Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Tests Went From Off The Charts Positive To Negative In 9 Short G-free Months!


i-miss-cookie-dough

Recommended Posts

i-miss-cookie-dough Contributor

so, now i test negative for celiac.

what does that mean??

anything???


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

You are SUPPOSED to test negative for celiac disease a few months after starting the gluten-free diet! That shows you are doing a good job being gluten-free. Congratulations. Your villi are healing and you are getting well.

aikiducky Apprentice

What Ursa said - you're doing a good job with the diet! Congratulations!

When you don't eat gluten any more, your immune system doesn't have to react to it all the time any more, and it stops producing the antibodies. That's a good thing! That's why sometimes the blood tests are used to monitor compliance with he diet, if the antibodies keep showing up then something isn't going right with the diet or with the healing process.

Pauliina

i-miss-cookie-dough Contributor

thanks you two!!!

but that doesn't mean i can go

back to eating gluten, right?

its funny b/c when i told

my friends that i am now

testing positive -

they were like

"GREAT! so now we can go out for pizza!!!"

not true though, right???

jerseyangel Proficient
thanks you two!!!

but that doesn't mean i can go

back to eating gluten, right?

its funny b/c when i told

my friends that i am now

testing positive -

they were like

"GREAT! so now we can go out for pizza!!!"

not true though, right???

No, you should never eat gluten again--if you were to do so, your tests would eventually become positive again and you would begin to have symptoms--quite possibly worse than before.

Celiac is a lifelong disorder--it can be successfuly treated (by the gluten-free diet), but never cured. Not yet, anyway ;)

Congrats on the negative tests and keep up the good work! :D

Ursa Major Collaborator

As Patti said, you can NEVER eat gluten again! Your tests are only negative now because you haven't had gluten in nine months. That is excellent. But if you eat gluten again, you'll get sick again, and may even trigger other autoimmune diseases.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,162
    • Most Online (within 30 mins)
      7,748

    Carolyn harkless
    Newest Member
    Carolyn harkless
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • Scott Adams
      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
    • Greymo
      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.