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7 Months gluten-free, And Still Have Horrible Ibs!

1965kid

By 1965kid
in Coping with Celiac Disease

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1965kid Apprentice
1965kid
Posted

Here it is, right at 7 months gluten-free. Diagnosed with blood test. Only 2 or 3 accidents in 7 months. Im 43 and figure Ive had this for 35 years or so. I got the enterolab test and was found intolerant to eggs and soy. (Soy was a lower number) I have cut out the eggs, but I cant cut out the soy. There is no way I can live like that. EVERYTHING has soy in it!

I am positive I am 100% gluten-free, with no CC issues. I dont eat out, and I have a gluten-free kitchen at home. I read every label. Im not getting gluten. The last glutening I had was from some Darvocet I took for pain. I didnt check them out first, and darvocets have gluten in them. I got a really tore up stomache from it for about 3 days.

Well, I have a tore up stomache today and there is no way I have ingested gluten.

Im just sick of this. If it cured my IBS, it would be so worth it. But it doesnt. :angry:

If my IBS (Big D) wont go away after awhile, why should I continue this gluten-free diet?

I fully intend to give my insides 2 years to heal. But I swear, if my IBS is not better in 2 years of a gluten-free diet, Im just going to eat what I want and say the hell with it!

Now I have to go change my underwear, again! Argggg!!!! :rolleyes:

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Del Rookie
Del
Posted

Don't despair too much.....I know that's easier said than done! Been there too many times myself! I've said many times healing from this disease is a roll-coaster ride!!! The more damage that's been done the longer it seems to heal!

I started a thread on here asking for those near 60 to let me know how they are doing....I know you're no where near sixty but it may help you to read it....just to see how long it takes some to heal!

My husband suggested something to me a few months ago....keep a daily record, number wise, of how you do everyday....then on bad days you can go back and see where you have had good days and how often! It's helped me.

Hang in there.

Del

tom Contributor
tom
Posted

Welllllllllllll .. .. .sorry to say it but isn't it time you try 2 weeks soy-free?

I was gluten-free, dairy-free, sugar/sweetener-free & on a strict anti-candida diet but still feeling crappy all the time until I gave up soy too.

New research comes out regularly on the hazards of soy. (Often making a differentiation between newer uses of raw soy - bad - & traditional fermented soy like tofu & soy sauce, perhaps not so bad.

But why not try 2 weeks w/ ZERO soy?

For me, it was near miraculous, but not until 10 or 12 days.

Prior shorter tests were useless.

Also, are you dairy-free?

P.S. I use a fantastic hazelnut milk by Pacific brands for cereal, coffee etc.

Guest hightop girl
Guest hightop girl
Posted

Hey... I just wanted to say that I am sorry you are feeling bad. It hard enough to stick to this when you are seeing results and feeling better, but then to get sick anyway just plain sucks. hang in there and email me at school on Tuesday... Lynard Skynard fans with stomach aches have to stick together!

Sherry

home-based-mom Contributor
home-based-mom
Posted
I have cut out the eggs, but I cant cut out the soy. There is no way I can live like that. EVERYTHING has soy in it!

Now I have to go change my underwear, again! Argggg!!!! :rolleyes:

Look at those two statements from your opening post and make your choice. :ph34r:

pele Rookie
pele
Posted

Arrggghh is right. It can be very frustrating.

A tip on eliminating soy: quit eating processed foods and stick to whole foods for a while. Plain veggies, fruit, meat, nuts, brown rice, quinoa.

Dr. Peter Green, in his book Celiac Disease: A Hidden Epidemic, lists these reasons why people do not get better on a gluten-free diet:

1) Lactose intolerance

2) Pancreatic insufficiency--try a serious digestive enzyme supplement

3) Bacterial overgrowth--apparently this is rampant in ceilacs and folks with IBS. Try strong probiotics and check the net for other ideas like peppermint oil, anti-candida diets, Specific Carbohydrate Diet and so on.

4) Microscopic colitis-you need a doctor for this one

5) refractory sprue

I think if you read through enough articles in celiac.com and enough posts here, you will find that many folks go through a long healing process. The gut is damaged. Healing celiacs can experience intestinal irritation from a variey of things, like Vit C, magnesium, apples, onions, medicines, you name it.

Dr. Peter Green's book will also answer your question about why you should stay gluten-free.

AndrewNYC Explorer
AndrewNYC
Posted

Try an elemental diet formula for a week or two. Tolerex or vivonex

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feelingbetter Rookie
feelingbetter
Posted

I have been gluten free for 3.5 months and off dairy, soy, sugar and corn for about 2.5 months. I was still feeling really sick and fatigued. I strictly followed the specific carbohydrate diet for the last 7 days and I feel sooooo much better. I think pele's post is right on. I also take a dairy free probiotic and malic acid and betaine hydrochloride for better digestion.

It is hard giving up things we love but no food is worth being sick over.

Good Luck!

confusedks Enthusiast
confusedks
Posted

Being soy free is not that hard. I find soy free WAY easier than dairy free for example. Soy lecithin is in everything. If you cut ALL soy out (including soy lecithin) for at least 2 weeks, you may find that you feel better.

Also, are you dairy free? I think I am the only person who gets HORRIBLE diarrhea from dairy. Most people get constipated...not me! :ph34r:

1965kid Apprentice
1965kid
Posted
  • Author

Thanks for all the advise. I may try soy free for awhile and see what happens. I was tested for dairy, and did not show an intolerance to dairy. May just have to do the raw foods diet for awhile.

sickchick Community Regular
sickchick
Posted

I cut out soy in December including soy lecithin and I eat 8 psyllium pills (metamucil plus calcium) a day to keep everything from going right though me...

if I can do it you can do it... B)

be well and don't give up

darlindeb25 Collaborator
darlindeb25
Posted

1965kid--cutting out soy is much easier than it seems. Soy lecithin, sometimes is fine for some people who can't have soy. I can't have soy, but soy lecithin is ok. I can't remember why it's ok, but it is sometimes. I try to stay away from it as much as I can, but I don't fret if I get a little. I still occasionally eat my M&M's. :P I do stay away from all processed foods. I do not use any high fructose corn syrup, if you think it's hard getting away from soy, try buying foods with no corn syrup!! You can do this, we know you can. Let us know how you feel.

Feel free to email me for help.

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