Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Living With A Non-celiac Family


NorthernElf

Recommended Posts

NorthernElf Enthusiast

Ok, so I'm part of a family of 5 (I'm mom). About 4-5 years ago I had this massive virus that left me unable to eat for over a week (well, unable to keep anything in) and suddenly I'm celiac (after years of stomach issues). Anyway...it's been one heck of a learning curve and a long journey that is still ongoing. I was wondering what people out there who are the celiac in the family, esp. if you are one of the heads of the household but not necessisarily so, do to cope. I thought I would share some of my strategy.

I no longer make pizza crust from scratch (with wheat flour) - I buy pizza shells and go from there.

I do make cookies...carefully. I make muffins too but from mixes instead of from scratch.

I use sweet rice flour to make sauces, along with Glutino mushroom soup mix or gluten-free boullion.

I threw out our breadmaker - too many wheat crumbs everywhere.

I have my own muffin tins, bread tin, cake pan, cutting boards & knives, etc. I have my own gluten free corner in the kitchen, complete with sign to remind folks. I got tired (and literally sick ) of cross contamination.

I bake & package in small bags a lot of gluten free stuff. Even before I never liked bought baking so I do my own.

I travel with a lunch bag that has a shoulder strap...everywhere I go.

My locker at work has a lot of food stored in it (small tuna tins, Mrs. May's snacks, baked Cheetos 100 calorie packs, etc.).

We eat a lot of rice and potatoes and sweet potatoes.

I'm sure there's more but that's all I can think of right now... :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bakingbarb Enthusiast

You and I are pretty much in the same boat. I don't bake like I used too, homemade pizza crust was a weekly affair at our house. New pans for muffins, breads etc. I use parchment paper if I can.

I don't travel with food only because I haven't smartened up yet! I do have Lara bars with me at all times though BUT if we are going somewhere I eat first.

Rice, potatoes, risotto, corn bread (thank goodness for cornbread).

Sweet rice flour is great for sauces and such.

I enjoy the coconut flour for things like biscuits and want to figure out how to incorporate it more. It adds height and texture to cakes and quick breads which is missing with the gluten free flours. The coconut flour recipes though are too eggy tasting, they are good eating but too eggy. Hence I am trying to use it in other mixed flour recipes.

My family doesn't eat as much breads or pastas as they used to BUT when they eat bread I darn near panic and have to walk away and I don't allow myself to say anything. I don't get sick from them, I am very cautious and clean very well any surface my food touches. But it still makes me want to go into a panic. They are pretty good at cleaning up and thankfully they don't really cook, just make toast or a sandwich. They try but I can panic at the drop of a crumb.

ShayFL Enthusiast

I got a new kitchen at the same time Dx. So it is 100% gluten free. I got lucky here.

My family DH and DD agreed, no gluten in the house. We set up a "station" in the garage for gluten products. We used the old refridgerator and microwave, toaster and set them up out there with a table. They can then eat outside of the garage in a patio area. It has worked out very well. And I have found that they rarely bother to eat gluten foods anymore. They just eat gluten-free inside. :)

Phyllis28 Apprentice

I only cook gluten free. My son and husband are not gluten free. Gluten bread, muffins, and cookies are bought at the bakery. Gluten pizza comes from the pizza parlor. All gluten products are kept outside the kitchen.

GlutenGalAZ Enthusiast

I eat gluten free while my husband does not. We have separate counters in the kitchen. When my parenst come to visit I explain to watch out with containers and hamburger buns etc (they are nice about it but are not use to it so it tends to slip their mind).

In our refridgerator we have separate butter and jam containers (I put a cute sticker on mine or Gluten-free). Our pantry is separate as well, all of his gluten containing foods are on a separate shelf than mine. Then we have shelves are that just normal foods that we can both have that don't contain gluten.

I recently tried Gluten Free Pantry French Bread/Pizza for pizza crust it is very good -- makes two big pizzas (even my husband likes it which is great). We eat gluten free dinners and sometime fend for yourself night where we each make what we want and eat together still.

Have you looked into your beauty products, shampoos, lotions, soaps, house cleaners etc? Even dog food -- a lot of dog food has wheat in it and you can CC from that.

There could be something that you are eating that you cannot tolerate. It took me a while to figure out that tapioca starch/flour bothered me.

