Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling Great: So How Do I Continue To Stay gluten-free?


Molecular Dude

Recommended Posts

Molecular Dude Apprentice

Hello All,

I haven't posted recently because I've been essentially symptom-free for about 2 months now, which is absolutely amazing and I wish that everyone could feel as well!

The problem is that I'm starting to get this feeling of invincibility. For more than 5 years the slightest hint of gluten would make me ill. Now, I'm still very careful and haven't changed my diet in any way, and I'm finally OK. I guess that my system has healed adequately to allow me to be asymptomatic. Strangely though, this lack of symptoms in a way makes things boring and mundane, and I'm feeling temptation to stray from the diet. It's odd that having problems enables one to maintain the gluten free diet far more easily than feeling well does. (I suppose that recovering drug and alcohol abusers face similar situations, but I have no personal experience with that). From a purely intellectual perspective, I know that I have to stay gluten free, but I certainly long for those days when I didn't even know what gluten was!

Any suggestions for how to keep convincing oneself to stay gluten-free when feeling well?

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenGalAZ Enthusiast

I've had similar thoughts -- thinking I have been feeling REALLY good for such a long time now and then I see on TV pizza or go to say Sam's Club and see the pretzels and hot dogs that I remember being really good. When you feel good for a while you start to wonder sometimes if it just all went away and you would be okay eating a gluten containing food --- BUT NOPE....just stay away.

I have almost slipped couple times past couple of months but then I remember how I felt and I also read posts on here about what people are going through and it reminds me about my past and how terrible things were.

I am at a point in my life where I know what I can eat and how great I have been feeling. I have finally started to get my life back and can go on day trips with my husband. My anxity has gone down A LOT compared to what it got to. I can go in stores now without the anxity taking over and wanting to go home.

Just remember how you felt. If you miss a certain type of food then think of a gluten free way to make it or try some different box mixes -- that is what I have been doing with pizza trying to figure out a great gluten free crust. There are so many foods that don't contain gluten in them that you can buy at the grocery store -- in a way the diet makes you eat healthier.

GOOD LUCK :)

aikiducky Apprentice

Don't worry. It's almost inevitable that somewhere along the way you'll get glutened from somewhere, and then you'll remember why you're doing it again. :P;)B)

Seriously though, I remember feeling like that around the same time, two months into the diet. It's like the previous poster said, try to think back to how sick you were, and remind yourself that that's how you would feel again if you slip up.

Pauliina

gfpaperdoll Rookie

I have the opposite problem - I see gluten anything & I just think how awful the stuff is & killing many people everyday & they have no clue. I see a donut & it almost makes me nauceous. I feel almost physical pain when I watch my grandchildren eating wheaty bread & pizza - when they should be gluten-free.

I think this would be a more peaceful, happier, healthier planet if all the gluten grains were just loaded up & shipped to the moon. B):DB):D

No thanks to anything wheaty for me ever. I feel blessed to be gluten-free.

Ursa Major Collaborator

Dude, just remember that you will likely die a horrible death if you go back to eating gluten. Cancer somewhere of the gastrointestinal tract is almost guaranteed for people with celiac disease who keep eating gluten. You would likely cut at least 20 years off your lifespan.

Personally, I'd prefer to be healthy and just keel over or die in my sleep without being sick first when my time is up.

I've had the opposite problem. I am very ill and fatigued still, nearly three years of being gluten-free. I feel rotten anyway, so why not cheat?

Well, I gave in a couple of times. Big mistake. I feel rotten now, but boy, do I ever feel worse the next day after eating gluten! The stomach and bowel cramps, terrible D and awful bloating, as well as the brain fog and angry outbursts, depression....... (the list goes on), take feeling bad to an entirely new level.

It is totally not worth it, no matter how you look at it. You feel fabulous, congratulations! Please do yourself a favour and keep it that way, by staying gluten-free.

Phyllis28 Apprentice

I remember how sick I was and still get with an accidental glutening. I think of it as form of aversion therapy. I have no desire, at all, to stray from a gluten free diet.

Fiddle-Faddle Community Regular

Am I weird or something? I have absolutely no urge to cheat--and I don't have severe reactions to gluten.

Just hearing how bad it could get, though, in terms of other autoimmune disorders, such as RA, MS, lupus, fibromyalgia, etc. is more than enough to keep me from cheating.

If I want pizza, I can make it in 10 minutes using corn tortillas for the crust. Or if I'm desperate for "real" crust, I can make it from scratch in less than an hour.

What's the big deal?

I LIKE feeling good.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MissLu Newbie

For anyone tempted to cheat on their diet, it may be a little extreme but think of this analogy: people with mental illnesses on effective medication begin to feel better, and occasionally people think that because they feel better they can go off their meds. Guess what happens? Celiac disease is the same way. The fact that you're feeling better is the reason you should be sticking to your diet.

Molecular Dude Apprentice

Thank you all so much for your responses. Yes, the correct and rational path is to ALWAYS remain gluten free, and recalling/realizing the terrible effects of gluten on your body and mind is the best way to overcome the temptation of savoring and devouring your old favorite foods.

Besides, I'm certain that I will suffer through cross-contamination somewhere along the way and that will set me straight.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    2. - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    3. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    4. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,339
    • Most Online (within 30 mins)
      7,748

    Teresa King
    Newest Member
    Teresa King
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.