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Safe Or Not?


Guest spruette

Are Oats safe or not?  

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Guest spruette

Since I am new to Celiac, was wondering what the experiences were with Oats and other Celiacs. Has anyone had a bad experience? Do you eat oats?


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KaitiUSA Enthusiast

Since I have been gluten-free I have stayed away from oats. It has been highly debateable if celiacs can have oats or not. At this point I will personally not eat oats.

angel-jd1 Community Regular

There is an article in the most recent issue of Gluten Free Living. It talks about contamination of oats.

A registered dietician took 12 containers of rolled or steel cut oats that represented 4 different lots of three brand names. The brands being McCanns, Country Choice, and Quaker.

The ELISA R5 test was used on the 12 samples. All of the brands showed contamination!!!

McCann's

1st- below level of detection (so under 3ppm)

2st- below 20ppm

3nd- 23ppm

4rd- 725ppm

Country Choice

1st- below 20ppm

2nd-4th ranged from 120-210ppm

Quaker

All four tested from 338-1807ppm

Under 20ppm is the codex standard used to determine Gluten free.........but all of the brands showed some crazy levels of contamination and were inconsistent. I wouldn't trust them!!

-Jessica :rolleyes:

Guest spruette

Wow! :o I am not sure what those numbers mean, but it does seem highly contamintated. That is enough to shy me away from them. Thank you so much for your input. I haven't had any oats yet, and so grateful now that I haven't. **BIG THANK YOU**

tarnalberry Community Regular

In addition to the contamination, another recent study (which, I believe, I found on the celiac.com main site) has shown that there are some people who do have reactions specifically to avenin (the oat protein that is similar, but not identical, in structure to gliandin, the wheat protein). Antibodies specifically addressing avenin were found in - I think - about a third of the celiac patients studied. So even without contamination, it appears that some celiacs really are intolerant to oats as well.

celiac3270 Collaborator

Yes--it's not that debatable anymore--the contamination is just so likely that you'd be taking a huge chance of being contaminated, either from the fields that had previously been used for growing wheat or rye, from the mill, etc. The odds are so great that we don't even need to go into the structure of the oats--because they're already problematic just from contamination.

jknnej Collaborator

I don't eat them, either, and I used to love oatmeal!

Every time I feel a complaint about the diet coming on, I just think:

Is it worth it to have something that makes me feel so bad?

So I stay away from anything questionable. I'm even giving up gluten-free restaurants now, which is my saddest moment ever.


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      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
    • trents
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