Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Large Tonsils And Adenoids


mama2two

Recommended Posts

mama2two Enthusiast

I know this probably should go under the gab and chat section, but I figured more parents possibly with a similiar experience would be more likely to see it here. We took my daughter to see an ENT because her tonsils are very large and her adenoids according to him and she has terrrible snoring and sleep apnea at night. Of course he suggested surgery, which we did schedule but I am leary of this and I am wondering if there is anything else we can do to help her with these large tonsils and adnoids. He also said that she had fluid in her ear and a sinus infection and wanted to put her on an antibiotic, I was opposed to this since she has no symptoms, she did recently have swimmer's ear that was diagnosed over the phone and she was given antibiotic ear drops for this. I have scheduled an appt with her pedi, she is pretty conservative with treatments, I want her opinion on this. He seemed aggressive with surgery and antibotics. He also said she did not have to take the antiboitic, but that if she still had fluid in her ear at the time of surgery that he could lance her ear drum, I did not like the sound of that. She has never before had an ear infection. Any advice would be appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



elonwy Enthusiast

My mom chose not to have my tonsils out when I was kid, though I had repeated issues, and mine are definitely oversized. I'm now dealing with the possibility of having to have them out as an adult, which is much more traumatic than if the surgery is done to a kid. This isn't really something that gets better as you get older. Just a thought.

That being said, the lancing of the ear is just scary. I'm missing part of my hearing cause of an overzealous ENT during my childhood. You may want to get a second opinion from someone who doesn't seem so surgery happy (I've found the younger the ENT, the less they want to do surgery). You also really want to make sure she doesn't have any infections going into it, even if it means waiting, if you do chose to do it.

I'm not a parent yet, just been on the recieving end of these issues my whole life.

Darn210 Enthusiast

Both of my kids have had their tonsils and adenoids taken out. My daughter's was at the age of 3. She snored and had sleep apnea. She would stop breathing. I was more than happy to have her tonsils taken out. The sleep apnea completely stopped afterwards. My son's tonsils were taken out because of his growth issues. His tonsils were HUGE but he did not snore, did not have sleep apnea, did not have repeated ear infections or strep throat. GI said it was time to look for chronic inflamation as a reason as to why his growth was so poor and his tonsils (because of their size) were at the top of the list. ENT said that normally they don't take out tonsils unless they have snoring/sleep apnea or infection issues but on rare occasions, they do take them out for growth issues. My son had them taken out about two months ago. Afterwards, the ENT said that they were nasty little buggers that did indeed need to come out as there was a chronic/old infection (even though he had no fever or symptoms and had a round of antibiotics).

I would guess that the fluid in the ear is probably part of the sinus infection. If she hasn't had a lot of antibiotics, I would probably do a round of antibiotics to clear up the sinus infection - hope that clears up the fluid, too - and I would definitely talk to your pediatrician about lancing the ear . . . I just don't like the sound of that one.

Guest lorlyn

Had my tonsils out at age 40. It was really. really tough. The bad thing is that they can grow back :o

purple Community Regular

My personal advice. Tonsils and adenoids are part of our immune system as well as other parts the doctors are so happy about removing. Our parts our God given for a purpose. Our immune system is highly important to keep out invaders. Our parts all work together and if one is missing then the others have to work harder. We are more susceptible to things the less parts we have. I would go to the best alternative natural doctor you can find in your area and get a second opinion. Many MD's are taught to treat the symptoms or remove them and take prescriptions which cause a downward spiral to our health. Natural docs (good ones) try to do what they can to find the cause and heal the body. Our doc is an osteopath.

BelievinMiracles Explorer

I had my adenoids out when I was in first grade. They were so big that I couldn't talk and was afraid to speak. They actually put me in a special ed class because they thought I had some learning disability. Haha now you can't get me to stop talking and I'm on the Dean's List. I'm glad they took mine out.

Carollynb Newbie
I know this probably should go under the gab and chat section, but I figured more parents possibly with a similiar experience would be more likely to see it here. We took my daughter to see an ENT because her tonsils are very large and her adenoids according to him and she has terrrible snoring and sleep apnea at night. Of course he suggested surgery, which we did schedule but I am leary of this and I am wondering if there is anything else we can do to help her with these large tonsils and adnoids. He also said that she had fluid in her ear and a sinus infection and wanted to put her on an antibiotic, I was opposed to this since she has no symptoms, she did recently have swimmer's ear that was diagnosed over the phone and she was given antibiotic ear drops for this. I have scheduled an appt with her pedi, she is pretty conservative with treatments, I want her opinion on this. He seemed aggressive with surgery and antibotics. He also said she did not have to take the antiboitic, but that if she still had fluid in her ear at the time of surgery that he could lance her ear drum, I did not like the sound of that. She has never before had an ear infection. Any advice would be appreciated.

