Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bladder Problems And Celiac Related?

kayavara

Recommended Posts

kayavara Rookie
kayavara
Posted

I have had bladder problems off and on now for years. I started having constant problems in Jan. '08 when all of my bloating,headaches,depression,brain fog etc .started.It felt like a very intense UTI but every time I would go to the doctor,walk in clinic or hospital...they would always say the urine came back negative. I took antibiotics for 2 months with no relief!

I went to every doctor in the book for all of the other symptoms including a urologist. After many painful days of going all day ,leg pain,back aches and more....my doctor ordered diagnostic tests and a scope. He found nothing but minor incontinence. He said I did not have any IC,cancer or any other problem except the going,going,going. He put me on Vesicare which helped a lot.I still would go more than most...but it was much better.I knew nothing of Celiac at that point.Now it has reared it's ugly head again and while it's not as bad as the last round,it's very uncomfortable.Along with the bladder spasms....I noticed bloating,gas,leg pain,irratability,slight burn in my stomach with some reflux and more.

My question is...could bladder problems be connected to Celiac/gluten intolorance? Now that I look back on my main symptoms...bladder spasms were in the picture more than not.Have I been glutened and the spasms are just a part of that?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Yes, I also get bladder problems when eating gluten, but also when I eat foods high in salicylates.

I will get the burning sensations and having to go constantly. Why don't you try going gluten-free for a week to see if your bladder problems get any better? If they do, you will have to go back to eating gluten if you want to get official celiac disease testing done, though. That would be your choice. Or you could just keep eating gluten-free and be happy with feeling better.

Anyway, you have nothing to lose by eliminating gluten for a while to see what will happen. It could definitely be your answer.

Generic Apprentice
Generic
Posted

I peed the bed until I was 6 if I got real cold (like when we went camping). My mom has accidents when she accidentally eats gluten also.

spunky Contributor
spunky
Posted

I have a slight bladder injury from childbirth... acted up my whole life. When I went gluten free, surprisingly, this got a LOT better. I don't go as much, and I'm better at holding it when I need to. Much of what I assumed was injured bladder worsening with age seems to have gotten a lot better off the gluten.

kayavara Rookie
kayavara
Posted
  • Author

I failed to mention that I have been glunten free now for 2 months...sorry about that. What I was thinking is I might have been glutened lately making all of my old symptoms of bloating,reflux,gas,headaches etc retun. I also am having the bladder spasms with my upper part of my legs aching and going going going.I wondered if bladder problems could be associated with celiac. Looks like it can from the posts.

So...maybe I have some hope if I don't get glutened again...I may see some relief because the bladder symptoms left along with the bloating,reflux etc. 2 months ago after I started the diet.I was pumped up thinking it was gone for good.When it came back along with the other digestive symptoms,I wondered could it be gluten related....especially after all the tests (urological)done came out fine with no sign of any real problems.Maybe the problem has been gluten all these years???

ravenwoodglass Mentor
ravenwoodglass
Posted

I also had problems with bladder and bladder control. The peeing constantly and occasional blood turned out to be kidney related due to my bodies reaction to the toxin, gluten. The control issues were related to my nerve damage and started when I was a child about the time I lost reflexes in my legs. I would have accidents even as a child when playing with friends, very traumatic for a middle schooler. After I was at last diagnosed within a few months the frequency was down to normal and although it took a couple of years for the nerves to heal I can now tell when I have to go before I am actually going.

loraleena Contributor
loraleena
Posted

Please look into Intersticial cystitis. A lot of us on here have it. I had the same issues, but no UTI as well. IC is an autoimmune disease that cause damage to the lining of the bladder and can also cause ulcers in the bladder. Check out the IC network for lots of info. The IC diet helps a lot ! There are many foods that can irritate the bladder, so I suggest checking that out as well.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 2 weeks later...
mumseyh Rookie
mumseyh
Posted
Please look into Intersticial cystitis. A lot of us on here have it. I had the same issues, but no UTI as well. IC is an autoimmune disease that cause damage to the lining of the bladder and can also cause ulcers in the bladder. Check out the IC network for lots of info. The IC diet helps a lot ! There are many foods that can irritate the bladder, so I suggest checking that out as well.

