Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

It's Official


bakinghomesteader

Recommended Posts

bakinghomesteader Contributor

Well, my husband wanted a firm diagnosis to justify not eating gluten. He didn't want me to not eat it if I didn't have to. So he wanted me to get bloodwork done. I had to eat gluten for a little over a month and I was so sick. I had it drawn and stopped eating it again after getting really sick. (dizzy, diarrhea, nausea)

I went to the doc today and she said it was positive. So now, I can have a gluten free home. I'm glad I had it done, because now I know I have to be really strict about it. My vitamin levels are low and I'm not absorbing well. I lost 1.5 lbs in 2 weeks and she said if I don't gain some weight in 2 months, she will have me scoped to check for cancer. I'm 32 :o I pray it's just from the celiac.

I am looking forward to feeling better. I've just felt so horrible lately. Btw, after I started eating gluten for the test, my gallbladder acted up and so did my upper gastric area. It is settling down now.

This is one time I'm glad for a diagnosis.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Congratulations on your official diagnosis. Even though really, it wasn't a fabulous thing to do, to go back to eating gluten! Apparently, you have destroyed your wonderfully healed villi again. I don't think you have cancer, you have just made sure you don't absorb nutrients again, and hence the weight loss.

Make sure you are awfully strict on the gluten-free diet, eliminate dairy for now (as you can't digest it, since the tips of the villi make the enzyme lactase that makes that happen) and eat simple, plain foods until you heal.

Your husband was wrong in not believing your enterolab results, and making you eat gluten again just to prove what you already knew, that you need to be gluten-free.

fedora Enthusiast

I am so glad your test was positive. congradulatons on a diagnoses.

If it had not been positive, I can't help but wonder what your hubby would have done. Would he have not been careful with gluten around you or pressured you to eat gluten again.

I would have told my husband to F off. But that is me.

When you got your enterolab results, did you get the gene test done?

bakinghomesteader Contributor
I am so glad your test was positive. congradulatons on a diagnoses.

If it had not been positive, I can't help but wonder what your hubby would have done. Would he have not been careful with gluten around you or pressured you to eat gluten again.

I would have told my husband to F off. But that is me.

When you got your enterolab results, did you get the gene test done?

No, I did not get a gene test done. Just a ttg from them. Don't beat my husband up too much. He just wanted to be sure and for me not to have to burden myself if I didn't have too. He thought it was something else and not gluten. He thought maybe I had an ulcer or gallbladder probs. I had that tested too and they were negative. She did say that my gallbladder could be a little colicky right now.

The hard thing is were are broke. I have no money for superfine rice flour. :( Our beliefs are somewhat conservative Mennonite and I baked a lot. I miss that right now. :( I will keep praying and if God wants me to have it, He'll provide.

gfpaperdoll Rookie

well, maybe the reason God has not provided you with any rice flour is that you really do not need any rice flour right now. ;)

It is better if you do not eat any of those gluten-free grains for a bit - to give your insides a chance to heal up.

as a side note, phewy, who can stand rice flour? - I hate the stuff... Whenever you can eat some of the gluten-free stuff - say maybe by Thanksgiving, I use a combination of sorghum flour, coconut flour, almond flour (make your own), corn meal or corn flour (bob's red mill is not gluten-free) & if you can tolerate Tapioca flour, Tapioca with sorghum makes the best texture...

fedora Enthusiast

hope I didn't offend you. I was definately not suggesting that was what you should say to your husband. I am probably not anywhere near as religious or conservative as you, but have managed to stay married for 13 years(since 19 years old).

I am glad your tests were positive. Did the diet make you feel better? Were you still having problems? The results from me going gluten free are very obvious. You may not think this from my post, but I am actually a much nicer person to my husband now(he definately noticed!)There is just no doubt with me, my doctor confirmed his belief in that too based just on diet.

I am a homesteader too! I am also 32! And I have a 10 year old son!

I use to bake lots years ago, but I had twins(already had one before that) and baking got pushed aside. I continued to can food though, and now they are older I can alot. I will probably be baking more soon. Maybe you can find something else you love to cook that is cheaper.

Eric-C Enthusiast

I hate rice flour and all the flour alternatives.

We've found it much easier to eat if we don't always try to relive old food habits with new food ingredients.

The only exception is rice pasta which is pretty good.

Otherwise we just eliminated everything else that would have included flour/gluten instead of trying the, usually poor, substitutes.

I don't know if your BBQ but most of the BBQ recipe magazines out right now are almost all gluten free and some great stuff.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



munkee41182 Explorer

I like to bake too, and we can't afford me to buy all the different flours. So I stick to Gluten Free Pantry bread mix, rice pasta, and on occasion some brownies or chocolate cake mix (usualy about one every 2-3 months). My fiance will look at me say "you had to go on this diet now" because we just bought a home, paying for our wedding and hoping to go on a honeymoon. I know he's joking...but still I give him the "look" and he stops.

I stick to the basics, meat and veggies and regular rice. And one thing that you can do it put a couple of bucks away every so often and when your "stash" build up, you can go and buy the gluten-free flours and then you can bake up a storm! I stash away some of my money here and there to buy something I want that is a special treat. Lately it's been gluten-free food or wedding items rather than a cute pair of shoes.

Hope that helps you and I'm glad you're feeling better! :D

bakinghomesteader Contributor

Thank you all for your posts!

Fedora, I am not offended :) I was able to go to an Amish community and a store there carries an all purpose everything included flour. No having to buy everything separate will save me some money. I am glad for this. Trying to not get glutened is hard. I get confused with some labels for stuff like bbq sauce. I have baked things like donuts and such and they turned out really good. :)

Also, the diet did make me feel better for 9 mos. I think it's kinda like if someone is taking anitdepressents and they start to feel better they stop taking them even tho that's what made them feel better. That's how it started with my husband. I started to have stomach pain and he thought maybe it wasn't gluten all along and to see for sure. It was. So I am waiting for my intestines to heal and I can feel better.

I like the idea of stashing extra money for goodies. I will do that.

Btw, my mom asked if I wanted to go for pizza tonight. :blink: Uh, hello. I really thought she was more concerned than that. lol.

munkee41182 Explorer

Moms....gotta love them :D

I still remember the time my mom made lasagna for a family dinner (sister, husband and kids came by) and Didn't make me a gluten-free meal. lol. Lasagna, foccacia bread, salad with crutons in it already. Thanks mom <_<

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - marlene333 replied to Grace Good's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Bee balm lipbalm not gluten free

    2. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

    3. - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    4. - catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    5. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,263
    • Most Online (within 30 mins)
      7,748

    Elyn Joy
    Newest Member
    Elyn Joy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • marlene333
      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    • Mari
      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
    • Scott Adams
      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
    • Jmartes71
      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.