My youngest, now three, had the same exact issues since birth. Our pedi referred us to a ped ENT who removed his adenoids and inserted tubes into each ear (to alleviate the constant fluid buildup) but refused to remove the very enlarged tonsils. She, instead, wanted to keep him on antibiotics when necessary until he was closer to four. That would be another 1 1/2 years! We immediately changed doctors. We went through an observation period and tried non-medicated and medicated nose sprays (which did help a bit during the summer months). However, the snoring never really got better and he was cranky all of the time and wouldn't eat much at all. We also had to send him to speech therapy because he'd had fluid in his ears for so long (no fever or infection) that he speech was suffering. Once his tonsils were removed he was a different child altogether! His attitude did a 180 and his appetite returned. His language skills also went through the roof quite rapidly.

Surgery is surgery no matter how simple of a procedure but you must way the pros against the cons and decide what is right for you and your family. As a mother who's seen night and day in her child because of the surgery, I can say it was worth it and our visits to the doctor have dropped to about 1 every 4 months, mostly for allergies now.

Note, about 5% of all patients will bleed excessively 7-10 days after a tonsillectomy when the scabs fall off. The younger your child, the quicker they can fall into a life threatening situation due to blood loss (IF they bleed at all afterwards.). Ours did but recovered and went home in less than 24 hours.

Don't be afraid to ask your doctor questions, repeatedly if you have to. I, personally, would recommend having it done at a children's hospital, if at all possible. Depending on your child's age, don't go into too many details about the surgery; you could scare them unnecessarily. Be sure to pack items they associate with home like a stuffed animal, favorite blanket, movies, etc. Mine couldn't get enough of the popsicles! Good luck with whatever choice you make.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Darn210 Enthusiast
. . . if she still had fluid in her ear at the time of surgery that he could lance her ear drum, I did not like the sound of that.

. . . and I would definitely talk to your pediatrician about lancing the ear . . . I just don't like the sound of that one.

I started thinking about this . . . I think maybe we are both reacting to the phrase "lance her ear drum". When Carollyn was talking about tubes for the ears, it made be think a little differently. I know they put tubes in the ears of kids with fluid build up to keep them from getting a lot of ear infections. Tubes will fall out by themselves and the eardrums heal.

From Open Original Shared Link

Ear tubes are inserted through an outpatient surgical procedure called a myringotomy. A myringotomy refers to an incision (a hole) in the ear drum or tympanic membrane. This is most often done under a surgical microscope with a small scalpel (tiny knife), but it can also be accomplished with a laser. If an ear tube is not inserted, the hole would heal and close within a few days. To prevent this, an ear tube is placed in the hole to keep it open and allow air to reach the middle ear space (ventilation).

So even though I wince at the term "lance", I think they are just wanting to drain the ear and (from above) the incision would heal within a couple of days. Doesn't hurt to discuss it with your doctors though!!

Generic Apprentice

Through most of my daughter's life she has suffered from ear infections, strep throat and snoring. I have asked on numerous occasions about having her tonsils removed. The Dr. kept saying if she gets it one more time this year, then.... Well of course it never happened. She is now 17 years old and I got a different dr. to give a referral for a sleep study. She is now having her adenoids and tonsils taken out. Apparently her oxygen levels dropped below 87% several times due to blockage. I wish they would have done it years ago, they heal so much better when they are younger.

purple Community Regular
I know this probably should go under the gab and chat section, but I figured more parents possibly with a similiar experience would be more likely to see it here. We took my daughter to see an ENT because her tonsils are very large and her adenoids according to him and she has terrrible snoring and sleep apnea at night. Of course he suggested surgery, which we did schedule but I am leary of this and I am wondering if there is anything else we can do to help her with these large tonsils and adnoids. He also said that she had fluid in her ear and a sinus infection and wanted to put her on an antibiotic, I was opposed to this since she has no symptoms, she did recently have swimmer's ear that was diagnosed over the phone and she was given antibiotic ear drops for this. I have scheduled an appt with her pedi, she is pretty conservative with treatments, I want her opinion on this. He seemed aggressive with surgery and antibotics. He also said she did not have to take the antiboitic, but that if she still had fluid in her ear at the time of surgery that he could lance her ear drum, I did not like the sound of that. She has never before had an ear infection. Any advice would be appreciated.

Here is a site I just found: www.stayinginshape.com/3osfcorp/libv/i79.shtml Thought you might be interested

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748

    Tara M
    Newest Member
    Tara M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.