Thanks, that was just the info I was looking for. Is the IC network a forum?

loraleena Contributor
loraleena
Posted

There is tons of great info. there and also a forum as well.

  • 5 weeks later...
geokozmo Rookie
geokozmo
Posted
There is tons of great info. there and also a forum as well.

Yes, it is good, but a bit discourageing:it is clear that no hope for longterm recovery exists. In a site I read about tomato better avoided which is quite startling (since it has good antui-inflammation effects if used on sking, like akne). I wonder.

  • 3 weeks later...
littlemermaid56 Newbie
littlemermaid56
Posted

I have IC. I have been gluten free for 4 years now-I did NOT test positve for celiac, but then again I do not have IgA so i am always negative for the blood work and I think its quite possible that my GI doc didnt take biopsy in the right place to find celiac. But regard;ess I cant eat ANY gluten. Had stomach issues for years before i went gluten free and lost a lot of wieght in short time, i feel so much better gluten free. ANYWAY I was dx with IC 1 and a half years ago. Before I was diagnosed I was runing to the bathroom every 5 minutes, I couldnt go anwhere cause I was SO worried about not having a bathroom. once i was dx I was very very srict with the IC diet. Since then I WILL eat tomatoes....I find that organic farm grown tomatoes work much better for me. I can not eat them all the time but now that im in control I can deal with some now and then. I mostly only drink water as everything else is too acidic but i still drink coffee occasionally and deal with consequences-bladder and stomach :) sooo of course it depends on the person but for me IC isnt like the gluten I can SOMETIMES have a little acidic stuff just in moderation

  • 11 months later...
MedicalMystery Newbie
MedicalMystery
Posted

Like you, I've had bladder issues for the last 1 1/2 years: Burning sensation near bladder, when first began was going every 15 or 20 min. (sometimes going to the bathroom 3 times within an HOUR, now with the help of 3 medications, I can go every 2-4 hours in-between), extreme urgency (when it was time I HAD to go!), fear of being at a place where I couldn't find a bathroom, planning my day around using and locating the bathroom, getting up at least two or three times EVERY NIGHT to use the bathroom, etc. I was FINALLY officially diagnosed with IC in December, when I had surgery to hyperextend the bladder (which was NOT successful, by the way). Do you think you should be tested again? Maybe it could be related to Celiac Disease, not sure. I'm new to all of this, since I'm waiting for test results.

  • 1 year later...
overnormal Newbie
overnormal
Posted

I have had bladder problems off and on now for years. I started having constant problems in Jan. '08 when all of my bloating,headaches,depression,brain fog etc .started.It felt like a very intense UTI but every time I would go to the doctor,walk in clinic or hospital...they would always say the urine came back negative. I took antibiotics for 2 months with no relief!

I went to every doctor in the book for all of the other symptoms including a urologist. After many painful days of going all day ,leg pain,back aches and more....my doctor ordered diagnostic tests and a scope. He found nothing but minor incontinence. He said I did not have any IC,cancer or any other problem except the going,going,going. He put me on Vesicare which helped a lot.I still would go more than most...but it was much better.I knew nothing of Celiac at that point.Now it has reared it's ugly head again and while it's not as bad as the last round,it's very uncomfortable.Along with the bladder spasms....I noticed bloating,gas,leg pain,irratability,slight burn in my stomach with some reflux and more.

My question is...could bladder problems be connected to Celiac/gluten intolorance? Now that I look back on my main symptoms...bladder spasms were in the picture more than not.Have I been glutened and the spasms are just a part of that?

Wow! I LOVE this forum. I've been having bladder issues for years. I am a celiac person, but I forgot about salycilates! I've not eaten any gluten, but tomatoes and red apples-alot! Plus other possible irritants. This REALLY helps!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,543
    • Most Online (within 30 mins)
      7,748
    yfuvhg
    Newest Member
    yfuvhg
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.