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Headaches?

JustCan

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JustCan Explorer
JustCan
Posted

Need your expert opinions. We have a friend who is suffering from extremely painful cluster headaches to the point that someone had to drive him home from work today. He's also often very tired and gets sick more than average (colds and stuff). Over the past few weeks, he's been to several doctors and the ER and had tons of tests done. They haven't found anything. He did mention that he used to think the headaches were related to beer but doesn't think so anymore. Headaches were one thing that never happened to me so my question to all of you is: Did you have severe headaches before getting diagnosed? The beer thing is just a huge red flag for me...

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MELINE Enthusiast
MELINE
Posted
Need your expert opinions. We have a friend who is suffering from extremely painful cluster headaches to the point that someone had to drive him home from work today. He's also often very tired and gets sick more than average (colds and stuff). Over the past few weeks, he's been to several doctors and the ER and had tons of tests done. They haven't found anything. He did mention that he used to think the headaches were related to beer but doesn't think so anymore. Headaches were one thing that never happened to me so my question to all of you is: Did you have severe headaches before getting diagnosed? The beer thing is just a huge red flag for me...

Yes, extremely painful headaches was one of my symptoms, and still is when I get CC.

Best wishes for your friend..

lizard00 Enthusiast
lizard00
Posted

Add me to that list. Throbbing headaches... and I get them too when I get glutened. It's the first sign...

Asillem4 Newbie
Asillem4
Posted

Looking back, my husband has had a lot of symptoms of celiac disease over the years. He even sometimes gets the mystery rash (it goes away quickly, unlike mine which seems to love me). His headaches are debilitating.

I've been telling him to keep a food diary because I believe a lot of his problems are either diet or medication related.

Well, we're soon to be gluten-free and when he has problems with his tummy, headaches, skin irritations, I have no doubt we'll be able to quickly narrow it down to something he ate that is different from a gluten-free diet.

Your friend needs to think about a food and activity diary. It's hard to convince someone how important things like that are though. Don't loose your mind if he shrugs it off and macho's up.

RiceGuy Collaborator
RiceGuy
Posted

Besides gluten, I do know that MSG can cause headaches and migraines. Beer does contain MSG, as does basically anything made with yeast. Obviously, most people tolerate the typical amounts of MSG found in various foods, but many people do find that they are sensitive to it.

JustCan Explorer
JustCan
Posted
  • Author

Thanks everyone! My husband already suggested a food diary to him so we'll see what happens.

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    • AlwaysLearning
      Gluten related ??

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      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
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      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
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      Gluten related ??

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