Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Finally Had Egd And Biopsy Today...few Questions

starrymazed

Recommended Posts

starrymazed Rookie
starrymazed
Posted

I talked to my dr after the procedure and recieved a copy of the report itself. While I have to wait a week for the biopsy results, I did find out that I have GERD, a small hiatal herna, a gastric ulcer, and possibly gastritis. The report also says they biopsied for gastritis, duodentus, and to rule out H. pylori as well as celiacs disease. He told me my that my twenty years of taking over the counter pain medicne for headaches probably caused the ulcer, and not to take anymore. He also gave me Prilosec, and told me to go back to a gluten free diet. What realy does all this mean? When I asked if they suspected celiacs, he said they need to wait for the biopsy results. Are this many stomach issues normal? Does anyone have any similar experiences? I just don't know what to think. Celiacs? Or something else altogether? In any case, I am gluten free as of today, my stomach feels awful, and I am more confused than before. Any input would be GREATLY appreciated! Thank you so much for reading!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


starrymazed Rookie
starrymazed
Posted
  • Author

I forgot to mention that report also stated they suctioned 150cc of biliary fluid and that they biopsied a section with "scalloped mucosa". I thought that the scallpoed mucos was consistant with celiacs, but why would they suction fluid out? I am so overwhelmed right now. And the fact that there is a week wait for the biopsy results really stink. The worst is my stomach right now. I feel absolutely horrible :(

ravenwoodglass Mentor
ravenwoodglass
Posted

((((((((hugs)))))))) I hope you feel better soon. The report he gave you has strong indications of celiac but many doctors will not diagnose unless the villi are totally destroyed. It sounds like you have a smart GI who recognizes the celiac changes, I would agree with him that you should get on the diet. You also should not stop the diet if the biopsies are negative, there is a lot of small intestine there and biopsies are hit and miss. I am betting you will feel much better soon.

starrymazed Rookie
starrymazed
Posted
  • Author
((((((((hugs)))))))) I hope you feel better soon. The report he gave you has strong indications of celiac but many doctors will not diagnose unless the villi are totally destroyed. It sounds like you have a smart GI who recognizes the celiac changes, I would agree with him that you should get on the diet. You also should not stop the diet if the biopsies are negative, there is a lot of small intestine there and biopsies are hit and miss. I am betting you will feel much better soon.

Thank you. I am feeling pretty crappy today, with my stomach and muscle aches. I am not sure, but I would imagine it has something to do with the EGD and the biopsies. Thank you for your response.

ravenwoodglass Mentor
ravenwoodglass
Posted
Thank you. I am feeling pretty crappy today, with my stomach and muscle aches. I am not sure, but I would imagine it has something to do with the EGD and the biopsies. Thank you for your response.

That is a possibility. I had a hard time after mine cause my body really does not like Versed and my doctor gave me a great deal of it, more than he should have in my opinion since there was no anesthesiologist there. I counted at least 8 'pushes' and still wasn't out. He told me I was on the next visit though, till I repeated every word he had said. That shut him up.

It can take a couple of days for the after effects to go away for some of us. If your discomfort increase or does not go away you may want to let him know. Pamper yourself and take it easy today if you can.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,873
    • Most Online (within 30 mins)
      7,748
    West Ga
    Newest Member
    West Ga
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Gluten free Areds 2 Vitamins

      By Scott Adams · Posted

      If you need that designation you'll likely need to switch to a different brand. It's unfortunate that they don't add it to their label and test for gluten.
    • Michael P
      Gluten free Areds 2 Vitamins

      By Michael P · Posted

      Thank you for the reply  , I have tried the Baush & Lomb brand and did have a gluten reaction.  O spoke to the mfg and they state the same as many other mfgs.   - NO Gluten intentionally added to product , but they have no control ( they choose not to) over their suppliers of various ingredients  I am really trying to only take vitamins  that clearly state gluten free  
    • Scott Adams
      Diagnosed w Celiacs, but reacting to gluten-free Digiorno Pizza AND Kraft Zesty Italian Dressing

      By Scott Adams · Posted

      DiGiorno reformulated and have not been using wheat starch for a couple of years now, so this should not be an issue: https://www.goodnes.com/digiorno/products/digiorno-gluten-free-frozen-pepperoni-pizza/ It does contain other ingredients that may be causing you IBS-like issues, for example guar gum.  Many gluten-free foods and baking mixes contain xanthan gum or other gums like guar gum. Although they are both gluten-free, they may cause IBS-type issues in some people with celiac disease or gluten sensitivity:    
    • Scott Adams
      Alcohol

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery have additional food intolerance issues which could be temporary--wine and other alcoholic beverages might also fit in here. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • Scott Adams
      The patient is positive for DQA1*05, one half of the DQ2 heterodimer

      By Scott Adams · Posted

      I completely agree with you—celiac disease and gluten sensitivity are far more complex than mainstream medicine often acknowledges. The genetic component is vastly underrecognized, with multiple genes (not just HLA-DQ2/DQ8) contributing to susceptibility. Your point about HLA-DQA1:05 is critical; even ‘rarer’ genetic variants can have serious clinical implications. I appreciate the book recommendation—No Grain, No Pain sounds like a powerful resource, especially given the author’s bold stance against conventional dietary dogma. Your decade-long experience with a grain-free diet is inspiring and underscores how transformative dietary changes can be for autoimmune conditions. It’s frustrating how narrow testing and outdated guidelines leave so many suffering. Your work as a Functional Nutrition Counselor is so needed in this space.
×
×
  • Create New...