Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

It's Official


bakinghomesteader

Recommended Posts

bakinghomesteader Contributor

Well, my husband wanted a firm diagnosis to justify not eating gluten. He didn't want me to not eat it if I didn't have to. So he wanted me to get bloodwork done. I had to eat gluten for a little over a month and I was so sick. I had it drawn and stopped eating it again after getting really sick. (dizzy, diarrhea, nausea)

I went to the doc today and she said it was positive. So now, I can have a gluten free home. I'm glad I had it done, because now I know I have to be really strict about it. My vitamin levels are low and I'm not absorbing well. I lost 1.5 lbs in 2 weeks and she said if I don't gain some weight in 2 months, she will have me scoped to check for cancer. I'm 32 :o I pray it's just from the celiac.

I am looking forward to feeling better. I've just felt so horrible lately. Btw, after I started eating gluten for the test, my gallbladder acted up and so did my upper gastric area. It is settling down now.

This is one time I'm glad for a diagnosis.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Congratulations on your official diagnosis. Even though really, it wasn't a fabulous thing to do, to go back to eating gluten! Apparently, you have destroyed your wonderfully healed villi again. I don't think you have cancer, you have just made sure you don't absorb nutrients again, and hence the weight loss.

Make sure you are awfully strict on the gluten-free diet, eliminate dairy for now (as you can't digest it, since the tips of the villi make the enzyme lactase that makes that happen) and eat simple, plain foods until you heal.

Your husband was wrong in not believing your enterolab results, and making you eat gluten again just to prove what you already knew, that you need to be gluten-free.

fedora Enthusiast

I am so glad your test was positive. congradulatons on a diagnoses.

If it had not been positive, I can't help but wonder what your hubby would have done. Would he have not been careful with gluten around you or pressured you to eat gluten again.

I would have told my husband to F off. But that is me.

When you got your enterolab results, did you get the gene test done?

bakinghomesteader Contributor
I am so glad your test was positive. congradulatons on a diagnoses.

If it had not been positive, I can't help but wonder what your hubby would have done. Would he have not been careful with gluten around you or pressured you to eat gluten again.

I would have told my husband to F off. But that is me.

When you got your enterolab results, did you get the gene test done?

No, I did not get a gene test done. Just a ttg from them. Don't beat my husband up too much. He just wanted to be sure and for me not to have to burden myself if I didn't have too. He thought it was something else and not gluten. He thought maybe I had an ulcer or gallbladder probs. I had that tested too and they were negative. She did say that my gallbladder could be a little colicky right now.

The hard thing is were are broke. I have no money for superfine rice flour. :( Our beliefs are somewhat conservative Mennonite and I baked a lot. I miss that right now. :( I will keep praying and if God wants me to have it, He'll provide.

gfpaperdoll Rookie

well, maybe the reason God has not provided you with any rice flour is that you really do not need any rice flour right now. ;)

It is better if you do not eat any of those gluten-free grains for a bit - to give your insides a chance to heal up.

as a side note, phewy, who can stand rice flour? - I hate the stuff... Whenever you can eat some of the gluten-free stuff - say maybe by Thanksgiving, I use a combination of sorghum flour, coconut flour, almond flour (make your own), corn meal or corn flour (bob's red mill is not gluten-free) & if you can tolerate Tapioca flour, Tapioca with sorghum makes the best texture...

fedora Enthusiast

hope I didn't offend you. I was definately not suggesting that was what you should say to your husband. I am probably not anywhere near as religious or conservative as you, but have managed to stay married for 13 years(since 19 years old).

I am glad your tests were positive. Did the diet make you feel better? Were you still having problems? The results from me going gluten free are very obvious. You may not think this from my post, but I am actually a much nicer person to my husband now(he definately noticed!)There is just no doubt with me, my doctor confirmed his belief in that too based just on diet.

I am a homesteader too! I am also 32! And I have a 10 year old son!

I use to bake lots years ago, but I had twins(already had one before that) and baking got pushed aside. I continued to can food though, and now they are older I can alot. I will probably be baking more soon. Maybe you can find something else you love to cook that is cheaper.

Eric-C Enthusiast

I hate rice flour and all the flour alternatives.

We've found it much easier to eat if we don't always try to relive old food habits with new food ingredients.

The only exception is rice pasta which is pretty good.

Otherwise we just eliminated everything else that would have included flour/gluten instead of trying the, usually poor, substitutes.

I don't know if your BBQ but most of the BBQ recipe magazines out right now are almost all gluten free and some great stuff.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



munkee41182 Explorer

I like to bake too, and we can't afford me to buy all the different flours. So I stick to Gluten Free Pantry bread mix, rice pasta, and on occasion some brownies or chocolate cake mix (usualy about one every 2-3 months). My fiance will look at me say "you had to go on this diet now" because we just bought a home, paying for our wedding and hoping to go on a honeymoon. I know he's joking...but still I give him the "look" and he stops.

I stick to the basics, meat and veggies and regular rice. And one thing that you can do it put a couple of bucks away every so often and when your "stash" build up, you can go and buy the gluten-free flours and then you can bake up a storm! I stash away some of my money here and there to buy something I want that is a special treat. Lately it's been gluten-free food or wedding items rather than a cute pair of shoes.

Hope that helps you and I'm glad you're feeling better! :D

bakinghomesteader Contributor

Thank you all for your posts!

Fedora, I am not offended :) I was able to go to an Amish community and a store there carries an all purpose everything included flour. No having to buy everything separate will save me some money. I am glad for this. Trying to not get glutened is hard. I get confused with some labels for stuff like bbq sauce. I have baked things like donuts and such and they turned out really good. :)

Also, the diet did make me feel better for 9 mos. I think it's kinda like if someone is taking anitdepressents and they start to feel better they stop taking them even tho that's what made them feel better. That's how it started with my husband. I started to have stomach pain and he thought maybe it wasn't gluten all along and to see for sure. It was. So I am waiting for my intestines to heal and I can feel better.

I like the idea of stashing extra money for goodies. I will do that.

Btw, my mom asked if I wanted to go for pizza tonight. :blink: Uh, hello. I really thought she was more concerned than that. lol.

munkee41182 Explorer

Moms....gotta love them :D

I still remember the time my mom made lasagna for a family dinner (sister, husband and kids came by) and Didn't make me a gluten-free meal. lol. Lasagna, foccacia bread, salad with crutons in it already. Thanks mom <_<

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.