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Needing To Find Someone To Talk To.

Blessings

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Blessings Explorer
Blessings
Posted

I just found out in March that I have celiacs and in April that I have crohns. Emotionally I'm holding on by a thread. Anyone out there that's gone through this, on the south end of Co Springs, willing to lend an ear. I need an understanding friend right now.

I am going to a series of stress management classes

lots of prayer

appointment with therapist in June

workout at gym

don't know anyone else with celiac

went to CSA vendor fair last month will try to go to the meeting in June

Normally I am a very even keeled person but this has thrown me for a loop.

Vicky

buildingblessings@msn.com

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mammajamma Rookie
mammajamma
Posted

All I can tell you is... you are in the right place! I wish you luck dealing with all this...

AliB Enthusiast
AliB
Posted

You may undoubtedly find that dealing with the Celiac will also sort out the Crohn's, as it is almost certainly caused by the same thing. Gluten.

This is a great place to come and share experience, ask questions, vent and whatever you need. You can pretty much guarantee that what ever you are going through has been experienced in some form by others out there. We all support and encourage each other and it is a great help.

Even if you have no support or 'gluten-free compatriots' around you, there are loads of us here and you never know, you might just find a few local 'buddies' to pal up with through it too.

Bernadette Newbie
Bernadette
Posted

Celiac and Crohn's are completely linked and are often considered the "same" by many doctors- the reason why I say this is because my former co-workers tested negative for Celiac but was diagnosed with Crohn's disease and was told the treatment was a gluten free diet. One of my former doctor's thought I had Crohn's disease and told me to eat a gluten free diet and my new doctor strongly feels I have Celiac disease and has told me to eat a gluten free diet. I am currently awaiting the test results on the celiac disease. If you keep gluten out of your diet, both your Celiac and Crohn's disease will be managed appropriately. My doctor has even confirmed this as we spoke about this during my visit last week.

And, if you ever need to vent, just jump on this forum and let it out! My mother actually told me about this forum and I have learned so much and comforted to see that there are so many people that know how I feel.

Guest hightop girl
Guest hightop girl
Posted

I am in the colorado springs area, but at the north end of town. I don't have crohns, but I am new and can understand your need for some support. feel free to pm me so we can talk.

Sherry

ksymonds84 Enthusiast
ksymonds84
Posted
I just found out in March that I have celiacs and in April that I have crohns. Emotionally I'm holding on by a thread. Anyone out there that's gone through this, on the south end of Co Springs, willing to lend an ear. I need an understanding friend right now.

I am going to a series of stress management classes

lots of prayer

appointment with therapist in June

workout at gym

don't know anyone else with celiac

went to CSA vendor fair last month will try to go to the meeting in June

Normally I am a very even keeled person but this has thrown me for a loop.

Vicky

buildingblessings@msn.com

Hi Vicky,

I live in the south broadmoor bluff area. PM me anytime as well!

Chrissyb Enthusiast
Chrissyb
Posted

I live near the walmart on platte and only been dealing with celiac since november. I am hear to talk any time. I also have ms.

Chrissy

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ksymonds84 Enthusiast
ksymonds84
Posted

I was reading in wednesday's food section of the gazette that the pikes peak celiac organization is going to be meeting once a month at a different restaurant. My paper got thrown away but my husband THINKS he remembers June 16th at Gertrude's. You can call Gertrude's to see what info they have on how to reserve etc. if any of you colorado springs gals want to attend Sounds like a nice way to get to know fellow CDers.

  • 2 weeks later...
Blessings Explorer
Blessings
Posted
  • Author

Hi Guys

Have you heard anything else about Gertrudes? As far as I know the CSA Meeting is on Sat, June 14 at 10 am, at the Holly Branch Library. Platte and Murry, at the NE corner shopping center. I am going to go if you want to meet up and go to Chipotle afterwards. I sent you a personal message if you want to get back with me.

Hope to meet you guys.

sickchick Community Regular
sickchick
Posted

Hang in there Sweetie... we're all here for you. My heart is breaking for you.

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    • Aretaeus Cappadocia
      Finding gluten free ingredients

      By Aretaeus Cappadocia · Posted

      I shop a fair bit with Azure Standard. I bought Teff flour there and like it. they have a lot of items on your list but probably no soy flour, at least not by that name. https://www.azurestandard.com/shop/product/food/flour/teff/brown/teff-flour-brown-unifine-gluten-free/11211?package=FL294 As mentioned in another answer, Palouse is a high quality brand for dry beans, peas and other stuff. I buy some foods on your list from Rani. I've been happy with their products. https://ranibrand.com/ Azure and Rani often use terms that skirt around explicit "gluten free". I've contacted both of them and gained some comfort but it's always hard to be certain. FWIW, my IgA antibody levels are very low now, (after including their foods in my diet) so it appears I am being successful at avoiding gluten. 
    • Aretaeus Cappadocia
      Finding gluten free ingredients

      By Aretaeus Cappadocia · Posted

      fwiw, I add nutritional yeast to some of my recipes. since going gluten free I eat almost no processed foods but I imagine you could sprinkle yeast on top.
    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
    • cristiana
      Severe severe mouth pain

      By cristiana · Posted

      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
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      By trents · Posted

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