Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Diagnosed With Celiac


wakefield

Recommended Posts

wakefield Apprentice

I was just diagnosed on Friday evening with celiac and am so happy to have found this site. Both my parents have been in hospital for 3 weeks and are very ill so you can imagine my stress level. I had no apparent reason to believe that I had any health issues until I went for a regular physical last week and found out that I was anemic. I have been gaining weight which is most unusual for me and then suddenly last week I lost 18 pounds. Wednesday I had a colonoscopy and endoscopy with biopsy and now I know. I find I am beyond exhausted--which I thought was due to my parents condition--and my heart pounds with any exertion. I am most eager to learn from all of you and have never ever posted on a forum before so I do not know if this is the correct place. I know my diet must change--although I have never eaten that much bread etc. I do wear makeup and am crushed it that is going to be an issue. I have started to read the internet and soap and medicines are also an issue? Thanks in advance for your help.

Wakefield


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

Welcome to the board!

Here are some of my favorite resources on the web. There is a LOT of info in these pages. Hopefully they will give you a good start....

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Ingredients and Food Labels

https://www.celiac.com/categories/Safe-Glut...3B-Ingredients/

Open Original Shared Link

wakefield Apprentice
Welcome to the board!

Here are some of my favorite resources on the web. There is a LOT of info in these pages. Hopefully they will give you a good start....

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Ingredients and Food Labels

https://www.celiac.com/categories/Safe-Glut...3B-Ingredients/

Open Original Shared Link

wakefield Apprentice
Welcome to the board!

Here are some of my favorite resources on the web. There is a LOT of info in these pages. Hopefully they will give you a good start....

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Ingredients and Food Labels

https://www.celiac.com/categories/Safe-Glut...3B-Ingredients/

Open Original Shared Link

wakefield Apprentice

I am so sorry. I do not know how to use a forum and I clicked to reply and messed everything up. I can't thank you enough for the list. I will start right now. Wakefield.

Ursa Major Collaborator
I am so sorry. I do not know how to use a forum and I clicked to reply and messed everything up. I can't thank you enough for the list. I will start right now. Wakefield.

No need to apologize. It can be tricky if you have never participated in a forum before. You'll be a pro in no time.

When you click on the reply button that is part of the post window, it will then quote what has been previously said. Which is good if there are several posts, but you want to respond to one post in particular. You can also then edit/take out some of that quoted post, if you just want to respond to part of it.

But you just add what you want to say underneath or above it, and then click on 'add reply'. If you want to see what it looks like and if you have done it right, you click on 'preview' to check if it looks right, and if your links work (if you have added any).

If you don't want to quote anything, you click on the 'reply' button that is farther down (as you have apparently done for the above quoted post).

I didn't follow all of those links, so don't know what advice you got this far.

Just take a deep breath. There is lots of makeup out there that is guaranteed gluten-free. I can't tell you which brands, because I don't wear makeup. But others can help you there. It takes some time to learn how to live gluten-free, but believe me, you will figure it out and soon it will be easy.

In the meantime, the easiest and least stressful way to eat would be to just eat naturally gluten-free foods like meat, vegetables, fruit, fish and eggs. If you have prepared it from scratch, you don't have to worry.

And it might be best if for now you also eliminate dairy, and probably soy, as those can hinder healing.

That must be tough to have both your parents in the hospital at the same time. Are they suffering from the same problem? I hope they will be better soon.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,004
    • Most Online (within 30 mins)
      7,748

    Daffodil
    Newest Member
    Daffodil
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Welcome @JoJo0611. That is a valid question.  Unfortunately the short answer is slim to none.  Be proactive, when the diagnosis process is completed, start GFD.  Remember also that the western diet is deficient in many nutrients that governments require fortification.  Read the side of a breakfast cereal box. Anti-tTG antibodies has superseded older serological tests It has a strong sensitivity (99%) and specificity (>90%) for identifying celiac disease. A list of symptoms linked to Celiac is below.  No one seems to be tracking it, but I suspect that those with elevated ttg, but not diagnosed with Celiac Disease, are diagnosed with celiac disease many years later or just die, misdiagnosed.  Wheat has a very significant role in our economy and society.  And it is addictive.  Anti-tTG antibodies can be elevated without gluten intake in cases of other autoimmune diseases, certain infections, and inflammatory conditions like inflammatory bowel disease. Transient increases have been observed during infections such as Epstein-Barr virus.Some autoimmune disorders including hepatitis and biliary cirrhosis, gall bladder disease. Then, at 65 they are told you have Ciliac Disease. Milk protein has been connected to elevated levels.   Except for Ireland and New Zealand where almost all dairy cows are grass fed, commercial diaries feed cows TMR Total Mixed Rations which include hay, silage, grains and concentrate, protein supplements, vitamins and minerals, byproducts and feed additives. Up to 80% of their diet is food that cannot be eaten by humans. Byproducts of cotton seeds, citrus pulp, brewer’s grains (wheat and barley, rye, malt, candy waste, bakery waste. The wheat, barley and rye become molecules in the milk protein and can trigger tTg Iga in persons suseptible to Celiac. I can drink Grass fed milk, it tastes better, like the milk the milkman delivered in the 50's.  If I drink commercial or Organic milk at bedtime I wake with indigestion.    
    • captaincrab55
      Can you please share your research about MMA acrylic containing gluten?   I comin up blank about it containing gluten.  Thanks in Advance,  Tom
    • Aretaeus Cappadocia
      I strongly recommend 2 dedicated gluten free (gluten-free) restaurants in my area (East Bay of San Francisco Bay Area) (2025) -- Life is Sweet Bakery and Café in Danville. I've been a few times with friends and tried multiple entrees and salads. All very good and worth having again. I've also tried a number of their bakery goods. All extremely good (not just "good for gluten-free"). https://lifeissweetbakeryandcafe.com/ -- Kitara Kitchen in Albany (they have additional locations). I've been once and had the "Buritto Bowl". Six individual items plus a sauce. Outstanding. Not just "for gluten-free", but outstanding in its own right. Vibrant flavors, great textures. I can't wait to go back. https://www.kitava.com/location/kitava-albany/  
    • Martha Mitchell
      I'm 67 and have been celiac for 17yrs. I had cataract surgery and they put a gluten lens in my eye. Through a lot of research, I found out about MMA acrylic...it contains gluten. It took 6 months for me to find a DR that would remove it and replace it with a gluten-free lens . I have lost some vision in that eye because of it . I also go to a prosthodontist instead of a regular dentist because they are specialized. He has made me a night guard and a few retainers with no issues... where my regular dentist didn't care. I have really bad reactions to gluten and I'm extremely sensitive, even to CC. I have done so much research on gluten-free issues because of these Drs that just don't care. Gluten is in almost everything shampoo, lotion, food, spices, acrylic, medication even communion wafers! All of my Drs know and believe me I remind them often.... welcome to my world!
    • trents
      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.