Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Inside Of My Mouth Shedding

rubylou

By rubylou
in Coping with Celiac Disease

Recommended Posts

rubylou Newbie
rubylou
Posted
  • Author
Would you mind PM'ing me or posting what you eat in a day? I think I'm still consuming something with gluten...which is why the mouth thing won't go away! OR...maybe something I'm eating I'm also intolerant to? Suggestions? I want it gone for good! I also think that when I make a "mistake" it ruins my mouth for AT LEAST 2 weeks. Could that be?

It would be easier for you to tell me what your eating. I have a very simple basic diet...no processed foods. Mainly potato's and meat. I never did eat bread, so I don't bother with that tapioca or rice stuff they try to pass off as bread. If I use any condiments...it's only heinz ketchup, or hellmans light mayo. I don't do bottled salad dressings, as something in them upsets my stomach, I'm assuming it's the distilled vinegar (even though they say it's safe) I make my own salad dressing with red wine vinegar. I usually just take a hamburg or 2 hotdogs for lunch at work ( I work 2nd shift) I still have problems with milk products, they upset my stomach, but sometimes ya gotta have that bowl of ice cream...breyers french vanilla. I have become a creature of habit, only eating the same things. If we go out for dinner, we travel the 40 miles to hit outback....they have a gluten free menu. And as for alcohol....I drink redbridge beer, my local distributor stocks it for me (GOD BLESS THEM) For some reason, some things I eat still upset my stomach (not my mouth though) but I don't believe it's from gluten....I think it's just gonna take awhile for my stomach to heal totally. If you are totally positive that your gluten free....maybe you have some other allergy that is causing the mouth shedding and soreness. Another hidden thing I avoid is anything that says modified food starch.....It may be gluten....so I absolutely avoid it all. Hope this helps some

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


rubylou Newbie
rubylou
Posted
  • Author
Hi again;

I did reply earlier to you and now I remember that for many years I had something also wierd, That the tissue under my tongue would shed. There would be string like strands shedding, eventually they fell off. I always had sores in my mouth I thought it was the Crohn's. Now that I am gluten-free I only have minor sores , I did have the Doc look at it , he said: Celiac, but that was after they determined Celiac. I worry that I might be sensitive to any food that can cause this. It returned again recently and I am trying to find a toothpaste that does not have anything in it. Toms strawberry is good but I hate the Carageenan because I heard some bad things about it : like it can cause Miscarages and who knows what it does to the intestines, I thought I would like to find a toothpaste that is just the basics. Honestly at this point who cares what it tastes like.

Wow...it sounds like you and Jewi008 have the same thing going on......maybe it is your toothepaste. Maybe you should try just plain old arm and hammer baking soda (it's gluten free) make a paste of it with a little water...it tastes horrible, but I've always heard of people using it. I think we are all becoming private investigators.....there are always mysteries that we are trying to solve. We have to investigate every morsel we pop in our mouths..... :angry:

I'm really sorry about your chrohn's disease, I have a friend who was diagnosed. I haven't seen her in years, but the last time I did see her, she said she was doing well. Good luck, and I hope your mouth gets feeling better.

Janessa Rookie
Janessa
Posted

yes, I had this too before going gluten free. My mouth and lips would peel and kind of have a burning tingling feeling. Completely went away after going gluten free, now it'll happen for a few days after getting accidentally glutened.

jewi0008 Contributor
jewi0008
Posted
It would be easier for you to tell me what your eating. I have a very simple basic diet...no processed foods. Mainly potato's and meat. I never did eat bread, so I don't bother with that tapioca or rice stuff they try to pass off as bread. If I use any condiments...it's only heinz ketchup, or hellmans light mayo. I don't do bottled salad dressings, as something in them upsets my stomach, I'm assuming it's the distilled vinegar (even though they say it's safe) I make my own salad dressing with red wine vinegar. I usually just take a hamburg or 2 hotdogs for lunch at work ( I work 2nd shift) I still have problems with milk products, they upset my stomach, but sometimes ya gotta have that bowl of ice cream...breyers french vanilla. I have become a creature of habit, only eating the same things. If we go out for dinner, we travel the 40 miles to hit outback....they have a gluten free menu. And as for alcohol....I drink redbridge beer, my local distributor stocks it for me (GOD BLESS THEM) For some reason, some things I eat still upset my stomach (not my mouth though) but I don't believe it's from gluten....I think it's just gonna take awhile for my stomach to heal totally. If you are totally positive that your gluten free....maybe you have some other allergy that is causing the mouth shedding and soreness. Another hidden thing I avoid is anything that says modified food starch.....It may be gluten....so I absolutely avoid it all. Hope this helps some

Here's a common day for me (everything made at home by me): Grilled chicken, tofu, shrimp, all natural greek yogurt, applies, grapes, almonds, olive oil, natural chunky peanut butter, rice cakes, rice milk, chocolate rice milk, soy milk - unflavored, starbucks coffee, sugarfree hazelnut syrup, walnuts, rice and shine, quinoa, lettuce, veggies. The end. Do you see any culprits?!?! I thought it was all gluten-free? My mouth has been burning and raw...no peeling in awhile.

rubylou Newbie
rubylou
Posted
  • Author
Here's a common day for me (everything made at home by me): Grilled chicken, tofu, shrimp, all natural greek yogurt, applies, grapes, almonds, olive oil, natural chunky peanut butter, rice cakes, rice milk, chocolate rice milk, soy milk - unflavored, starbucks coffee, sugarfree hazelnut syrup, walnuts, rice and shine, quinoa, lettuce, veggies. The end. Do you see any culprits?!?! I thought it was all gluten-free? My mouth has been burning and raw...no peeling in awhile.

Gosh ....you eat way healthier than I do! I'm almost jealous. Nothing there sticks out....you just have to read the labels, and watch out for modified food starch (that ones the stinker for me anyway) I'm wondering if you may have some other food allergies. In my case....my stomach always tells me, if I get gluten....I always have horrible stomach problems Before the mouth situation happens....BUT....sometimes when I eat things that are hard and crispy, it kinda irritates my gums. Like for instance tostitos.....they are hard and crunchy...and salty....something like that may make your mouth sore. Or.....a new toothbrush....I opt for a soft toothbrush so I don't take the hide off. Sometimes when you have allergies, your mouth gets achy too......in the spring and fall, I feel like I have a toothache. So anyhoo...keep eating healthy ( I'm still jealous).

FoxersArtist Contributor
FoxersArtist
Posted

AHAHAHA! No Joke?! How funny to hear that I am not the only one with this problem. My skin sloughed off on the insides of my cheeks every time I brushed my teeth. It didn't hurt and to be brutally honest, I came to kind of enjoy it after a while. I felt more...uhh...clean, I guess. I figured it was a reaction to my toothpaste (crest) but this is very interesting to read. Come to think of it, I have only noticed this happening one or twice since going gluten free whereas it happened every day before. How interesting. I wonder if the sloughing has any relation to those with geographic tongue, which seemed to be a common thing with some celiacs here in another thread I read a while back. Hmmmm.

-Anna

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,549
    • Most Online (within 30 mins)
      7,748
    Blough
    Newest Member
    Blough
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.