Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wake Up 3-4 Times Every Night

Leslie C.

Recommended Posts

Leslie C. Newbie
Leslie C.
Posted

I have not slept well for about 15 years now and thought it was all hormonal. I wake up every night about 3-4 times. I was diagnosed 6 weeks ago with Celiac. When I went back to the doctor yesterday for a follow-up, I mentioned that I'm still not sleeping well. He explained that it should get better as my intestines heal and my body gets back on track. Have any of you found that you sleep better after being on the diet for awhile? I'm hoping that I can look forward to a really good nights sleep in the future.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RiceGuy Collaborator
RiceGuy
Posted

Most of the improvement in sleep patterns came once I started taking a sublingual methylcobalamin (B12). I'd highly recommend it. There is no known level of overdose, so take all you want. The recommended dosage is 3-5mg per day, preferably spaced throughout the day rather than all at once. The 1mg strength seems like a good way to do that. Just make sure it's the type I mentioned, because the typical B12 supplement (cyanocobalamin) is not nearly as effective, and contains cyanide.

There are no doubt other nutrients to consider, and I'm sure others will chime in with their thoughts and experiences.

HTH

kenlove Rising Star
kenlove
Posted

I used top wake up every hour almost on the hour. After a few months of being totally gluten-free I could sleep though the night again.

I started the B12 Rice Guy mentioned becasue after a year of gluten-free my energy level was still pretty low and the B12 helped a lot with that.

Being TOTALLY gluten-free is really important though.

Good luck

Ken

I have not slept well for about 15 years now and thought it was all hormonal. I wake up every night about 3-4 times. I was diagnosed 6 weeks ago with Celiac. When I went back to the doctor yesterday for a follow-up, I mentioned that I'm still not sleeping well. He explained that it should get better as my intestines heal and my body gets back on track. Have any of you found that you sleep better after being on the diet for awhile? I'm hoping that I can look forward to a really good nights sleep in the future.
Leslie C. Newbie
Leslie C.
Posted
  • Author

Can you tell me please where you get your B12? I found something on the internet called TriVita Sublingual B-12, B-6 & Folic Acid tablet, and it sounds pretty good.

kenlove Rising Star
kenlove
Posted

I think mine is Nature Made from Costco. Just make sure it's gluten free, Don't know Trivita.

Ken

]

Can you tell me please where you get your B12? I found something on the internet called TriVita Sublingual B-12, B-6 & Folic Acid tablet, and it sounds pretty good.
RiceGuy Collaborator
RiceGuy
Posted
Can you tell me please where you get your B12? I found something on the internet called TriVita Sublingual B-12, B-6 & Folic Acid tablet, and it sounds pretty good.

Unfortunately, that product contains an inferior form of B12, which actually contains cyanide. It also still requires conversion by the liver, so the benefits aren't what they should be. Additionally, the liver must take on the task of disposing of the cyanide. I didn't see any gluten-free statements about it either.

Source Naturals makes one, as do others I'm sure.

plantime Contributor
plantime
Posted

I use a liquid B-complex, and it helps me immensely. I have also discovered that whenever my intestinal tract is upset, my sleep is disturbed. Celiac reactions to gluten upset my tract, and I just don't get good sleep after a glutening.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Leslie C. Newbie
Leslie C.
Posted
  • Author

Dear Dessa:

Thanks so much! What brand of liquid B complex do you use?

Leslie C. Newbie
Leslie C.
Posted
  • Author

Dear Rice Guy:

WOW! Where do you find the cyanide warnings! I just did a search under Source Naturals, but did not find any liquid B12 or sublingual B12.

RiceGuy Collaborator
RiceGuy
Posted
Dear Rice Guy:

WOW! Where do you find the cyanide warnings! I just did a search under Source Naturals, but did not find any liquid B12 or sublingual B12.

They don't warn for it. The cyanocobalamin form is the most common, probably because it's cheap. Go figure. Here's one place to get the Source Naturals product: Open Original Shared Link

Leslie C. Newbie
Leslie C.
Posted
  • Author

Thanks again! I'm looking for a Sublingual tablet. The one you suggested looks like a regular tablet (that I probably won't completely digest). Do you know anything about this one:

Open Original Shared Link

RiceGuy Collaborator
RiceGuy
Posted
Thanks again! I'm looking for a Sublingual tablet. The one you suggested looks like a regular tablet (that I probably won't completely digest). Do you know anything about this one:

Open Original Shared Link

Apologies for the late response. Since I don't do dairy, I wouldn't be one to use that product. The Source Naturals one is sublingual, so there are no digestion issues with it. Just for clarity, sublingual means it dissolves under the tongue. I'm not suggesting that it is the best product, but I know it works, and it's cheap. Also most others have ingredients I can't have, or am suspicious of.

Leslie C. Newbie
Leslie C.
Posted
  • Author

Thanks, Rice Guy! I just order the B12 from Source Naturals. By the way, I also noticed that I can get Digestive enzymes (which my doctor has recommended) several dollars cheaper from this website. Thanks for pointing me to it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      30

      My journey is it gluten or fiber?

      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    2. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total...
    3. jenniber
      - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

      hi, i want to say thank you to you and @trents . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood t...
    4. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Just diagnosed today

      Thank you this really helped.
    5. Samanthaeileen1
      - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong. yeah I think we had better test us and the other kids as well.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,819
    • Most Online (within 30 mins)
      7,748
    Charlette Jillie-Martinez
    Newest Member
    Charlette Jillie-Martinez
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Just diagnosed today

      By JoJo0611 · Posted

      Thank you this really helped. 
    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.