Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Epstein Barr Virus/adrenal Fatiguee

Joni63

By Joni63
in Related Issues & Disorders

Recommended Posts

Joni63 Collaborator
Joni63
Posted

Hi,

I'm seeking information on these 2 problems. Just found out my EBV from when I had mononucleosis at age 14 is reactivated. ND said my numbers are way above the normal range. She doubled some of my supplements and told me it was the cause of my severe fatigue.

She also said one of my hormones is causing my adrenal glands to secrete more than it should. It's 2 points above normal. Is this considered adrenal fatigue? She told me to get a supplement for it which I cannot find. Anyone else taking a good supplement for AF? Has it helped with sleep problems?

If any of you has information about either of these subjects, please feel free to post it here.

Thanks,

Joni

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


darlindeb25 Collaborator
darlindeb25
Posted

A good friend of mine's daughter is suffering from this too. She had mono when she was 5. This last year, she was diagnosed with crohn's disease, when they finally got the crohn's under control, then her epstein barr decided to flare. From what her doctor said, this happened because of the stress on her body from the crohn's disease, which makes perfect sense, to us. Her doctor says the only thing you can do is get as much rest as you can and hope for the best. It can take months for the fatigue to go away. This girl is a senior, with graduation in just a week or so. She has been dealing with this for about 4 months now.

I think the best advice is to get as much rest as you can, try not to overdo. I too, worry about this. I had mono at 14, and the eptein barr virus stays doormant in your system for the rest of your life, and can flare at any time, it will always show up in your bloodwork. My number stays around 9, hers was around 1000.

fedora Enthusiast
fedora
Posted

hey,

I am sorry. That is too bad. I had mono at 15. Years later my mom had a resurgance of EBV. It was bad for her. She hurt and was exhausted. She couldn't sleep well either. I ask her what she did. The only thing I remember is she was on an anti-viral medication for a while. She pulled through though.

Good luck

loraleena Contributor
loraleena
Posted

I take Isocort for my adrenals. It is a natural product. You can find it online.

Joni63 Collaborator
Joni63
Posted
  • Author
A good friend of mine's daughter is suffering from this too. She had mono when she was 5. This last year, she was diagnosed with crohn's disease, when they finally got the crohn's under control, then her epstein barr decided to flare. From what her doctor said, this happened because of the stress on her body from the crohn's disease, which makes perfect sense, to us. Her doctor says the only thing you can do is get as much rest as you can and hope for the best. It can take months for the fatigue to go away. This girl is a senior, with graduation in just a week or so. She has been dealing with this for about 4 months now.

I think the best advice is to get as much rest as you can, try not to overdo. I too, worry about this. I had mono at 14, and the eptein barr virus stays doormant in your system for the rest of your life, and can flare at any time, it will always show up in your bloodwork. My number stays around 9, hers was around 1000.

What happened to your friend sounds similar to what I think happened to me. I was dx'd with Celiac and did great for a few months then felt horrible, achy legs, waking up feeling hungover, can't sleep and completely fatigued within an hour of waking up. I hope your friends daughter can get through her graduation fine, it is such a great yet stressful time for a senior. Maybe she can rest over the summer.

hey,

I am sorry. That is too bad. I had mono at 15. Years later my mom had a resurgance of EBV. It was bad for her. She hurt and was exhausted. She couldn't sleep well either. I ask her what she did. The only thing I remember is she was on an anti-viral medication for a while. She pulled through though.

Good luck

I wonder what kind of anti-viral she took? My ND told me to take something, but it has been discontinued so I have a call into her for another suggestion.

I take Isocort for my adrenals. It is a natural product. You can find it online.

I will check it out - thank you! Do you think it makes a difference? Does it help with fatigue or sleeping better?

loraleena Contributor
loraleena
Posted

It helps with fatigue some.

Joni63 Collaborator
Joni63
Posted
  • Author

She called back and told me to take Goto Kola. Anyone have experience with this herb?

I'm hesitant to try the isocort. My cortisol levels haven't been tested yet. I think we are doing that in a month if I don't feel any better with my vitamin/mineral supplements and the Goto Kola.

Is exercise ok when you have reactivated EBV and Adrenal Fatigue? My ND said only yoga or walking, but I'm a runner and need to get back to running about 2 miles a day.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


confusedks Enthusiast
confusedks
Posted

I have both...EBV and adrenal fatigue. They are secondary problems to my Lyme disease. My EBV numbers are so high the lab results come back saying "high"...with no numbers! :o I take Valtrex and Olive Leaf Extract for it. My Dr isn't too concerned about the EBV because like I said, they are secondary to my Lyme.

Adrenal fatigue...I'm not taking anything for it right now. Other than immune boosters and a product called "NT Factor Energy" which I don't think specifically helps AF, but it does help with the energy problems.

Joni63 Collaborator
Joni63
Posted
  • Author

OMGosh Kassandra. You and I have so many similar problems. Is your DHEA level high? She didn't test all my hormones yet, but that is coming soon if I don't feel better in a month or so. She said my Epstein-barr virus numbers were really high. I had some really bad symptoms in May - terrible leg aches, headaches, waking up feeling hungover, horrible fatigue, etc. At this point the only thing that remains is the fatigue and lack of energy.

I get the results Monday morning of all my vitamin/mineral levels so I'll know if my D and serum ferritin are rising. I'm hopeful since I am feeling a little better.

Is NT factor energy available OTC?

fedora Enthusiast
fedora
Posted

hey,

My mom couldn't remember what she took, but she took it for a month and it worked.

good luck. That is too bad you are having these problems

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,166
    • Most Online (within 30 mins)
      7,748
    melindakathleen
    Newest Member
    melindakathleen
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...