Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why So Tired After Going gluten-free?


MLB

Recommended Posts

MLB Apprentice

I am about a month into my Gluten-free Casein-free diet. I've started feeling much less abdominal pain and better digestion. But I am soooo tired. I've never been a very tired person, never took naps, etc. but now I can't seem to get the energy to do anything. I just want to lay on the couch and sleep ( i have 4 small kids so not really an option!). What do you think is going on here?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

A lot of your energy may be going into healing your gut. You are recovering, try to get plenty of rest! Our body repairs itself primarily during sleep, so now you likely need more sleep.

Can you get some help, or somebody who can watch your kids for an hour or two in the afternoon so you can have a nap?

Have you had your levels of essential nutrients tested? There are several that are often very low when you have celiac disease. You may need to supplement to bring those up.

I suggest going to your doctor and ask to be tested for your levels of ferritin (iron), vitamin D, vitamin B12 and B6, magnesium, vitamin K and potassium (somebody jump in if I forgot any).

Especially low iron and vitamin D are extremely common with celiac disease, and those can cause you to lose all your energy.

brendygirl Community Regular

I agree with the low iron. I am borderline anemic and cannot donate blood, as are lots of celiacs. Several times, when I've been tired all day--at night when brushing my teeth I'll see my vitamins sitting there--I had forgotten to take them! They really make THAT BIG of a difference!

Most of a person's energy comes from CARBS!! What do runners eat before a marathon? Pasta!

When going gluten free, we tend to stick to what I call "nuts and berries diet". Lots of fruit, veggies, and some beans and meat.

Make sure youeat lots of carbs: rice, potatoes, pancakes, bread, etc. Plus, lots of gluten free bread products are fortified with vitamins we tend to miss out on. I read it in an article in Living Without Magazine. I didn't like the idea of eating refined gluten free products, but now I see why they recommend eating that stuff.[/color]

Ursa Major Collaborator

I disagree with lots of carbs. When I eat too many carbs, I get tired, sluggish and bloated. My energy comes from meat and fat. If I don't get enough protein and saturated fat I can't do anything. Plus, of course, meat is what gives you iron and vitamin B12 (which is also in eggs).

purple Community Regular
A lot of your energy may be going into healing your gut. You are recovering, try to get plenty of rest! Our body repairs itself primarily during sleep, so now you likely need more sleep.

Can you get some help, or somebody who can watch your kids for an hour or two in the afternoon so you can have a nap?

Have you had your levels of essential nutrients tested? There are several that are often very low when you have celiac disease. You may need to supplement to bring those up.

I suggest going to your doctor and ask to be tested for your levels of ferritin (iron), vitamin D, vitamin B12 and B6, magnesium, vitamin K and potassium (somebody jump in if I forgot any).

Especially low iron and vitamin D are extremely common with celiac disease, and those can cause you to lose all your energy.

You can get these supplements cheap and fast at www.swansonvitamins.com. They have been in business for 40 years. Prices are sometimes 1/2 compared to a health food store. My daughter takes complex B and magnesium but her trouble is she can't sleep even when she is exhausted. She has a mild case of gluten sensitivity though. Weird how everybody's body reacts differently. She is also still a teenager, that counts against her b/c she wants to stay up. oh well...

Fiddle-Faddle Community Regular

I also disagree with lots of carbs, especially gluten-free bread products. Brown rice and potatoes are fine in moderation, but should not be the core of your diet! Your diet should be based on fresh veggies, fruits, fish, chicken, meats, eggs, and legumes and nuts if you are not allergic. The carbs are sides, not the whole meal!

Make sure you are getting enough protein (eggs for breakfast, not toast!) and healthy fats (fish, olive oil, etc).

ShayFL Enthusiast

I crash on too many carbs too. Go into a coma. So I disagree with adding a bunch of carbs.

I do best with meats, veggies, fats (nuts and oils) and small amounts of carbs (whole grains and fruit).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

I agree with the recommendation of B12, and since there is no level of overdose, you don't need to trust a test. Just buy some and see how it goes. There are actually energy boost products designed around the fact that B12 helps a lot with energy. The best form to take is methylcobalamin, such as the one from Open Original Shared Link.

The other nutrients mentioned are good recommendations too.

MLB Apprentice

Thanks all! Feeling pretty good today as the family let me sleep in till 9:00. :) I would like to get the vitamin testing done in the near future, there's just some insurance issues I have to work out first. I'm seeing a naturopath that's not covered by insurance so I'm paying out of pocket. I have an appt in a few days so I will ask him about that. I'll look into the b12 as I'm sure I need that anyway with my leg issues and all. I'm glad summer is around the corner and I won't be rushing kids to and from school, practices, etc.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,946
    • Most Online (within 30 mins)
      7,748

    Miyasato
    Newest Member
    Miyasato
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.