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Thyroid Question?

LisaN

By LisaN
in Related Issues & Disorders

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LisaN Rookie
LisaN
Posted

I remember when I read the symptoms for Celiac and I KNEW, without a doubt, that was what I had. I think I may have done it again, but I need your honest input please!

I am sooooo frusturated I can barely stand it! I was diagnosed with Celiac back in Nov of 07 and have been gluten free since then. My stomach issues have improved 99% and i am so pleased. However, I am still exhausted, zero energy, having major hair loss, dry skin, brain fog, aches and pains, can't lose weight. I am gluten free and also a vegetarian so it makes no sense to me why i am 30 lbs overweight! I eat very healthy. I have gained and lost 30lbs twice in my life without changing my eating or exercise habits. Within the last week i feel like there is a lump in my throat, choking on food, and constant need to swallow. Also having a hard time breathing and yawning a lot.

I have been tested for Lupus and RA both with negative results. My thyroid has been tested numerous times. The 1st time I was on the verge of being hypo and everytime after that has been normal. I did have epstein bar back in feb of 07.

After reading some info, my symptoms are almost dead on for hypothyroidism. I read that if you have celiac that you are more likely to have other autoimmune disease. So... could I have Hashimotos? Which can have both hypo and hyper symptoms... which might explain the unexplained weight gain and loss?

Please help!

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Dedrasmom Rookie
Dedrasmom
Posted

Hi Lisa, definitely sounds like thyroid to me. I am a long time thyroid patient. You should go to thyroid.about.com. and post questions to their forum. (lower left corner of main page) The hardest thing will be to find a good doctor as you will understand after you do some reading on that site. Where do you live? There is a list of top docs on the site for different states. check it out. If you can find a good doc that will treat symptoms and not just look at numbers from your bloodwork, hopefully you can feel better soon.

Good luck! Belinda in NC (my hubby has celiac & thyroid issues)

I remember when I read the symptoms for Celiac and I KNEW, without a doubt, that was what I had. I think I may have done it again, but I need your honest input please!

I am sooooo frusturated I can barely stand it! I was diagnosed with Celiac back in Nov of 07 and have been gluten free since then. My stomach issues have improved 99% and i am so pleased. However, I am still exhausted, zero energy, having major hair loss, dry skin, brain fog, aches and pains, can't lose weight. I am gluten free and also a vegetarian so it makes no sense to me why i am 30 lbs overweight! I eat very healthy. I have gained and lost 30lbs twice in my life without changing my eating or exercise habits. Within the last week i feel like there is a lump in my throat, choking on food, and constant need to swallow. Also having a hard time breathing and yawning a lot.

I have been tested for Lupus and RA both with negative results. My thyroid has been tested numerous times. The 1st time I was on the verge of being hypo and everytime after that has been normal. I did have epstein bar back in feb of 07.

After reading some info, my symptoms are almost dead on for hypothyroidism. I read that if you have celiac that you are more likely to have other autoimmune disease. So... could I have Hashimotos? Which can have both hypo and hyper symptoms... which might explain the unexplained weight gain and loss?

Please help!

Ursa Major Collaborator
Ursa Major
Posted

I agree that you sound like you have hypothyroidism. Do you remember what your numbers were when you were tested?

Check out this website, they have great information. Also, make sure your adrenals get tested as well. Most people have adrenal fatigue when their thyroid has been out of whack for a while.

Open Original Shared Link

ShayFL Enthusiast
ShayFL
Posted

Stopthethyroidmadness has some great information (and some not so great). But one thing you need to check is that your doctor is using the latest lab values for TSH. It used to be up to 5 was normal and now the cut off is 3. Some experts think it should be 2. My TSH was 2.8 and I was very hypo. Im on Armour. It helped a lot. My doctor treats by symptoms and not just labs anyway. The Armour has supressed my TSH. It did with the first small dose, but I needed to keep increasing my does to get rid of the hair loss (and I had a weird patch of severly kinky hair). Muscle twitches. Those went away once I got to the right dose for me. My doctor ignores the TSH now. And asks how I feel. It helps that I am well aware of the symptoms of excess (anxiety, insomnia, rapid pulse, sweating, etc.). And I am good.

KimmyJ Rookie
KimmyJ
Posted

Sounds like a thyroid deal to me. I would have it tested - make sure to ask to be tested for the autoimmune diseases that cause thyroid problems if you suspect Hashimoto's. Have them test your T3 and T4, as well as test for the thyroid antibodies. I'm going through this whole thyroid mess too right now, only with major symptoms of hyper-thyroidism. I hope you figure out what's causing it!

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