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Nancy Lake

Very Confused

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I think I need a doctor or a group in Phoenix.

Last week was hard. I am gluten free now for about 2 weeks. At first I was peeing a great deal. I guess I had been retaining water.

Lately I am just tired and my stomache rumbles alot. I still eat sugar. I still drink coffee.

I recently quite smoking too. So I have had a very rough week. Inspite of all the water weight I am loosing...don't think I am much thinner.

I have a huge weight problem. I probably need to loose about 60 pounds. Some people say, then your not Celaic...or you would be quite thin.

Maybe I am just detoxing...the tiredness and water loss. There is no pain..just tired. Have not been to the gym like usual.

I also take apple cider vinegar. Enzymes. Minerals, Vitamins...etc. Just don't know what to expect next.

I thought after two weeks I would get some energy back.

How long does it take the intestines to get healed. My liver feels enlarged or swollen too. Is that also part of the cleansing process?

More and More questions.

The last few months I was craving bread all the time. Is that typical of a Celiac not yet gluten free?

Oh, I know I need to part with more things. I don't eat a lot of sugar..but a little. Over all I am doing good except for coffee.

Will coffee keep me from healing? I am quitting so many things...

Thanks, Nancy

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Celiac.com Sponsor (A8):

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gluten causes your body to have withdrawal symptoms when you go off of it. maybe that is some of what you are experiencing?

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It takes time. And forget what the doctors say. I was told I was too thin to be hypothyroid. And I am and now properly medicated.


GLUTEN FREE 4/4/08. LEGUME/SOY FREE 5/15/08. YEAST FREE. CORN FREE. GRAIN FREE. DAIRY FREE. I am eating all meats, eggs, veggies, fruits, squash, nuts and seeds. I just keep getting better every day. :)

Do not let any of the advice given here substitute for good medical care. Let this forum be a catalyst for research. Find support for any post in here before you believe it to be true. Arm yourself with knowledge. Let your doctor be your assistant. Listen to their advice, but follow your own instincts as well. Miracles are within your reach. You can heal!

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My encouragement is to hang in there, it actually takes 1-2 years to heal. Overweight is also a symptom of celiac, your body is in starvation mode because you are not absorbing what you need, so you store fat. Also inflammation causes water retention.

Be sure you are fully gluten free, and also check your personal care products. Be sure you have stopped using pans and kitchen items that cannot be adequately cleaned from gluten.

In addition, may celiacs are sensitive to milk either temporarily due to intestinal villi damage or long term. Try eliminating milk for awhile.

Also a subset of us are sensitive to soy as well which has also been shown to cause villi damage in some people.

Take it a step at a time and keep posting here so we can help and encourage you. Read and search this forum for your questions there is a huge amount of great information.


4/2007 Positive IGA, TTG Enterolab results, with severe malabsorption: Two DQ2 celiac genes--highest possible risk.

gluten-free since 4/22/07; SF since 7/07; 3/08 & 7/08 high sugar levels in stool (i.e. cannot break down carbs) digestive enzymes for carbs didn't help; 7/18/08 started SCD as prescribed by my physician (MD).

10/2000 dx LYME disease; 2008 clinical dx CELIAC; Other: hypothyroid, allergies, dupuytrens, high mercury levels

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Hi there!

I am in the Phoenix area too... aren't you loving this heat? :)

I know I felt like crap for a couple months after going gluten free. I am now about four months out and I am feeling better - which is kind of funny because I did not feel bad before.

Give yourself time, this is not the easiest transition - or at least it was not for me. I am also an overweight Celiac and according to the BMI scales and everything at the doctor's office also have about 60 pounds to lose - but I take one thing at a time now, so for now I just focus on the gluten and pay attention to the fat - but I do not worry about it too much.

Although I really did feel better by leaps and bounds when I took out sugar and replaced it with anti-inflammatory foods.

Best to you, hang in there - this is a process, a slow process, but a process that does get easier over time... I swear.

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I also suggest being dairy-free & soy-free for at least a while then testing each.

Reducing or eliminating processed foods can be VERY helpful as well.

I lived in Phx (Ahwatukee) '05-'07 and subscribed to yahoo's PhxCeliac group.

http://health.groups.yahoo.com/group/PhoenixCeliac/

Also there's http://www.phoenixceliac.com/

& http://www.southernarizonaceliacsupport.org/resources/

And I went to some monthly gluten-free meetings at the Tempe Whole Foods. Uhhhh :huh: 2nd Thursday of each month maybe?

I think other Phx area WhFds have them but can't recall which.

Some gluten-free restaurants besides chains:

http://piezanoskitchen.com/

http://www.picazzos.com/

Oops, thought I had another .. ..


>>>>>>> tom <<<<<<<

Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.

Gluten-free since 12-03

Dairy-free since 10-04

Soy-free since 5-07

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