Just Diagnosed

[Guest mellan3]

Hello we are new to world of healthier living with celiac disease. Charlie my son who is 11 years old was diagnosed one week ago today and we decided as a family that we were all going to be Gluten Free. We were all tested last Thursday and are waiting for results. When Charlie was 9 he was diagnosed with Type 1 Diabetes. I am looking for other families to chat with who are dealing with both things. We are having a tough time finding good tasting breads. We are not fans of the breads that are mostly made up of rice, plus rice makes a diabetic's blood sugars rise very high. Please please help I really need to talk with families that are dealing with both things. Yes beginning stages, panicky Mom. Melinda

[purple]

Recipezaar #190906 is a good bread! Read the ingedients and all the reviews. You can substitute ingredients. No sugar, honey instead but only 2 tablespoons. Sub rice flour for sorghum.

[betty6333]

hi, i sent you a pm ,so check your inbox, but i forgot to tell you , i go to type1parents.org . there you will find an amazing group of people to talk with, most of the kids do not have celiac, but a few do and these guys are amazing and sooooo nice.....

betty

[Guest mellan3]

Recipezaar #190906 is a good bread! Read the ingedients and all the reviews. You can substitute ingredients. No sugar, honey instead but only 2 tablespoons. Sub rice flour for sorghum.

I am so new to celiac disease that I do not know were to find Recipezaar #190906. Please tell me where to find. Thanks

[home-based-mom]

Open Original Shared Link has lots of recipes on their site - many of them gluten free. You can order the various flours online or buy them locally. Check the expiration dates if you decide to buy locally - especially if you are looking in a regular grocery store and not a health food store. I just saw expired xanthan gum at my local Ralph's.

[elye]

Welcome to the board! You've come to the right place.

I have had type one diabetes for 35 years, and was diagnosed with celiac disease three years ago. Trying to combine the two diets was overwhelming at first, but I can promise you, it does get much, much easier! In fact, the two diets fit together perfectly. Gluten comes from a carbohydrate, and carbs should be limited in the diabetic diet. My blood sugar control went from very good to superb once I stopped eating gluten. And the gluten-free diet has gotten me away from almost all processed foods (much tougher with a child, I realize!), which are often loaded with gluten.

I don't eat much bread now, but when I do it's the bread I make myself in my Cuisinart breadmaker (at $150.00, it's well worth investing in) that has a gluten-free setting.

Interesting that you say rice causes your son's bs to spike....I am fine with brown rice - -I don't notice significant changes in my control. Corn flour does, somewhat. The nice thing about making one's own bread is that you can use all the different gluten-free flours available, and experiment.

Let us know how you do - - hang in there! It's a steep learning curve, but soon you'll be right into the swing of things, and your son's diabetes under great control!

[purple]

I am so new to celiac disease that I do not know were to find Recipezaar #190906. Please tell me where to find. Thanks

Just type it in the web search or google box and it should take you directly there.

[Guest mellan3]

Welcome to the board! You've come to the right place.

I have had type one diabetes for 35 years, and was diagnosed with celiac disease three years ago. Trying to combine the two diets was overwhelming at first, but I can promise you, it does get much, much easier! In fact, the two diets fit together perfectly. Gluten comes from a carbohydrate, and carbs should be limited in the diabetic diet. My blood sugar control went from very good to superb once I stopped eating gluten. And the gluten-free diet has gotten me away from almost all processed foods (much tougher with a child, I realize!), which are often loaded with gluten.

I don't eat much bread now, but when I do it's the bread I make myself in my Cuisinart breadmaker (at $150.00, it's well worth investing in) that has a gluten-free setting.

Interesting that you say rice causes your son's bs to spike....I am fine with brown rice - -I don't notice significant changes in my control. Corn flour does, somewhat. The nice thing about making one's own bread is that you can use all the different gluten-free flours available, and experiment.

Let us know how you do - - hang in there! It's a steep learning curve, but soon you'll be right into the swing of things, and your son's diabetes under great control!

Emily, Thank you for your reply, since posting this message, My middle child Maggie age 8 and myself have been diagnosed with Celiac. Charlie my son is quit pleased that he has company. My youngest daughter and my husband are not. However we are all on the gluten-free diet together. Good news about blood sugars will be better for him. I have a question for you, do you think if you were diagnosed with Celiac when you were a little child it could of prevented Type 1? Everything I read seys that uncontrolled Celiac could lead to other disorders like Diabetes and thyroid etc. Curious! I know it is a waist of time thinking about the "what ifs" however I hope the researchers out there are looking in this direction. Melinda

[suzyq63]

Hi. I just joined this group. Alison, 11, was diagnosed with Type 1 diabetes in January and will probably be diagnosed with celiac when she has her endoscopy on July 3, at least I hope so at this point. I certainly won't be much help at this point, but I thought I'd post and let you know that we are dealing with the same issues as you are.

I'm glad you asked about rice bread. Regular white rice definitely causes a large blood sugar spike for Alison too. I don't know if brown rice would do the same thing; I suppose I should try it.

Paula