if I don't do this right! I read that Wendy's frostys, potatoes and chili are gluten-free but research it for yourself. My daughter doesn't have trouble at Panda Express nor Chapala's, if she orders corn tortillas. She is new at being Gluten-Free. She ate at a chinese place last night and her tummy hurt from it.

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    • Matthias
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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
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