Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Headaches?

JustCan

Recommended Posts

JustCan Explorer
JustCan
Posted

Need your expert opinions. We have a friend who is suffering from extremely painful cluster headaches to the point that someone had to drive him home from work today. He's also often very tired and gets sick more than average (colds and stuff). Over the past few weeks, he's been to several doctors and the ER and had tons of tests done. They haven't found anything. He did mention that he used to think the headaches were related to beer but doesn't think so anymore. Headaches were one thing that never happened to me so my question to all of you is: Did you have severe headaches before getting diagnosed? The beer thing is just a huge red flag for me...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MELINE Enthusiast
MELINE
Posted
Need your expert opinions. We have a friend who is suffering from extremely painful cluster headaches to the point that someone had to drive him home from work today. He's also often very tired and gets sick more than average (colds and stuff). Over the past few weeks, he's been to several doctors and the ER and had tons of tests done. They haven't found anything. He did mention that he used to think the headaches were related to beer but doesn't think so anymore. Headaches were one thing that never happened to me so my question to all of you is: Did you have severe headaches before getting diagnosed? The beer thing is just a huge red flag for me...

Yes, extremely painful headaches was one of my symptoms, and still is when I get CC.

Best wishes for your friend..

lizard00 Enthusiast
lizard00
Posted

Add me to that list. Throbbing headaches... and I get them too when I get glutened. It's the first sign...

Asillem4 Newbie
Asillem4
Posted

Looking back, my husband has had a lot of symptoms of celiac disease over the years. He even sometimes gets the mystery rash (it goes away quickly, unlike mine which seems to love me). His headaches are debilitating.

I've been telling him to keep a food diary because I believe a lot of his problems are either diet or medication related.

Well, we're soon to be gluten-free and when he has problems with his tummy, headaches, skin irritations, I have no doubt we'll be able to quickly narrow it down to something he ate that is different from a gluten-free diet.

Your friend needs to think about a food and activity diary. It's hard to convince someone how important things like that are though. Don't loose your mind if he shrugs it off and macho's up.

RiceGuy Collaborator
RiceGuy
Posted

Besides gluten, I do know that MSG can cause headaches and migraines. Beer does contain MSG, as does basically anything made with yeast. Obviously, most people tolerate the typical amounts of MSG found in various foods, but many people do find that they are sensitive to it.

JustCan Explorer
JustCan
Posted
  • Author

Thanks everyone! My husband already suggested a food diary to him so we'll see what happens.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,203
    • Most Online (within 30 mins)
      7,748
    Sarahmegan
    Newest Member
    Sarahmegan
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.