GOOD LUCK :)

missy'smom Collaborator

Baking used to be my hobby that I loved but I gave it up completely. I gave away some old pans and kept others. My son eats gluten-free snacks with me and lots of fruit based snacks and desserts. I make all meals gluten-free. We don't have toast at breakfast and my husband doesn't like pancakes so Ds and I eat gluten-free pancakes and very occasionally waffles. We have alot of hash browns and other potatoes for the a.m. My son and husband occasionally have bread or noodles and only very occasionally order a pizza for them. We eat alot of rice. All my cast iron is dedicated gluten-free. All my steel pans are gluten or gluten-free OK. We have one gluten-free and one gluten only non-stick pans. Separate strainers for gluten and gluten-free. Gluten toaster is on the small separate counter-top on the other side of the kitchen. I take my food(bentos) everywhere-church potlucks and bible study dinners etc. If we go somewhere a few hrs. away for the whole day, I'll eat breakfast before we leave, bring a meal and eat the third one out. I've brought meals into a restaurant several times when we've been away from our home area and my family or friends ordered off the menu and had no problems, just told the server I have multiple allergies. I make non-sandwich based school lunches for my son so always have a stash of main-dishes in the freezer that don't need to be warmed up before eating(I defrost and warm up before going and cool down before putting the lid on) in case I need a meal to go.

bakingbarb Enthusiast
I take my food(bentos) everywhere-church potlucks and bible study dinners etc.

What are bentos?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator
What are bentos?

Open Original Shared Link

Probably more than you wanted to know here!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to maryannlove's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Yasso frozen yogurt bars - be careful

    2. - Scott Adams replied to cristiana's topic in Traveling with Celiac Disease
      1

      UK Visitors: Award Winning Flapjackery in the West Country (and Chichester, West Sussex)

    3. - Scott Adams replied to Jmartes71's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Frustrated

    4. - Beverage replied to Betsy Crum's topic in Related Issues & Disorders
      8

      Chest pain from celiac

    5. - Wheatwacked replied to Mrs. Cedrone's topic in Related Issues & Disorders
      4

      Canker sores


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,413
    • Most Online (within 30 mins)
      7,748

    Saharon
    Newest Member
    Saharon
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Thanks for sharing this! Talk about frustrating! It is complicated enough to try to keep track of which products are safe, but the concept of the same product sold at 2 different stores--one that is certified gluten-free and one that isn't--that is exactly why having celiac disease is still so difficult, and it is so easy to make mistakes!
    • Scott Adams
      It's great that this business has celiac disease awareness and uses gluten-free oats! I wish more restaurants would make such simple changes, for example if Asian restaurants switched to using gluten-free soy sauce, many (but not all!) risks would be eliminated for lots of their dishes. My daughter works at a Vietnamese restaurant where the owner is keenly aware of celiacs, and he has made the switch to gluten-free soy and fish sauces. 
    • Scott Adams
      It sounds like you’ve been doing everything right—strictly avoiding gluten, managing food allergies, and advocating for yourself—yet you’re still dealing with severe pain, exhaustion, and other debilitating symptoms. The fact that your colonoscopy came back clear after 31 years gluten-free is a testament to your diligence, but it doesn’t erase the very real struggles you’re facing daily. It’s concerning that previous doctors dismissed your celiac diagnosis, and now you’re left fighting for validation while dealing with unexplained symptoms like eye pressure, skin issues, and relentless pain. Menopause and long COVID may be complicating things further, making it even harder to pinpoint the root cause. Are you sure your diet is 100% gluten-free? Do you eat in restaurants...if so, this can be a source of contamination. Trace amounts of gluten over time could explain your symptoms. Many people with celiac disease have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • Beverage
      Could you be having acid reflux? I used to get it soooo bad before I was diagnosed, now very rarely. I didnt have stomach upset, aka silent reflux, but pain in chest (thought I was having a heart attack) and food would get stuck from the esophagus irritation. The things here really helped, especially raising head of bed, sip of apple cider vinegar before meals with protein, heel thumping, and until it healed, taking DGL after meals to coat...do NOT take antacids https://drjockers.com/acid-reflux/ DGL https://www.amazon.com/Integrative-Therapeutics-Rhizinate-Deglycyrrhizinated-Licorice/dp/B001WUC406/  
    • Wheatwacked
      Studies have shown that individuals with canker sores tend to have lower levels of vitamin D in their blood compared to those without the condition. This suggests that vitamin D deficiency could be a risk factor for developing canker sores.  Vitamin D deficiency is very common in Celiac Disease.
×
×
  • Create New...